{"id":23506,"date":"2025-07-25T17:04:16","date_gmt":"2025-07-25T17:04:16","guid":{"rendered":"https:\/\/www.newsbeep.com\/ca\/23506\/"},"modified":"2025-07-25T17:04:16","modified_gmt":"2025-07-25T17:04:16","slug":"n-s-family-says-85k-surgery-in-u-s-might-be-daughters-only-hope-to-walk-again","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/ca\/23506\/","title":{"rendered":"N.S. family says $85K surgery in U.S. might be daughter&#8217;s only hope to walk again"},"content":{"rendered":"<p>Nora Nunn-Murphy doesn&#8217;t know how her Halifax-area family will come up with more than\u00a0$85,000 for a rare hip surgery in the United States, but she knows she has to try.<\/p>\n<p>If not, her daughter may have little hope of walking as she gets older.\u00a0<\/p>\n<p>Nunn-Murphy&#8217;s seven-year-old daughter, Brenna Benoit, has cerebral palsy and a condition called hip dysplasia, which is forcing her hip to\u00a0fully dislocate from the socket.<\/p>\n<p>Brenna used to be able to stand up and walk with the help of braces and a walker, but now gets around\u00a0in her pink and blue wheelchair. Nunn-Murphy sees Brenna&#8217;s hip mobility deteriorating and worries if she doesn&#8217;t get the right treatment\u00a0soon, her hip will be inoperable.<\/p>\n<p>She and her husband, Al Benoit, said they believe\u00a0they have no option but to forgo the Nova Scotia health-care system and head to a surgeon in New Jersey who performs a hip surgery known as the caf\u00e9 door procedure.<\/p>\n<p>The surgery\u00a0releases tight muscles and connective tissue so the hip joint can sit better in the socket and move more freely.\u00a0Nunn-Murphy\u00a0said it&#8217;s less invasive than other hip surgeries and is performed by only a handful of surgeons in the world.\u00a0<\/p>\n<p>&#8220;That&#8217;s a hard pill to swallow when you&#8217;re living in a province that you feel like nobody can help you,&#8221;\u00a0Nunn-Murphy said in an interview at the family&#8217;s home in Middle Sackville, N.S.\u00a0<\/p>\n<p>&#8220;And by the time they do help you, it feels like it&#8217;s a little bit too late.&#8221;<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" alt=\"A young girl smiles on a foggy day\"   src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2025\/07\/brenna-benoit.jpg\" style=\"aspect-ratio:1.3213885778275476\" data-cy=\"image-img\"\/>Brenna Benoit is shown on a trip to Peggys Cove, N.S. (Submitted by Nora Nunn-Murphy)<\/p>\n<p>Brenna\u00a0loves music, wheelchair basketball\u00a0and swimming. She has a contagious laugh and a big smile.\u00a0<\/p>\n<p>But she&#8217;s been dealing with compounding health issues for her whole life, and Nunn-Murphy left work to provide full-time care and advocate\u00a0for her.<\/p>\n<p>In 2022, <a href=\"https:\/\/www.cbc.ca\/news\/canada\/nova-scotia\/direct-family-support-for-children-program-1.6309826\" rel=\"nofollow noopener\" target=\"_blank\">CBC News covered the family&#8217;s\u00a0attempt to get financial support from the province<\/a>, and <a href=\"https:\/\/www.cbc.ca\/news\/canada\/nova-scotia\/n-s-family-relieved-funding-came-through-for-daughter-s-care-1.6414750\" rel=\"nofollow noopener\" target=\"_blank\">their goal of getting Brenna to the U.S. for a different procedure<\/a> to help her\u00a0feet and ankles.\u00a0<\/p>\n<p>&#8216;You end up just spiralling&#8217;<\/p>\n<p>Brenna is a patient at the IWK Health Centre, a children&#8217;s hospital in Halifax, where she&#8217;s eligible for a surgery called an osteotomy to treat her hip dysplasia.<\/p>\n<p>But Nunn-Murphy said after many conversations with the surgeon who would perform the surgery, she concluded\u00a0this option isn&#8217;t right for her daughter.<\/p>\n<p>She said the procedure is\u00a0mainly for chronic pain management, not to increase her hip functionality. And she said no rehabilitation would be available to Brenna afterward, which means\u00a0Nunn-Murphy and Benoit\u00a0would be responsible for that at home.\u00a0<\/p>\n<p>&#8220;The surgery that&#8217;s offered here\u00a0could take away her ability to ever stand and use her walker again, which\u00a0just means quality of life goes down for Brenna,&#8221; Nunn-Murphy said.<\/p>\n<p>As she looked for other options within the local health-care system, Nunn-Murphy felt she was running out of time.<\/p>\n<p>She said in the past, Brenna had waited nine\u00a0months to get her wheelchair fitted, 11 months to receive the wheelchair, and more than a year to get braces for her feet.<\/p>\n<p>&#8220;As a parent now for seven and a half years in this system, I know we don&#8217;t have time to take those steps where\u00a0things are constantly getting lost, people don&#8217;t call you back,&#8221; Nunn-Murphy said.<\/p>\n<p>&#8220;You basically get a run around, and you end up just spiralling because you don&#8217;t know what to do next.&#8221;<\/p>\n<p>She\u00a0decided to reach out to Dr. Roy Nuzzo, the surgeon who performed Brenna&#8217;s last surgery in the U.S., and he introduced her to the caf\u00e9 door procedure. As she researched it, she felt it could be Brenna&#8217;s best chance.