“Have I got a plan? Hopefully, I’ll never have to [have one]. But the reality is if Noah was at that point and there was nothing that could be done and there were options out there, then I wouldn’t say no.
“That’s the honest answer. Would I like to see it [assisted dying] in our own country? Yes.”
“I’ve seen him when it’s bad,” she added. “There was one time I didn’t think he was coming home because he was that bad and the screaming because of the pain he’s been in.
“The chemo affected him so bad that his kidneys and liver were struggling, and that’s just on treatment.”
She said the progression of Noah’s illness means his body could start shutting down, and he would likely lose the ability to do things independently and not be able to speak.
“That’s not dignified,” she added.
Noah says the idea of death “terrifies” him and he remains optimistic about his future, but he believes in having a fully informed choice on the possibility of an assisted death in the UK for people like him.
He said when the time comes he wanted to be able to “die with dignity”.