{"id":1004,"date":"2025-07-16T21:14:19","date_gmt":"2025-07-16T21:14:19","guid":{"rendered":"https:\/\/www.newsbeep.com\/ca\/1004\/"},"modified":"2025-07-16T21:14:19","modified_gmt":"2025-07-16T21:14:19","slug":"charleigh-to-receive-medication-after-community-raises-enough-for-another-treatment","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/ca\/1004\/","title":{"rendered":"Charleigh to receive medication after community raises enough for another treatment"},"content":{"rendered":"

Ten-year-old Langford, B.C., girl Charleigh Pollock<\/a> will receive another round of medication for her rare disease after the province cut off funding for her treatments last month.<\/p>\n

Charleigh has Batten Disease, a terminal neurological disorder, and had been receiving a drug called Brineura, which stabilizes her condition, for roughly the past six years, according to family members.<\/p>\n

The province ended funding for those treatments on June 18<\/a>, saying that Charleigh had progressed past the point where the medication was effective, and a final review and discussion between family members and the Ministry of Health on July 11 confirmed that the funding would not be restarted<\/a>.<\/p>\n

RELATED: \u2018We fought so hard\u2019: Charleigh\u2019s medication funding will not be restored<\/a><\/p>\n

On Tuesday, however, Charleigh\u2019s family announced that the girl\u2019s first round of privately funded Brineura treatment was scheduled for July 17, after community members raised enough money for two more rounds of treatment<\/a>.<\/p>\n

Previously, the Ministry of Health said the family had been speaking with Island Health on how to accomodate the privately funded treatments. <\/p>\n

Each year, the medication costs around $800,000, with Charleigh receiving infusions of Brienura once every two weeks. <\/p>\n

\u201cWith your generosity and support, it has been made possible to purchase the 1st privately funded dose of Brineura,\u201d wrote the family in a social media post Tuesday.<\/p>\n

\u201cWe never thought we would ever be in a position to have to ask for help to keep our Charleigh alive, we are beyond grateful to all of you,\u201d they said. \u201cWe know it\u2019s one infusion at a time at this point and we are hopeful to give Charleigh as many as we can.\u201d<\/p>\n

Family members have set up a GoFundMe campaign<\/a> to try to continue treatments for as long as possible.<\/p>\n

Last week, a local pizza shop also set up a fundraiser, giving 50 per cent of its sales<\/a> to the family for the medication.<\/p>\n","protected":false},"excerpt":{"rendered":"Ten-year-old Langford, B.C., girl Charleigh Pollock will receive another round of medication for her rare disease after the…\n","protected":false},"author":2,"featured_media":1005,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[33],"tags":[49,48,1538,84,377],"class_list":{"0":"post-1004","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-medication","8":"tag-ca","9":"tag-canada","10":"tag-charleigh-pollock","11":"tag-health","12":"tag-medication"},"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/1004","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/comments?post=1004"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/1004\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media\/1005"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media?parent=1004"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/categories?post=1004"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/tags?post=1004"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}