Natalie, who lives in Cumbria, was diagnosed in 2021 and did receive some treatment at her local hospital.
But a friend from a support group then put Natalie in touch with surgeon Prof Reza Nouraei, consultant ear nose and throat surgeon at the QMC, after she started to find it very difficult to breathe.
“She said that I could come to Nottingham and he’d be willing to meet,” Natalie said.
“I packed a bag and came down, and he came in to see me from home and he operated the next day.”
Natalie credits Prof Nouraei with changing her life after her initial surgery in 2024.
“He’s a hero, he really is, I’m really really grateful, I’ve got to come here, it does really mean a lot because you feel so alone,” she said.
“When I was at my previous hospital, they didn’t have anybody that had this condition and I was kind of a guinea pig.
“Since coming here, I’ve met a great group of ladies, we’ve got a WhatsApp group and we talk all the time, which is great in itself to just not feel so alone.”