![\"Jesy](\"https:\/\/www.newsbeep.com\/ie\/wp-content\/uploads\/2026\/07\/jesy-nelson-admits-concerns-she-will-feel-heartbroken-for-the-rest-of-my-life.jpg\")
Jesy Nelson has been campaigning for SMA to be added to the newborn blood spot screening test (Jordan Pettitt\/ PA)<\/p>\nJesy Nelson has broken down in tears as she admitted feeling she will be \u201cheartbroken for the rest of my life\u201d.<\/p>\n
The former Little Mix star, 35, has been followed by cameras for the new Amazon Prime documentary Jesy Nelson: Life Changing.<\/p>\n
The series sees her fighting to change UK newborn screening laws after her twins, Ocean Jade and Story Monroe, were diagnosed with the rare condition spinal muscular atrophy (SMA).<\/p>\n
Sharing the trailer on Instagram, Nelson wrote: \u201cI\u2019m really not sure where to start with this one\u2026 All I can say is that I urge everyone to watch this documentary. It\u2019s the most heartbreaking series I\u2019ve ever had to make, but it\u2019s one that needed to be made if we\u2019re ever going to see real change.<\/p>\n
\u201cThis is only a small glimpse into what my girls have to go through every single day. It\u2019s the reality that so many children born with SMA have to endure and this is only the beginning of their lives.<\/p>\n
\u201cI truly hope this helps people understand why the heel prick test and treatment from birth are so incredibly vital. Early diagnosis can change EVERYTHING. I\u2019ll keep saying it until no family has to experience this again: no future babies born with SMA should have lives that look like this.\u201d<\/p>\n
One clip in the trailer shows the moment the singer was told about her daughters\u2019 diagnosis, holding back tears before she said: \u201cI can\u2019t believe this is happening.\u201d<\/p>\n
\u201cMy whole life has changed\u2026 I don\u2019t know how we are going to do this,\u201d she is then heard saying.<\/p>\n
Speaking to the camera whilst crying, Nelson then said she felt like she was \u201cgoing to feel heartbroken for the rest of my life\u201d.<\/p>\n
As Nelson is then seen advocating to have mandatory testing rolled out across the UK, she says she \u201crefuses to allow anyone else to go through this\u201d.<\/p>\n
\u201cThey could have been able to walk and run and live how a child should live. That\u2019s the part I\u2019ll never be able to accept,\u201d she added when speaking about her daughters\u2019 conditions.<\/p>\n
The documentary series has been billed by Prime Video as a \u201craw and powerful\u201d look at Nelson as she \u201ccomes to terms with what the diagnosis means for her girls, adapts to the everyday challenges of their conditions, and finds her footing as a single mother after the break-up of her relationship\u201d.<\/p>\n
Nelson welcomed her daughters with now ex-fiance Zion Foster in May last year.<\/p>\n
Jesy Nelson has been campaigning for SMA to be added to the newborn blood spot screening test (Jordan Pettitt\/ PA)<\/p>\n
After being born prematurely, the girls were kept in hospital for three months, with Nelson going on to reveal earlier this year that they have both since been diagnosed with SMA.<\/p>\n
![\"Jesy](\"https:\/\/www.newsbeep.com\/ie\/wp-content\/uploads\/2026\/07\/2-63378843.jpg\")
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