{"id":474991,"date":"2026-05-30T16:50:09","date_gmt":"2026-05-30T16:50:09","guid":{"rendered":"https:\/\/www.newsbeep.com\/ie\/474991\/"},"modified":"2026-05-30T16:50:09","modified_gmt":"2026-05-30T16:50:09","slug":"living-with-multiple-sclerosis-what-i-think-matters-has-completely-changed-the-irish-times","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/ie\/474991\/","title":{"rendered":"Living with multiple sclerosis: \u2018What I think matters has completely changed\u2019 \u2013 The Irish Times"},"content":{"rendered":"<p class=\"c-paragraph paywall \">Six years ago, Katie O\u2019Loughlin was experiencing numbness and weakness. The fatigue was immense and she was always feeling tired, but she and doctors put the symptoms down to stress and being overworked.<\/p>\n<p class=\"c-paragraph paywall \">It was only when she lost movement on the right side of her body that she was sent to the hospital\u2019s emergency department.<\/p>\n<p class=\"c-paragraph paywall \">Originally, they believed she had a brain tumour, but when a neurologist thought she saw a lesion on O\u2019Loughlin\u2019s spinal cord, it was the first time <a href=\"https:\/\/www.irishtimes.com\/tags\/multiple-sclerosis-ireland\/\" target=\"_blank\" rel=\"noreferrer nofollow noopener\" title=\"https:\/\/www.irishtimes.com\/tags\/multiple-sclerosis-ireland\/\">multiple sclerosis<\/a> (MS) came into the conversation.<\/p>\n<p class=\"c-paragraph paywall \">MS is a condition that causes damage to the nerves in the central nervous system, which consists of the brain and spinal cord. The symptoms vary from person to person, but can affect mobility, communication and cognition.<\/p>\n<p class=\"c-paragraph paywall \">\u201cI went nearly completely blind. They thought it was a stroke, then they said it was a brain tumour. I was relieved it wasn\u2019t a brain tumour, but I was also dealing with the grief of the diagnosis,\u201d she said.<\/p>\n<p class=\"c-paragraph paywall \">Her grandfather had the same disease but he died in the 1960s when there was no treatment, and the progression of the condition was quite rapid.<\/p>\n<p class=\"c-paragraph paywall \">\u201cIt was a lot to delve into. I should\u2019ve sought counselling sooner than I did, really, but it was Covid. But 10 years earlier, the diagnosis would have been very different. The disease-modifying therapies have really come a long way,\u201d she said.<\/p>\n<p class=\"c-paragraph b-it-article-body__interstitial-link\">[\u00a0<a aria-label=\"Open related story\" class=\"c-link\" href=\"https:\/\/www.irishtimes.com\/health\/2025\/05\/30\/i-knew-straight-away-coming-to-terms-with-ms-and-being-the-healthiest-version-of-yourself\/\" rel=\"noreferrer nofollow noopener\" target=\"_blank\">\u2018I knew straight away\u2019: coming to terms with MS and being the healthiest version of yourselfOpens in new window<\/a>\u00a0]<\/p>\n<p class=\"c-paragraph paywall \">The 44-year-old mother of two, living in <a href=\"https:\/\/www.irishtimes.com\/tags\/galway\/\" target=\"_blank\" rel=\"noreferrer nofollow noopener\" title=\"https:\/\/www.irishtimes.com\/tags\/galway\/\">Galway<\/a>, said  she has to take each day as it comes as they can be \u201ccompletely different\u201d.<\/p>\n<p class=\"c-paragraph paywall \">\u201cThere\u2019s lots of adapting and lots of learning how to manage. For me, fatigue is the biggest problem. My vision can drop. There can be internal tremors, that feel like you\u2019re shaking but you\u2019re not. I can get nerve pain down my right leg,\u201d she said.<\/p>\n<p class=\"c-paragraph paywall \">\u201cRecently, I\u2019ve started to get a hot, burning pain in my feet. I have cognitive issues; my memory is not as good as it was.\u201d<\/p>\n<p class=\"c-paragraph paywall \">She receives an infusion in Merlin Park hospital once a month, which helps keep her symptoms managed, and she has not had a flare up since her time in hospital in April 2020. <\/p>\n<p class=\"c-paragraph paywall \">This has allowed her to continue her dog-grooming business, something she was worried about when diagnosed.<\/p>\n<p class=\"c-paragraph paywall \">\u201cI did have to downsize, but grooming is a passion of mine, I love it so much and I\u2019d be lost without it.\u201d<\/p>\n<p class=\"c-paragraph paywall \">Mentally, O\u2019Loughlin highlights a positive change in attitude following her diagnosis.<\/p>\n<p class=\"c-paragraph paywall \">\u201cIt has also given me gifts in life. What I think matters has completely changed. You have to make the most of now, not living in your head worrying about things. Life has a new tint to it and it\u2019s beautiful.\u201d <\/p>\n<p class=\"c-paragraph b-it-article-body__interstitial-link\">[\u00a0<a aria-label=\"Open related story\" class=\"c-link\" href=\"https:\/\/www.irishtimes.com\/health\/your-wellness\/2023\/09\/28\/multiple-sclerosis-what-is-it-and-what-does-the-future-hold-as-treatments-improve\/\" rel=\"noreferrer nofollow noopener\" target=\"_blank\">Multiple sclerosis: What does the future hold as treatments improve?Opens in new window<\/a>\u00a0]<\/p>\n<p class=\"c-paragraph paywall \">O\u2019Loughlin was speaking as part of MS Ireland\u2019s awareness day campaign, which seeks to challenge misconceptions and remind people with the diagnosis \u201cthey are not alone\u201d.<\/p>\n<p class=\"c-paragraph paywall \">Ava Battles, chief executive of MS Ireland, said the awareness day is important to \u201crecognise the many different experiences of people living with multiple sclerosis across Ireland\u201d.<\/p>\n<p class=\"c-paragraph paywall \">\u201cMultiple sclerosis affects over 11,000 people across Ireland, yet there is still limited public understanding of the condition and the impact it can have on every aspect of a person\u2019s life,\u201d she said.<\/p>\n<p class=\"c-paragraph paywall \">\u201cToo often, people living with MS encounter misconceptions because many symptoms are invisible or fluctuate from day to day. In reality, many people with MS are working, parenting, studying and contributing fully to their communities while managing symptoms that others may not see.\u201d<\/p>\n<p class=\"c-paragraph paywall \">Battles said it is a \u201ccomplex, lifelong neurological condition\u201d.<\/p>\n<p class=\"c-paragraph paywall \">\u201cSome people may have visible symptoms, while many others live with hidden symptoms such as fatigue, pain, cognitive difficulties, changes in mobility or vision, and the uncertainty of not knowing how they will feel from one day to the next.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"Six years ago, Katie O\u2019Loughlin was experiencing numbness and weakness. The fatigue was immense and she was always&hellip;\n","protected":false},"author":2,"featured_media":474992,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[2],"tags":[4500,61,60,49782,43],"class_list":["post-474991","post","type-post","status-publish","format-standard","has-post-thumbnail","category-ireland","tag-galway","tag-ie","tag-ireland","tag-multiple-sclerosis-ireland","tag-news"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts\/474991","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/comments?post=474991"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts\/474991\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/media\/474992"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/media?parent=474991"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/categories?post=474991"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/tags?post=474991"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}