{"id":486712,"date":"2026-02-17T23:19:11","date_gmt":"2026-02-17T23:19:11","guid":{"rendered":"https:\/\/www.newsbeep.com\/au\/486712\/"},"modified":"2026-02-17T23:19:11","modified_gmt":"2026-02-17T23:19:11","slug":"ocd-is-often-misunderstood-elena-wants-you-to-know-what-it-feels-like","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/au\/486712\/","title":{"rendered":"OCD is often misunderstood. Elena wants you to know what it feels like"},"content":{"rendered":"<p class=\"paragraph_paragraph__iYReA\">One of the first rituals Elena felt comfortable sharing with her doctor was the way she held her toothbrush.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">It was the very specific manner in which she would place her fingers up the back off the brush and then slide them off.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">It was the same motion every time she brushed her teeth.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">If it was &#8220;wrong&#8221;, she would repeat it.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">Over and over.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;It does slow you down in the mornings when it doesn&#8217;t feel right and you&#8217;ve done it seven times,&#8221; she says.<\/p>\n<p class=\"paragraph_paragraph__iYReA\"><a class=\"Link_link__kR0xA Link_link__5eL5m ScreenReaderOnly_srLinkHint__OysWz Link_showVisited__C1Fea Link_showFocus__ALyv2\" href=\"#quiz\" data-component=\"Link\" data-uri=\"coremedia:\/\/article\/106254504\">How well do you know OCD? Skip to our quiz<\/a><\/p>\n<p class=\"paragraph_paragraph__iYReA\">The toothbrush handling would later become known as one of Elena&#8217;s ritualistic OCD behaviours (also called compulsions) \u2014 repetitive, time-consuming actions performed to temporarily reduce the anxiety of obsessive thoughts.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">For Elena, 18, often these obsessive thoughts revolve around a sense of impending doom or the feeling that &#8220;spiritual disaster&#8221; could follow if the compulsions are not performed correctly.<\/p>\n<p><img decoding=\"async\" alt=\"A young girl smiles and holds her chest. \" class=\"Image_image__5tFYM ContentImage_image__DQ_cq\"  src=\"https:\/\/www.newsbeep.com\/au\/wp-content\/uploads\/2026\/02\/c5b1372798c3202830c28ad555b909b9.jpeg\" loading=\"lazy\" data-component=\"Image\" data-lazy=\"true\"\/><\/p>\n<p class=\"Typography_base__sj2RP FigureCaption_text__zDxQ5 Typography_sizeMobile12__w_FPC Typography_lineHeightMobile20___U7Vr Typography_regular__WeIG6 Typography_colourInherit__dfnUx\" data-component=\"Typography\">Elena says seeking help was a turning point in how she dealt with her OCD. (ABC News: Leah White)<\/p>\n<p class=\"paragraph_paragraph__iYReA\">OCD (obsessive-compulsive disorder) affects about 3 per cent of Australians each year, but its nature is often misunderstood.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">Diagnosis can take on average nine years, says Lara Farrell, a clinical psychologist and the director for the Centre for Mental Health at Griffith University.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">The reasons are complex.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">People with OCD can be adept at hiding symptoms and often the condition appears alongside other anxiety disorders or depression.<\/p>\n<p><a href=\"https:\/\/www.abc.net.au\/news\/2024-09-19\/neurodivergence-ocd-teen-mental-health\/104342344\" data-component=\"FullBleedLink\" class=\"RelatedCard_link__rsgR9 FullBleedLink_root__lTw_U interactive_focusContext__yRhc_ interactive_defaults__AKxUU FullBleedLink_showVisited__g3Xvz\" rel=\"nofollow noopener\" target=\"_blank\">Teen&#8217;s OCD and austism diagnosis a lifechanging moment<\/a><\/p>\n<p class=\"Typography_base__sj2RP RelatedCard_synopsis__cFwMW Typography_sizeMobile14__u7TGe Typography_lineHeightMobile20___U7Vr Typography_regular__WeIG6 Typography_colourInherit__dfnUx\" data-component=\"Typography\">Geordie spent two years unable to attend school as he dealt with undiagnosed OCD and autism. He said his diagnoses changed his life for the better.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">A person with OCD can also avoid diagnosis due to stigma, Professor Farrell says.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;Often there&#8217;s an awful lot of embarrassment or shame around symptoms that are really distressing, obsessions that people feel really uncomfortable telling others that they might be experiencing,&#8221; she says.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">For Elena, the disorder was triggered at 12 by the traumatic death of a duckling she was caring for.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">Embarrassment and grief kept her from fully explaining her symptoms, which saw her condition initially misdiagnosed.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;I&#8217;ve got a lovely GP \u2026 I have a lot of trust in her, but still it was really difficult for me to talk about,&#8221; she says.