{"id":482846,"date":"2026-02-18T10:55:10","date_gmt":"2026-02-18T10:55:10","guid":{"rendered":"https:\/\/www.newsbeep.com\/ca\/482846\/"},"modified":"2026-02-18T10:55:10","modified_gmt":"2026-02-18T10:55:10","slug":"clintons-life-could-be-cut-short-unless-he-pays-thousands-for-pbs-listed-medication","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/ca\/482846\/","title":{"rendered":"Clinton&#8217;s life could be cut short unless he pays thousands for PBS-listed medication"},"content":{"rendered":"<p>After being diagnosed with a rare and aggressive form of thyroid cancer 10 years ago, father-of-three Clinton \ufefffinally found a medication that is having a miraculous effect.<\/p>\n<p>But the 42-year-old&#8217;s second\ufeff chance at life is being taken away because the drug isn&#8217;t subsidised for his specific type of cancer.<\/p>\n<p>Clinton and wife Sally try to make life as normal and fun as possible for Chris, 14, Shayla, 11 and Thomas, 2.<\/p>\n<p>READ MORE: <a href=\"https:\/\/9now.nine.com.au\/a-current-affair\/driver-sets-up-public-protest-after-claiming-she-was-sold-a-lemon-in-coffs-harbour\/f71d9960-f517-47b5-b2e3-04f7e0bbcfc9\" target=\"\" rel=\"nofollow noopener\" title=\"Driver sets up public protest after claiming she was sold a &#039;lemon&#039;\ufeff\">Driver sets up public protest after claiming she was sold a &#8216;lemon&#8217;\ufeff<\/a><\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2026\/02\/https:\/\/prod.static9.net.au\/fs\/ff72af7e-e1da-4f38-90e1-a1a1c675a7ad.jpeg\"   alt=\"Clinton James thyroid cancer ACA story February 18 2026\"\/>Clinton and wife Sally try to make life as normal and fun as possible for Chris, 14, Shayla, 11 and Thomas, 2. (Nine)<\/p>\n<p>The father&#8217;s battle with cancer began after an urgent appointment with his doctor.<\/p>\n<p>&#8220;It turned out to be a rare reform of thyroid cancer called medullary thyroid carcinoma, medullary thyroid cancer,&#8221; Clinton said.<\/p>\n<p>Surgery got most of the tumor, but it was spreading, until 18 months ago he received a white knight in the form of a medication called selpercatinib.<\/p>\n<p>&#8220;Thankfully, mine worked very well to the point where my specialists were beyond ecstatic,&#8221; Clinton said.<\/p>\n<p>Clinton was supplied his prescription medication from pharmaceutical company Eli Lilly on compassionate grounds while the drug is assessed for listing on the Pharmaceutical Benefits Scheme (PBS).<\/p>\n<p>Technically selpercatinib is on the PBS, but only for lung cancer patients.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2026\/02\/https:\/\/prod.static9.net.au\/fs\/c45238ab-55cd-4bc8-b28f-6804b748308d.jpeg\"   alt=\"Clinton James thyroid cancer ACA story February 18 2026\"\/>Clinton&#8217;s second\ufeff chance at life is being taken away because the drug isn&#8217;t subsidised for his specific type of cancer. (Nine)<\/p>\n<p>&#8220;I got a pretty upsetting and confronting phone call late last year saying that the manufacturing company has withdrawn their supply to me,&#8221; Clinton said.<\/p>\n<p>If he wants to keep taking the lifesaving drug, it will come at a cost of $8000 per month.\ufeff<\/p>\n<p>&#8220;Now, $8000 a month is simply out of reach for us. We don&#8217;t even earn that much in a month,&#8221; Sally said.<\/p>\n<p>Endocrinologist Professor Bruce Robinson has several patients waiting for a lifeline from the PBS.<\/p>\n<p>READ MORE: <a href=\"https:\/\/9now.nine.com.au\/a-current-affair\/city-chicks-petting-zoo-cafe-owner-facing-disturbing-new-allegations\/eb0644cb-c080-4518-ac23-703e2980e3a7\" target=\"\" rel=\"nofollow noopener\" title=\"Petting zoo cafe owner facing disturbing new allegations\ufeff\">Petting zoo cafe owner facing disturbing new allegations\ufeff<\/a><\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2026\/02\/https:\/\/prod.static9.net.au\/fs\/e504a238-b6f0-42b8-8d99-b739f473d1bc.jpeg\"   alt=\"Clinton James thyroid cancer ACA story February 18 2026\"\/>Technically selpercatinib is on the PBS, but only for lung cancer patients. (Nine)<\/p>\n<p>&#8220;This drug is remarkably effective with over 83 per cent of people who&#8217;ve got this particular thyroid cancer responding to the drug,&#8221; Robinson said.