In Sunday’s video, external, Nelson said the diagnosis had come after “the most gruelling three, four months and endless appointments”, and described SMA as the “most severe muscular disease”.
“It does affect every muscle in the body, down to legs, arms, breathing, swallowing,” she said.
She explained that her daughters Ocean Jade and Story Monroe Nelson-Foster had not been showing as much movement in their legs as they should be, and were struggling to feed properly.
“Essentially, what it [SMA] does is, over time, it kills the muscles to the body, and if it’s not treated in time, your baby’s life expectancy will not make it past the age of two.”
She added that they have had treatment, which she was “so grateful for”.
However, she said doctors had told her that her daughters were “probably never going to be able to walk, they probably will never regain their neck strength, so they will be disabled”.