Senator to raise case of Donegal boy awaiting drug approval Highland Radio‘Give us some hope’ – Families seek access to rare disease drugs RTE.ie‘The system is cruel’ – parents watch son (9) lose mobility while access to vital drug remains out of reach The Irish IndependentKilkenny campaigner to appear on RTÉ Primetime tonight Kilkenny PeopleLaghey father in plea for access to drug for his 9 year old son Ocean FM
