{"id":744231,"date":"2026-06-18T10:10:12","date_gmt":"2026-06-18T10:10:12","guid":{"rendered":"https:\/\/www.newsbeep.com\/au\/744231\/"},"modified":"2026-06-18T10:10:12","modified_gmt":"2026-06-18T10:10:12","slug":"i-dont-have-a-life-the-physical-and-emotional-toll-of-caregiving-for-a-loved-one","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/au\/744231\/","title":{"rendered":"&#8216;I don&#8217;t have a life&#8217;: The physical and emotional toll of caregiving for a loved one"},"content":{"rendered":"<p>New research examines pressures facing family carers<\/p>\n<p>Morning Report<\/p>\n<p>A 70-year-old woman caring for her mentally disabled husband all by herself says she doesn&#8217;t have a life anymore and no longer feels like an individual.<\/p>\n<p>Now, researchers at Massey University hope to measure the physical and emotional toll on <a href=\"https:\/\/www.rnz.co.nz\/news\/political\/597966\/disability-advocates-call-for-drastic-changes-to-support-services-bill\" class=\"underline-brand-hover visited:text-foreground-secondary hover:visited:text-foreground-primary\" rel=\"nofollow noopener\" target=\"_blank\">caregivers looking after their loved ones<\/a>.<\/p>\n<p>Wendy Slieker&#8217;s husband was found dead on the side of the road in Wellington&#8217;s Oriental Bay.<\/p>\n<p>It took almost 30 minutes for paramedics to restart his heart, and by the time he woke up he had suffered a severe brain injury from the lack of oxygen.<\/p>\n<p>Fourteen years later, Slieker said he was like a child in a man&#8217;s body.<\/p>\n<p>&#8220;He&#8217;s very much like a six-foot-three toddler,&#8221; she said.<\/p>\n<p>&#8220;Everything that is required to be done in a day he needs assistance with. He will not shower, he will not bathe, he will not do any of the basic functions that an individual does like brush his teeth.&#8221;<\/p>\n<p>Simultaneously dealing with her own spinal injury and an autoimmune condition, she had to put her husband&#8217;s needs before her own.<\/p>\n<p>&#8220;He&#8217;s in a highly depressive mood most of the time because he realises what he&#8217;s lost. He was an engineer before, he&#8217;s lost all his friends, he&#8217;s lost all of his ability,&#8221; Slieker explained.<\/p>\n<p>&#8220;So a lot of my role, I mean basically I&#8217;m a doctor, I&#8217;m a psychologist, I&#8217;m a physiotherapist, I&#8217;m <a href=\"https:\/\/www.rnz.co.nz\/news\/health\/597305\/disabled-people-s-access-to-health-system-or-lack-of-it-laid-bare\" class=\"underline-brand-hover visited:text-foreground-secondary hover:visited:text-foreground-primary\" rel=\"nofollow noopener\" target=\"_blank\">all of the professions that he needs<\/a>.&#8221;<\/p>\n<p>Slieker said she had exhausted all other options for professional care.<\/p>\n<p>&#8220;He won&#8217;t allow other people in the house that he doesn&#8217;t know,&#8221; she said.<\/p>\n<p>&#8220;I [could] take him up to an organisation called St John of God in Karori for respite care to give myself a 10-day break, [but] he won&#8217;t go. I can&#8217;t force him.&#8221;<\/p>\n<p>Stories like hers had inspired Massey University psychology lecturer Dr Shanika Koreshi to research carer wellbeing.<\/p>\n<p>&#8220;From a research point of view, we don&#8217;t really know enough about how caregiving affects people&#8217;s lives, their relationships, well-being, employment and the ability to participate in society over the long term,&#8221; Koreshi said.<\/p>\n<p>&#8220;Statistics can tell us what is happening, but they can&#8217;t really tell us what it feels like.&#8221;<\/p>\n<p>More than anything else, Wendy Slieker said it felt lonely.<\/p>\n<p>&#8220;I had a life. I don&#8217;t have a life now,&#8221; she said.<\/p>\n<p>&#8220;I&#8217;m lonely. I&#8217;m extremely lonely. I don&#8217;t have the social contact that I once had. Your friends move on, they&#8217;ve got their own lives. They&#8217;re not there for you.&#8221;<\/p>\n<p>Carers NZ chief executive Laurie Hilsgen said a recent wellbeing survey showed that was a common feeling.<\/p>\n<p>&#8220;Almost 80 percent of those carers say they feel lonely or isolated,&#8221; Hilsgen said.