Treadmill challenge for child with rare disease
A nursery held a fundraiser for a four-year-old girl with a rare degenerative brain disease. Teraysa, from Christchurch,…
Girl, 4, to lose the ability to walk, speak and see due to rare genetic disorder
A west London couple are experiencing “prolonged grief” after their nearly four-year-old daughter was diagnosed with a rare,…
Drug-funding decision for B.C. girl with rare disease will not be reversed
A terminally ill 10-year-old girl on Vancouver Island will not be resuming access to a life-changing drug. B.C.’s…
B.C. restores rare drug funding for 10-year-old girl with Batten disease
The B.C. government says it is restoring funding for a drug used to improve the quality of life…