<\/p>\n<p>The professor says stopping the medication &#8220;would be disastrous&#8221;.<\/p>\n<p>&#8220;Almost certainly the person&#8217;s cancer would reappear or regrow very quickly and it would ultimately lead to their demise,&#8221; he said.<\/p>\n<p>Against doctor&#8217;s advice, Clinton has already started rationing his dwindling supply of capsules.<\/p>\n<p>&#8220;When the reality of that all comes crashing down, it is very difficult to know that my life is going to be cut short if I can&#8217;t stay on the medication that I&#8217;m on,&#8221; Clinton said.<\/p>\n<p>&#8220;I know one day I&#8217;m gonna be a photo on the wall and that&#8217;s hard for me to process.&#8221;<\/p>\n<p>The Pharmaceutical Benefits Advisory Committee will consider listing selpercatinib at its meeting next month.<\/p>\n<p><img decoding=\"async\" src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2026\/02\/https:\/\/prod.static9.net.au\/fs\/6e6a28ab-ade6-48da-bc77-afeb50e84538.jpeg\"   alt=\"Clinton James thyroid cancer ACA story February 18 2026\"\/>Against doctor&#8217;s advice, Clinton has already started rationing his dwindling supply of capsules. (Nine)<\/p>\n<p>But the meeting has already been delayed once and any outcome will take months.<\/p>\n<p>A Current Affair approached the Health Minister Mark Butler to intervene, with no luck.<\/p>\n<p>Eli Lilly, the pharmaceutical company which had been supplying Clinton with his medication on compassionate grounds, says his story is an illustration of how broken the PBS is.<\/p>\n<p>&#8220;I&#8217;m not asking for free treatment. There should be a more fairer way for not just me, everybody,&#8221; Clinton said.<\/p>\n<p>For more information about Clinton&#8217;s story, click <a href=\"https:\/\/www.gofundme.com\/f\/a-chance-to-live-clintons-cancer-treatment?attribution_id=sl:67860df5-3907-4d3e-a509-333380dffe62&amp;lang=en_AU&amp;ts=1770245309&amp;utm_campaign=fp_sharesheet&amp;utm_medium=customer&amp;utm_source=email\" target=\"\" rel=\"nofollow noopener\" title=\"here\">here<\/a>.<\/p>\n<p>FULL STATEMENT FROM FEDERAL HEALTH MINISTER MARK BUTLER\ufeff<\/p>\n<p>&#8220;We know patients want faster access to cutting edge medicine and treatments.<\/p>\n<p>That&#8217;s why our Government is working through the recommendations of the HTA review, so Australians can get faster access to the best medicines and therapies, at a cost that patients and the community can afford.<\/p>\n<p>I established an Implementation Advisory Group for the HTA Review and it recently provided its final report and reform roadmap to me to help guide future Government decisions on HTA reform.<\/p>\n<p>The Government lists medicines at the earliest opportunity once recommended by the PBAC and all relevant listing requirements have been met by the sponsor.&#8221;<\/p>\n<p>FULL STATEMENT FROM ELI LILLY<\/p>\n<p>&#8220;Clinton&#8217;s story is sadly one of many, and a heartbreaking illustration of how broken the PBS is.<\/p>\n<p>In the UK, Retevmo has been subsidised for medullary thyroid cancer since 2021<\/p>\n<p>The Australian Government must urgently increase investment in the PBS to ensure that Australians, like Clinton, can access life-changing medicines.&#8221;<\/p>\n","protected":false},"excerpt":{"rendered":"After being diagnosed with a rare and aggressive form of thyroid cancer 10 years ago, father-of-three Clinton \ufefffinally&hellip;\n","protected":false},"author":2,"featured_media":482847,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[33],"tags":[49,48,84,377],"class_list":["post-482846","post","type-post","status-publish","format-standard","has-post-thumbnail","category-medication","tag-ca","tag-canada","tag-health","tag-medication"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/482846","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/comments?post=482846"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/482846\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media\/482847"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media?parent=482846"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/categories?post=482846"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/tags?post=482846"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}