{"id":864888,"date":"2026-08-22T23:24:14","date_gmt":"2026-08-22T23:24:14","guid":{"rendered":"https:\/\/www.newsbeep.com\/au\/864888\/"},"modified":"2026-08-22T23:24:14","modified_gmt":"2026-08-22T23:24:14","slug":"a-new-scheme-is-about-to-replace-the-ndis-for-children-with-autism-why-has-queensland-refused-to-sign-up-national-disability-insurance-scheme","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/au\/864888\/","title":{"rendered":"A new scheme is about to replace the NDIS for children with autism. Why has Queensland refused to sign up? | National disability insurance scheme"},"content":{"rendered":"

As parliament debated the future of the National Disability Insurance Scheme this week, Ali Kuylaars was worried.<\/p>\n

Her two children, both diagnosed with autism, could be among thousands across the country removed from the federal scheme by January 2028.<\/p>\n

But Isaac, 14, and Arlo, eight, live in Queensland, the last holdout state<\/a> not to sign up for a new replacement scheme, known as Thriving Kids.<\/p>\n

Intended to assist children with mild to moderate autism or developmental delays<\/a> up to the age of nine, Thriving Kids is scheduled to be implemented from October this year, fully replacing the NDIS for those children by 2028.<\/p>\n

But the Queensland<\/a> premier, David Crisafulli, still has questions about the new program, and says he won\u2019t sign up without answers. Some are concerned that the dispute won\u2019t be resolved quickly enough, leaving Queensland children to fall into a gap between ineligibility for the NDIS and a delayed implementation of Thriving Kids.<\/p>\n

Kuylaars\u2019s son Isaac. Photograph: Ali Kuylaars<\/p>\n

But others are concerned about the new scheme itself, and argue the state government is taking the right approach by demanding more information.<\/p>\n

Like most parents, Kuylaars said losing NDIS coverage without an alternative would be a bad outcome \u2013 but she backs the state\u2019s approach.<\/p>\n

\u201cYou can\u2019t remove supports and not have some sort of alternative system in place. Does that mean that we have to have Thriving Kids? I don\u2019t think so,\u201d she says.<\/p>\n

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\u201cThe entire community are concerned about Thriving Kids. We don\u2019t have enough clarity about what it looks like. We don\u2019t have enough clarity about what types of supports will be accessible. We don\u2019t at all understand how this is going to be implemented\u201d.<\/p>\n

Deejay Egan is the group chief executive officer for DCC Group, an NDIS provider for about 700 Queensland children, primarily Indigenous children.<\/p>\n

Multiple parents and care-givers have approached them, anxious and uncertain about the possibility of a drop-off in supports, and about the new program.<\/p>\n

\u201cThere is a lot of uncertainty across the board because if we don\u2019t get an agreement, then, how do we service our participants?\u201d he says.<\/p>\n

\u201cHow do we communicate that to our clients, caregivers, and parents to be able to navigate that when we ourselves don\u2019t have that information?\u201d<\/p>\n

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Egan says cutting off supports suddenly in January could risk Queensland children falling behind those in other states, impose greater financial pressure on parents, or even reduce their ability to engage in education.<\/p>\n

\u201cI think that will have a huge impact on their health,\u201d he says.<\/p>\n

It\u2019s unclear whether the dispute will be resolved by October.<\/p>\n

Crisafulli told reporters on Thursday that he thinks there will be a deal, but that the state would take its time to do things \u201cthe right way\u201d.<\/p>\n

\u201cIt can\u2019t be a deal that allows two levels of government to just say to vulnerable people: \u2018Oh well, there\u2019s been some cosy deal done, and we wash your hands of you\u2019 \u2026 and that\u2019s what will happen if we don\u2019t get the deal right,\u201d he says.<\/p>\n

Questions asked by the state include how the scheme will define mild to moderate autism and what will happen to children over the age of nine, once they age out of the program.<\/p>\n

The federal health minister, Mark Butler, said on Thursday that the definition would be the result of \u201ccollective work by all governments\u201d and that a draft definition would be provided \u201cwithin days\u201d to all states and territories.<\/p>\n

\u201cIt is not commonwealth work. It is not a negotiation between the commonwealth and Queensland, in particular,\u201d he said.<\/p>\n

But it\u2019s also unclear how much work Queensland has done to prepare. Asked in parliamentary estimates last month what the government\u2019s workforce targets, budgets and governance arrangements for Thriving Kids were, Belinda Drew, the director-general of the department of families, seniors, disability and child services, told parliament they were \u201cstill subject to government consideration\u201d.<\/p>\n

Butler said the federal government had made clear how many children the state programs would need to cover.<\/p>\n

\u201cEvery other jurisdiction has been able to get on with the work of developing their programs, finalising implementation plans. They know how much money they\u2019re getting from the commonwealth to deliver their programs. It\u2019s time that Queensland got on board too,\u201d he said.<\/p>\n

Associate prof Kathy Ellen, from the University of Queensland, said the reform has been rushed and it was not clear what would happen if the program was implemented without Queensland signing up, which was causing uncertainty and stress for families.<\/p>\n

\u201cI really do think that both the federal and the state governments have a responsibility to work together about this because, in the end, it\u2019s the families and the young people who are going to be struggling with all of it if they don\u2019t,\u201d she says.<\/p>\n","protected":false},"excerpt":{"rendered":"As parliament debated the future of the National Disability Insurance Scheme this week, Ali Kuylaars was worried. Her…\n","protected":false},"author":2,"featured_media":864889,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[4],"tags":[64,63,44],"class_list":["post-864888","post","type-post","status-publish","format-standard","has-post-thumbnail","category-australia","tag-au","tag-australia","tag-news"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/posts\/864888","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/comments?post=864888"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/posts\/864888\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/media\/864889"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/media?parent=864888"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/categories?post=864888"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/au\/wp-json\/wp\/v2\/tags?post=864888"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}