{"id":825412,"date":"2026-07-25T15:07:14","date_gmt":"2026-07-25T15:07:14","guid":{"rendered":"https:\/\/www.newsbeep.com\/ca\/825412\/"},"modified":"2026-07-25T15:07:14","modified_gmt":"2026-07-25T15:07:14","slug":"nurses-training-a-blessing-and-curse-after-son-3-diagnosed-with-rare-cancer","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/ca\/825412\/","title":{"rendered":"Nurse&#8217;s training a &#8216;blessing and curse&#8217; after son, 3, diagnosed with rare cancer"},"content":{"rendered":"<p class=\"mb-4 text-lg md:leading-8 break-words\">A paediatric nurse whose three-year-old son has an aggressive form of cancer says her medical knowledge has &#8220;been a blessing and a curse&#8221; as she watches him face &#8220;unimaginable things&#8221;.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Sarah Sloman, from Newport, said her son Teddy had been through &#8220;a horrendous 12 months&#8221; since being diagnosed with <a data-ylk=\"slk:high-risk neuroblastoma;elm:context_link;itc:0;sec:content-canvas;\" data-yga=\"{&quot;yLinkElement&quot;:&quot;link&quot;,&quot;yLinkElementType&quot;:&quot;article_link&quot;}\" href=\"https:\/\/www.cclg.org.uk\/about-cancer\/cancer-children-and-young-people\/types-cancer-children-and-young-people\/neuroblastoma-children\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">high-risk neuroblastoma<\/a>, a rare type of childhood cancer.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Having spent 20 years treating children at work, Sarah said the situation held an &#8220;uncanny&#8221; resemblence to news she&#8217;s delivered to &#8220;countless parents&#8221; in her professional life.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">She&#8217;s now trying to raise \u00a3250,000 to fund the next phase of Teddy&#8217;s treatment, which is not currently available in the UK.<\/p>\n<p><img alt=\"A woman with tied-back brown hair wearing a navy and white striped top. She is hugging a young boy wearing a white t shirt, who has a feeding tube in his nose. They are sat  with hospital equipment behind them and are both looking at the camera and smiling.\" loading=\"lazy\" width=\"960\" height=\"960\" decoding=\"async\" data-nimg=\"1\" class=\"rounded-lg\" style=\"color:transparent\" src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2026\/07\/https:\/\/media.zenfs.com\/en\/bbc_us_articles_995\/9e98ffcde7cd3b9c1e6cb05b56b2d5ef.jpeg\"\/><\/p>\n<p>Sarah Sloman says Teddy&#8217;s smile is what keeps her going through a &#8220;horrendous&#8221; time [Sarah Sloman]<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Sarah said Teddy had gone through a gruelling course of treatments over the past year, including intensive chemotherapy, surgery, a stem cell transplant and radiotherapy in London.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">He has also faced complications, including a severe reaction to one of the immunotherapy drugs which meant he had to stop it.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;Part of me has just gone into work mode&#8230; it has become 24-hour shifts and just doing what we need to do to get Teddy through this,&#8221; she told <a data-ylk=\"slk:BBC Radio Wales Breakfast;elm:context_link;itc:0;sec:content-canvas;\" data-yga=\"{&quot;yLinkElement&quot;:&quot;link&quot;,&quot;yLinkElementType&quot;:&quot;article_link&quot;}\" href=\"https:\/\/www.bbc.co.uk\/programmes\/m001n63w?xtor=AL-72-%5Bpartner%5D-%5Byahoo.north.america%5D-%5Blink%5D-%5Bnews%5D-%5Bbizdev%5D-%5Bisapi%5D\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">BBC Radio Wales Breakfast<\/a>.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;But he always wakes up with a smile on his face so that&#8217;s the thing that keeps us going, his strength and determination to beat this horrendous disease.&#8221;<\/p>\n<p><img alt=\"A young boy with a feeding tube in his nose lying down with his eyes closed. He has lots of different coloured blankets piled on top of him.\" loading=\"lazy\" width=\"960\" height=\"540\" decoding=\"async\" data-nimg=\"1\" class=\"rounded-lg\" style=\"color:transparent\" src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2026\/07\/https:\/\/media.zenfs.com\/en\/bbc_us_articles_995\/2d9a23387f6c9d832ea5bc71ae862c5f.jpeg\"\/><\/p>\n<p>Teddy has been through a gruelling year of treatments and complications, his mum says [Sarah Sloman]<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">A maintenance drug called <a data-ylk=\"slk:difluoromethylornithine;elm:context_link;itc:0;sec:content-canvas;\" data-yga=\"{&quot;yLinkElement&quot;:&quot;link&quot;,&quot;yLinkElementType&quot;:&quot;article_link&quot;}\" href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC10190116\/\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">difluoromethylornithine<\/a> (DFMO), which could prevent Teddy relapsing, <a data-ylk=\"slk:has been withdrawn from the NHS;elm:context_link;itc:0;sec:content-canvas;\" data-yga=\"{&quot;yLinkElement&quot;:&quot;link&quot;,&quot;yLinkElementType&quot;:&quot;article_link&quot;}\" href=\"https:\/\/www.solvingkidscancer.org.uk\/dfmo-update-2026\/\" rel=\"noopener noreferrer nofollow\" target=\"_blank\">has been withdrawn from the NHS<\/a> by the US-based company which owns it following a clinical trial.