<\/p>\n<p>The family booked\u00a0the\u00a0surgery for November. Nunn-Murphy said the last time Brenna went to the U.S. for a surgery, she tried to get it covered by Nova Scotia&#8217;s\u00a0Medical Services Insurance, but her daughter&#8217;s doctors wouldn&#8217;t write letters in support of the procedure.<\/p>\n<p>This time, she felt she didn&#8217;t\u00a0have time to try.<\/p>\n<p>Health minister interview cancelled<\/p>\n<p>CBC News scheduled\u00a0an interview Thursday morning with Nova Scotia Health\u00a0Minister Michelle Thompson\u00a0to respond to\u00a0Nunn-Murphy&#8217;s\u00a0concerns about the health-care system, and the fact the family\u00a0will pay more\u00a0than $85,000 to receive care\u00a0in the U.S.\u00a0<\/p>\n<p>When CBC\u00a0showed up for the interview, a department spokesperson said\u00a0it was cancelled\u00a0because department staff wanted to speak with\u00a0the family first.\u00a0<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" alt=\"A woman with dark hair and glasses stands in front of several microphones.\"   src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2025\/07\/michelle-thompson.JPG\" style=\"aspect-ratio:1.7771084337349397\" data-cy=\"image-img\"\/>The Health Department cancelled an interview with Health Minister Michelle Thompson, saying staff wanted to speak with Brenna&#8217;s family.  (Ryan Landry\/CBC)<\/p>\n<p>In an emailed statement, Thompson said she\u00a0understands this a difficult situation for everyone involved.<\/p>\n<p>&#8220;I recognize there are situations where procedures and treatments are not available in the province,&#8221; the statement said. &#8220;Even in these situations, we make every effort to support the delivery of care where it is available, if the patient is eligible.&#8221;<\/p>\n<p>Nunn-Murphy said\u00a0Thursday afternoon, a Health Department employee called her to walk her through the process of asking Brenna&#8217;s\u00a0doctor for a referral letter and applying for coverage for the procedure, saying the family is now &#8220;front and centre&#8221; with the department.\u00a0<\/p>\n<p>IWK says its surgery can increase quality of life for patients<\/p>\n<p>In an email, an\u00a0IWK\u00a0Health Centre\u00a0spokesperson said she\u00a0is unable to comment on Brenna&#8217;s case due to patient privacy, but responded to general questions about the health care offered at the hospital.\u00a0<\/p>\n<p>Andrea Slaney said the osteotomy\u00a0procedure available at the IWK\u00a0&#8220;can include pain relief, improved hip function, reduced risk of hip dislocation, improved seating, improved daily personal care, and reduced risk of arthritis in the future, which has a substantial impact on quality of life.&#8221;<\/p>\n<p>Slaney also said IWK\u00a0rehabilitation services works with the orthopedic care team &#8220;to provide the best evidence-based care to patients.&#8221;<\/p>\n<p>She did not respond to questions about whether\u00a0the IWK is aware of the caf\u00e9 door procedure and if it is recommended\u00a0for patients.<\/p>\n<p>Nunn-Murphy said she had given literature on the procedure to Brenna&#8217;s surgeon in Halifax, who said he would look into it on his own time, which she appreciated. But she didn&#8217;t hear back from him for around two months, and only after CBC News contacted the hospital.\u00a0<\/p>\n<p>Brenna&#8217;s family is now focusing on fundraising $100,000 to cover both the surgery and its related costs, including rehabilitation, braces and travel. The\u00a0payment for the surgery is\u00a0due on Nov.\u00a01. They&#8217;ve launched an online fundraiser\u00a0and plan to hold community events like a raffle and a benefit dance.<\/p>\n<p>&#8220;This has been my career,&#8221; Nunn-Murphy said. &#8220;I want to be her mom, but I also have to be everything else.\u2026\u00a0There&#8217;s just so many shortfalls.&#8221;<\/p>\n","protected":false},"excerpt":{"rendered":"Nora Nunn-Murphy doesn&#8217;t know how her Halifax-area family will come up with more than\u00a0$85,000 for a rare hip&hellip;\n","protected":false},"author":2,"featured_media":23507,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[49,48,84,392],"class_list":["post-23506","post","type-post","status-publish","format-standard","has-post-thumbnail","category-healthcare","tag-ca","tag-canada","tag-health","tag-healthcare"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/23506","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/comments?post=23506"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/23506\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media\/23507"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media?parent=23506"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/categories?post=23506"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/tags?post=23506"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}