{"id":417059,"date":"2026-01-18T09:03:09","date_gmt":"2026-01-18T09:03:09","guid":{"rendered":"https:\/\/www.newsbeep.com\/ca\/417059\/"},"modified":"2026-01-18T09:03:09","modified_gmt":"2026-01-18T09:03:09","slug":"thriving-three-year-old-facing-second-life-changing-transplant","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/ca\/417059\/","title":{"rendered":"&#8216;Thriving&#8217; three year old facing second life-changing transplant"},"content":{"rendered":"<p class=\"mb-4 text-lg md:leading-8 break-words\">Etta Cartmill has spent much of her young life in hospital, fighting to survive.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">The toddler and her older brother Olly were both born with an extremely rare genetic condition, which caused them to suffer kidney failure.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Olly had kidney surgery in 2023 and Etta has already received a life-changing liver transplant.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Etta is now thriving, according to her mother, but is now preparing to receive a new kidney.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Etta and Olly&#8217;s condition &#8211; known only as TTC21B &#8211; is so rare it doesn&#8217;t even have a common name.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Olly was just 13kg (29lbs) when he underwent a kidney transplant in September 2023, receiving a live donation from his grandmother Michelle.<\/p>\n<p>Third transplant for young brother and sister<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Parents Dionne and Neil knew that Etta has the same condition, which causes kidney failure, and would require a transplant when older.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">The couple have taken Etta from Newry to Belfast up to five times a week for dialysis, along with trips to Birmingham for specialist care.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Dionne recently learned she is a match for a kidney and is hopeful surgery can be arranged soon.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">News of the liver transplant came as a shock.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Dionne Cartmill told Stephen Watson on The Nolan Show, that while the kidney condition was known, the family only found out Etta needed a liver transplant a year ago.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">After an 11-hour surgery last September, Etta needed to be ventilated and her abdomen covered with a mesh as it couldn&#8217;t be fully closed due to swelling, but she now has a healthy liver.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;From when Etta got the liver transplant, she&#8217;s absolutely thriving. Her wee personality and everything&#8217;s coming through,&#8221; she said.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;Beforehand, the child was miserable. She&#8217;d awful pains in her stomach, she&#8217;d cried constantly. There was nothing you could do to settle her.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;When I&#8217;d put her down to dialysis, I&#8217;d have to get into the cot with her and hold her and then she&#8217;d be pulling me in and pushing me away, she was that agitated that she didn&#8217;t even know what she wanted.&#8221;<\/p>\n<p><img alt=\"A young boy and girl and lying on a bed reading a tablet.\" loading=\"lazy\" width=\"734\" height=\"413\" decoding=\"async\" data-nimg=\"1\" class=\"rounded-lg\" style=\"color:transparent\" src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2026\/01\/aa83bbd566ed9fcc004be92c9c35212b.jpeg\"\/><\/p>\n<p>Etta and Olly both have the same rare condition [Cartmill family]<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">She added that she has recently learned she will donate a kidney to her daughter.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;It&#8217;s going to be me so I&#8217;m absolutely delighted. Waiting on the date,&#8221; she said.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;I&#8217;m a match and I&#8217;m fit and healthy so I&#8217;m absolutely delighted. I can&#8217;t wait to do it.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;Michelle did the first one and we were very, very fortunate that some poor man passed away and we got his liver and now it&#8217;s going to be my turn and I can&#8217;t wait to do it.&#8221;<\/p>\n<p><img alt=\"A family of four sit on on a brown leather sofa by a Christmas tree. The mother with medium length dark hair holds her daughter who is wearing purple unicorn pajamas on her knee. The father, with short brown hair, wearing a yellow t shirt, hold his son, who is wearing red Christmas tree pajamas. \" loading=\"lazy\" width=\"960\" height=\"540\" decoding=\"async\" data-nimg=\"1\" class=\"rounded-lg\" style=\"color:transparent\" src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2026\/01\/2654a78dcfa5b8b7665598c9e90a607c.jpeg\"\/><\/p>\n<p>This will be a third life-changing transplant surgery for the Cartmill family [Cartmill family]<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Dionne added that since his own kidney transplant, Olly has &#8220;turned into the wee boy that he always should have been&#8221;.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;He&#8217;s full of energy, full of craic, full of ideas. He&#8217;s doing fantastic,&#8221; she said.<\/p>\n","protected":false},"excerpt":{"rendered":"Etta Cartmill has spent much of her young life in hospital, fighting to survive. The toddler and her&hellip;\n","protected":false},"author":2,"featured_media":417060,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[49,48,175096,175098,175093,84,175095,74032,175097,2850,48316,175094,2851],"class_list":["post-417059","post","type-post","status-publish","format-standard","has-post-thumbnail","category-health","tag-ca","tag-canada","tag-dionne-cartmill","tag-etta","tag-etta-cartmill","tag-health","tag-kidney-condition","tag-kidney-failure","tag-kidney-surgery","tag-kidney-transplant","tag-liver-transplant","tag-rare-genetic-condition","tag-transplant"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/417059","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/comments?post=417059"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/417059\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media\/417060"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media?parent=417059"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/categories?post=417059"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/tags?post=417059"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}