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Browsing Tag

Batten Disease

2 posts
GGenetics
The Independent
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Girl, 4, to lose the ability to walk, speak and see due to rare genetic disorder

  • September 16, 2025
A west London couple are experiencing “prolonged grief” after their nearly four-year-old daughter was diagnosed with a rare,…
MMedication
B.C. restores rare drug funding for 10-year-old girl with Batten disease
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B.C. restores rare drug funding for 10-year-old girl with Batten disease

  • July 18, 2025
The B.C. government says it is restoring funding for a drug used to improve the quality of life…
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