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;The treatment we&#8217;ve had up until now is all about sort of attacking the cancer and killing off the tumour,&#8221; Sarah said.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;This next part is a maintenance phase&#8230; it teaches the body to eliminate [specific cells] before it can turn into anything sinister.&#8221;<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Now, the family is trying to maximise the options available to them when Teddy progresses to needing this next phase of his treatment in October.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;This is what is so difficult with our current situation, is we have no definite answers at the moment,&#8221; said Sarah.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;We could potentially buy [DFMO] from America and have it imported to us here in the UK. There is a vaccine trial in New York, in America, which we would have to go there and stay, or there&#8217;s an even newer trial going on in Rome.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;But all of these things need their medical teams to accept us as their patient, so we&#8217;ve started the ball rolling for all three options to see which one we would be accepted for and which would be the best course of treatment.&#8221;<\/p>\n<p><img alt=\"A young biy in a hospital bed, wrapped in cartoon-print blankets. Above him is blue bunting which says &quot;Happy 3rd Birthday&quot;. There is a light in the shape of a 3 on the bedside table, and a sign on the wall which reads &quot;happy birthday teddy&quot; as well as blue sparkly fringing framing the door.\" loading=\"lazy\" width=\"960\" height=\"540\" decoding=\"async\" data-nimg=\"1\" class=\"rounded-lg\" style=\"color:transparent\" src=\"https:\/\/www.newsbeep.com\/ca\/wp-content\/uploads\/2026\/07\/https:\/\/media.zenfs.com\/en\/bbc_us_articles_995\/075c4c29fa52cabe1ad65d0b8e6a5c86.jpeg\"\/><\/p>\n<p>The family has spent a lot of time in hospital over the past year, including celebrating Teddy&#8217;s third birthday [Sarah Sloman]<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">The family has so far managed to raise \u00a350,000 of their \u00a3250,000 goal.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Sarah said Teddy&#8217;s illness had also affected his younger brother Joey, who was born two months premature is and now 18 months old.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;He&#8217;s barely known life with his mum and dad at home,&#8221; Sarah said, as they spend so much time at hospitals.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Sarah said her training had, in some ways, helped her cope, but also meant she knows &#8220;what that means in reality&#8230; the statistics we&#8217;re facing&#8230; the chances of surviving&#8221;.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;I&#8217;ve been caring for sick children for most of my working life,&#8221; she said.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;I, as a student, gave a family almost identical news when I was training 20 years ago.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;It&#8217;s uncanny the resemblance to this particular situation. To be stood in that cubicle on the ward that day, to receive that news from a student nurse, a qualified nurse and a doctor, it just felt like an out of body experience.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;I wouldn&#8217;t wish this past 12 months on anyone.&#8221;<\/p>\n<p>More top stories<\/p>\n","protected":false},"excerpt":{"rendered":"A paediatric nurse whose three-year-old son has an aggressive form of cancer says her medical knowledge has &#8220;been&hellip;\n","protected":false},"author":2,"featured_media":825413,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[49,48,2237,84,288458,288459],"class_list":["post-825412","post","type-post","status-publish","format-standard","has-post-thumbnail","category-health","tag-ca","tag-canada","tag-childhood-cancer","tag-health","tag-sarah-sloman","tag-teddy"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/825412","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/comments?post=825412"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/posts\/825412\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media\/825413"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/media?parent=825412"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/categories?post=825412"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ca\/wp-json\/wp\/v2\/tags?post=825412"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}