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">Elena struggled to tell anyone the full story, even her psychologist.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">It was a <a class=\"Link_link__5eL5m ScreenReaderOnly_srLinkHint__OysWz Link_showVisited__C1Fea Link_showFocus__ALyv2\" href=\"https:\/\/iview.abc.net.au\/video\/LE1921H003S00\" data-component=\"Link\" rel=\"nofollow noopener\" target=\"_blank\">You Can&#8217;t Ask That<\/a> episode on lived experience that eventually named what Elena had been feeling.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;It really helped me realise that there is actually a name for what I was going through and I&#8217;m not crazy.&#8221;<\/p>\n<p>&#8216;I&#8217;m so OCD&#8217;: Debunking misconceptions<\/p>\n<p class=\"paragraph_paragraph__iYReA\">OCD is often the punchline to a joke about an overly clean or fussy person.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">It is a reputation that dismisses the severity.<\/p>\n<p><img decoding=\"async\" alt=\"A woman washing her hands.\" class=\"Image_image__5tFYM ContentImage_image__DQ_cq\"  src=\"https:\/\/www.newsbeep.com\/au\/wp-content\/uploads\/2026\/02\/9a72100c8684772033899c012947454b.jpeg\" loading=\"lazy\" data-component=\"Image\" data-lazy=\"true\"\/><\/p>\n<p class=\"Typography_base__sj2RP FigureCaption_text__zDxQ5 Typography_sizeMobile12__w_FPC Typography_lineHeightMobile20___U7Vr Typography_regular__WeIG6 Typography_colourInherit__dfnUx\" data-component=\"Typography\">OCD is often downplayed as excessive cleanliness. (ABC Radio Brisbane: Jessica Hinchliffe)<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;One of the greatest misconceptions is that a lot of people experience some OCD,&#8221; Professor Farrell says.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;A common term of phrase is, &#8216;That&#8217;s just my OCD,&#8217; or, &#8216;I&#8217;m so OCD at times.&#8217;<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;Clinical OCD is very different from \u2026 healthy rituals that people might engage in out of choice and preference or a drive for having things orderly or clean or tidy.&#8221;<\/p>\n<p>&#8220;[OCD symptoms] disrupt a person&#8217;s day-to-day life and cause an enormous amount of struggle individually and amongst families.&#8221;<\/p>\n<p class=\"paragraph_paragraph__iYReA\">At Elena&#8217;s worst \u2014 when depression and OCD were feeding into each other \u2014 she would be up all night, tapping her feet on the stairs.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;It would be like 12:30\u20131 in the morning, my parents were asleep, and I&#8217;m still at the bottom of the steps,&#8221; she recalls.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;And I&#8217;m in tears doing it over and over and over again.&#8221;<\/p>\n<p><img decoding=\"async\" alt=\"Coloured pens lined up separately in red and blue colours.\" class=\"Image_image__5tFYM ContentImage_image__DQ_cq\"  src=\"https:\/\/www.newsbeep.com\/au\/wp-content\/uploads\/2026\/02\/1b6f010e3ecab834a3734c193eaca5fa.jpeg\" loading=\"lazy\" data-component=\"Image\" data-lazy=\"true\"\/><\/p>\n<p class=\"Typography_base__sj2RP FigureCaption_text__zDxQ5 Typography_sizeMobile12__w_FPC Typography_lineHeightMobile20___U7Vr Typography_regular__WeIG6 Typography_colourInherit__dfnUx\" data-component=\"Typography\">Colour coordinating is another potentially limiting misconception of OCD. (ABC Radio Brisbane: Jessica Hinchliffe)<\/p>\n<p class=\"paragraph_paragraph__iYReA\">It was not something as simple as colour-coordinating pens.<\/p>\n<p>&#8220;For me, in year seven, it was one of the worst things I&#8217;ve experienced in my whole life.&#8221;Improving detection across Australia<\/p>\n<p class=\"paragraph_paragraph__iYReA\">Professor Farrell believes better training could improve OCD detection across Australia.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">Assessment needs to focus on normalising symptoms, she says.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">From March 1, she will be part of a nationwide trial offering web-based training for parents treating OCD at home, with a focus on exposure and response prevention therapy (ERP).<\/p>\n<p><a href=\"https:\/\/www.abc.net.au\/news\/2021-05-12\/obsessive-compulsive-disorder-ocd-you-cant-ask-that\/100130640\" data-component=\"FullBleedLink\" class=\"RelatedCard_link__rsgR9 FullBleedLink_root__lTw_U interactive_focusContext__yRhc_ interactive_defaults__AKxUU FullBleedLink_showVisited__g3Xvz\" rel=\"nofollow noopener\" target=\"_blank\">Murder, sex, blasphemy: The true face of OCD<\/a><\/p>\n<p class=\"Typography_base__sj2RP RelatedCard_synopsis__cFwMW Typography_sizeMobile14__u7TGe Typography_lineHeightMobile20___U7Vr Typography_regular__WeIG6 Typography_colourInherit__dfnUx\" data-component=\"Typography\">I was about to perform at the Sydney Opera House, but all I could think about was\u00a0the excruciating possibility that I might like the taste of human flesh. This is what OCD really feels like.