People in Kilkenny are being urged to help Cystic Fibrosis Ireland meet its fundraising target of €300,000 on 65 Roses Day, taking place this year on Friday, April 10.
Volunteers across the county will be selling purple roses to support fundraising at Dunnes Stores on Kierans Street and MacDonagh Junction along with McCarthy’s SuperValu, Newpark Shopping Centre.
Cystic Fibrosis (CF) is an inherited condition that affects multiple systems including breathing, digestion and reproduction. Ireland has the highest rate of CF per capita in the world, with more than 1,400 people living with the condition, 33 new cases diagnosed per year and many people living with the most serious forms.
There is no cure and CF often becomes more severe over time. Thanks to multidisciplinary care and the introduction of modulator therapies, many people with CF are living well into adulthood.
However, as people age, new challenges can emerge, including CF-related diabetes, osteoporosis and an increased risk of colorectal cancer.
Today, CFI is investing in research to better understand emerging issues and provide essential supports.
These include a dedicated information and support line offering guidance, reassurance and advice; targeted financial assistance through a range of grants that help ease the cost of living with CF and monthly online peer-support groups that connect people with CF and strengthen the community.
Encouraging people in Kilkenny to go out and support Cystic Fibrosis Ireland on 65 Roses Day this year is Sandra Brewer from Kilkenny.
“When I was younger, I lost my brother and my sister to CF,” she says. “When I look back now to how things were then, the change is incredible. People with CF are living healthier and are aging, but with that comes other challenges – like getting mortgages and travelling without stress.”
“So, despite advances, the work is not yet done and CFI are still working, still fighting for and alongside people with CF in Ireland. On 65 Roses Day, I’m asking for the public’s continued support for CFI.”
“Every donation goes towards supporting people with CF in Ireland so please buy a rose, visit Dunnes Stores or donate online,” she added.
For more information and to donate online, visit www.65roses.ie.
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