<\/p>\n<p>&#8220;Caring can mean that you spend more time at home, less opportunity maybe to participate in activities, hobbies, to maintain friendships and other relationships.&#8221;<\/p>\n<p><img src=\"https:\/\/www.newsbeep.com\/au\/wp-content\/uploads\/2026\/06\/4KM2T9X_LHilsgen_jpg.jpeg\"  alt=\"Carers NZ chief executive Laurie Hilsgen\" width=\"614\" height=\"384\" class=\"max-h-[50rem] max-w-full aspect-[16\/10] object-cover\"  decoding=\"async\" loading=\"lazy\" fetchpriority=\"auto\"\/><\/p>\n<p>Carers NZ chief executive Laurie Hilsgen.<\/p>\n<p class=\"text-foreground-secondary flex-shrink-0 ml-4\">SUPPLIED<\/p>\n<p>Dr Koreshi&#8217;s study invited carers to submit anonymous stories they wouldn&#8217;t normally share out loud.<\/p>\n<p>She said the physical and emotional toll was enormous.<\/p>\n<p>&#8220;There&#8217;s the physical side of it first. Many informal carers are providing around 30 hours of care each week,&#8221; she explained.<\/p>\n<p>&#8220;But what really stands out to me would be the emotional pressures.<\/p>\n<p>&#8220;I mean, one participant told us that it&#8217;s actually easier caring for sick people at work than caring for her own disabled son at home because at work her shift ends.&#8221;<\/p>\n<p>In the years since the accident, Wendy Slieker said she had found activities her husband could engage with to regain some autonomy.<\/p>\n<p>&#8220;I taught him how to use his computer, [and] I&#8217;ve taught him how to use a pod coffee machine. You wouldn&#8217;t think that a little pod coffee machine could be so valuable, but for him it gives him a little bit of independence,&#8221; she said.<\/p>\n<p>&#8220;Or the other thing that he does is he obsessively does Sudoku that I print out for him online.&#8221;<\/p>\n<p>But despite the occasional &#8220;lovely moment&#8221;, she said she wouldn&#8217;t wish her position on anybody.<\/p>\n<p>&#8220;This is a lifelong role. I am never ever going to get out of it,&#8221; she said.<\/p>\n<p>&#8220;I am never going to retire because as long as I&#8217;m alive and as long as he&#8217;s alive, I have a caregiving role to fulfil.&#8221;<\/p>\n<p>Dr Koreshi said her goal was to inform nationwide change.<\/p>\n<p>&#8220;We are hoping that we could build an evidence base that directly informs how we support caregivers,&#8221; she said.<\/p>\n<p>&#8220;Beyond that, we are also hoping to put the data or the stories that we get from this into developing a caregiving wellbeing measure which can track how caregiving shapes people&#8217;s life over time.&#8221;<\/p>\n<p>Shanika Koreshi hoped her research would build towards a larger programme to change how caregiving was measured and supported in New Zealand.<\/p>\n<p><a href=\"https:\/\/radionz.us6.list-manage.com\/subscribe?u=211a938dcf3e634ba2427dde9&amp;id=b3d362e693\" class=\"underline-brand-hover visited:text-foreground-secondary hover:visited:text-foreground-primary\" rel=\"nofollow noopener\" target=\"_blank\">Sign up for Ng\u0101 Pitopito K\u014drero<\/a>, a daily newsletter curated by our editors and delivered straight to your inbox every weekday.<\/p>\n","protected":false},"excerpt":{"rendered":"New research examines pressures facing family carers Morning Report A 70-year-old woman caring for her mentally disabled husband&hellip;\n","protected":false},"author":2,"featured_media":744232,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[64,63,137,500],"class_list":["post-744231","post","type-post","status-publish","format-standard","has-post-thumbnail","category-healthcare","tag-au","tag-australia","tag-health","tag-healthcare"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/posts\/744231","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/comments?post=744231"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/posts\/744231\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/media\/744232"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/media?parent=744231"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/categories?post=744231"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/tags?post=744231"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}