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">Exposure and response prevention therapy, where people with OCD are confronted with their fears in a safe environment, yields good outcomes and recovery for the majority of OCD patients, she says.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">Despite this, a reputation persists that OCD is untreatable.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;We&#8217;re talking to families from all over the country and some of them have seen so many different psychologists,&#8221; Professor Farrell says.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;So many of them believe that this is a condition that their child will have forever.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;I think it is really important that we do a better job of conveying that OCD is a treatable condition.<\/p>\n<p>&#8220;It&#8217;s really serious. It doesn&#8217;t just go away, but there are effective treatments that result in recovery.&#8221;<img decoding=\"async\" alt=\"A young woman in front of a garden holds her necklace to her chest. \" class=\"Image_image__5tFYM ContentImage_image__DQ_cq\"  src=\"https:\/\/www.newsbeep.com\/au\/wp-content\/uploads\/2026\/02\/321d3b1b8a0377d7c8e32be484fec993.jpeg\" loading=\"lazy\" data-component=\"Image\" data-lazy=\"true\"\/><\/p>\n<p class=\"Typography_base__sj2RP FigureCaption_text__zDxQ5 Typography_sizeMobile12__w_FPC Typography_lineHeightMobile20___U7Vr Typography_regular__WeIG6 Typography_colourInherit__dfnUx\" data-component=\"Typography\">Elena says therapy has helped her ignore some of her ritualistic behaviours. (ABC News: Leah White)<\/p>\n<p class=\"paragraph_paragraph__iYReA\">Elena credits the form of therapy for her own progress.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;It&#8217;s so much better now, not thinking a plane is going to crash because I didn&#8217;t do a little tap dance before bed,&#8221; she says.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">It is something Elena wants people isolated by OCD to know.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">&#8220;You&#8217;re not alone,&#8221; she says.<\/p>\n<p>&#8220;And you don&#8217;t have to feel embarrassed or ashamed about it.&#8221;So, how well do you know OCD?Loading<a class=\"Link_link__kR0xA Link_link__5eL5m ScreenReaderOnly_srLinkHint__OysWz Link_showVisited__C1Fea Link_showFocus__ALyv2\" href=\"https:\/\/www.abc.net.au\/heywire\/\" data-component=\"Link\" data-uri=\"coremedia:\/\/channel\/8874388\" rel=\"nofollow noopener\" target=\"_blank\"><img decoding=\"async\" alt=\"Heywire banner image\" width=\"700\" height=\"169\" class=\"Image_image__5tFYM\" src=\"https:\/\/www.newsbeep.com\/au\/wp-content\/uploads\/2026\/02\/9639c2f5fe9862bcb5ed88c5a0e5dcfe.jpeg\" loading=\"lazy\" data-component=\"Image\" data-uri=\"coremedia:\/\/image\/11955146\"\/><\/a><\/p>\n<p class=\"paragraph_paragraph__iYReA\">The <a class=\"Link_link__5eL5m ScreenReaderOnly_srLinkHint__OysWz Link_showVisited__C1Fea Link_showFocus__ALyv2\" href=\"https:\/\/www.abc.net.au\/heywire\/\" data-component=\"Link\" target=\"_blank\" rel=\"noopener noreferrer nofollow\">ABC&#8217;s Heywire competition<\/a> is open to all regional Australians aged between 16 and 22.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">The annual competition provides a platform for the younger generation, in pockets of Australia that rarely see the spotlight, to &#8220;tell it like it is&#8221;.<\/p>\n<p class=\"paragraph_paragraph__iYReA\">If you are aged between 16 and 22 and would like to find out more about the ABC Heywire Competition, go to <a class=\"Link_link__5eL5m ScreenReaderOnly_srLinkHint__OysWz Link_showVisited__C1Fea Link_showFocus__ALyv2\" href=\"https:\/\/www.abc.net.au\/heywire\/\" data-component=\"Link\" target=\"_blank\" rel=\"noopener noreferrer nofollow\">the ABC Heywire website<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"One of the first rituals Elena felt comfortable sharing with her doctor was the way she held her&hellip;\n","protected":false},"author":2,"featured_media":486713,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[35],"tags":[64,63,137,514,515,8206,2375,246207],"class_list":{"0":"post-486712","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-mental-health","8":"tag-au","9":"tag-australia","10":"tag-health","11":"tag-mental-health","12":"tag-mentalhealth","13":"tag-obsessive-compulsive-disorder","14":"tag-ocd","15":"tag-ocd-misconceptions"},"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/posts\/486712","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/comments?post=486712"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/posts\/486712\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/media\/486713"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/media?parent=486712"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/categories?post=486712"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/tags?post=486712"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}