The event was organised by Afric Smith from Delgany, whose 14-year-old daughter, Saoirse, lives with cystic fibrosis.<\/p>\n
The annual lunch \u2013 which was sold out \u2013 raised funds for a study called \u2018RECOVER\u2019, which is led by Professor Paul McNally and is a major research project taking place in eight paediatric and adult sites across Ireland and the UK.<\/p>\n
The study explores how new cystic fibrosis modulator drug treatments are improving health and quality of life for people living with the illness. Part-funded by Cystic Fibrosis Ireland, the study has already involved over 200 participants and made important discoveries in lung and digestive health.<\/p>\n
Speaking after the event at the Martello, Afric said she was overwhelmed by the generosity and kindness shown by everyone who supported it. <\/p>\n
\u201cI\u2019m so grateful for the incredible support from my friends, family, the Martello, and the amazing community of local mums of children with cystic fibrosis who helped make this fundraising lunch possible.<\/p>\n
“The generosity and encouragement mean so much to our family and to everyone affected by CF,\u201d she said.<\/p>\n
Cystic Fibrosis Ireland was set up more than 60 years ago at a time when 40pc of children living with the illness were not expected to reach secondary school age. Now, the outlook of a diagnosis is more positive. Despite the advances made, for many within the community the reality of living with this life-limiting, genetic condition remains an enormous challenge.<\/p>\n
Cystic Fibrosis Ireland is a voluntary organisation set up by parents to improve the treatment and facilities for people with cystic fibrosis in Ireland. <\/p>\n
The organisation is supported by fundraising and voluntary contributions and is solely concerned with the well-being of people with cystic fibrosis. <\/p>\n
Guests at the lavish lunch enjoyed a lively afternoon filled with good food, laughter, and plenty of prizes, as the day included a raffle, table quiz and spot prizes. <\/p>\n
Among the goodies were a \u20ac500 One4All voucher, a smart TV, Avoca gift vouchers, Martello gift vouchers donated by the Duggan Family and Eat Out at Home by Neven Maguire, with the cook book signed by the chef.<\/p>\n
While the amount raised is still being tallied, by Monday, November, 17, \u20ac3,675 had come in on the donations page alone. <\/p>\n
\u201cThe event was a great success, showcasing the power of local community spirit while raising vital funds to support ongoing cystic fibrosis research,\u201d she added. You can continue to donate at: idonate.ie\/raffle\/LadiesLunchfortheCysticFibrosisIrelandRaffle2025<\/p>\n","protected":false},"excerpt":{"rendered":"The event was organised by Afric Smith from Delgany, whose 14-year-old daughter, Saoirse, lives with cystic fibrosis. The…\n","protected":false},"author":2,"featured_media":145766,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[61,60,43,10687],"class_list":["post-145765","post","type-post","status-publish","format-standard","has-post-thumbnail","category-ireland","tag-ie","tag-ireland","tag-news","tag-tom-galvin"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts\/145765","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/comments?post=145765"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts\/145765\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/media\/145766"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/media?parent=145765"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/categories?post=145765"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/tags?post=145765"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}