![\"Singer](\"https:\/\/www.newsbeep.com\/ie\/wp-content\/uploads\/2026\/08\/0024cf8c-614.jpg\"\/)
<\/p>\nJesy Nelson said her daughters were the “bravest girls” ahead of an operation to have their nasogastric feeding tubes removed on Friday.<\/p>\n
The Little Mix star’s children, Ocean Jade and Story Monroe, were diagnosed with spinal muscular atrophy (SMA), a rare condition that causes muscle weakness.<\/p>\n
The condition required Nelson\u2019s daughters to be given feeding support as part of their early medical care.<\/p>\n
Nelson, who had her twins with her former partner Zion Foster, posted a video of herself in hospital with Ocean and Story before the procedure to remove the tubes.<\/p>\n
Caressing her daughter\u2019s face, she said: “Today is the big day. We\u2019re taking these plasters off aren\u2019t we? No more tuby for you in your face.”<\/p>\n
Addressing her social media followers, she added: “They\u2019re going down soon. The bravest girls in all of the world.”<\/p>\n
On Thursday, the singer shared a photo of her twins and said it was the last day they would use the feeding tubes.<\/p>\n
She wrote: “Today is the last day of my baby girls having their tubes on their faces.<\/p>\n
“As terrified as I am about them having their operation tomorrow, I cannot wait to finally see their faces again and see their little dimples that are always hidden under these plasters.<\/p>\n
“I\u2019ve honestly forgotten what it feels like to cuddle them and not worry about pulling their tube out of their nose or plasters off their face.<\/p>\n
“It really is the littlest things we take for granted as parents.”<\/p>\n
<\/p>\n
Since the twins\u2019 diagnosis, Nelson had been campaigning for the condition to be added to the newborn, blood spot screening test as early treatment can help avoid some of its most devastating effects.<\/p>\n
The British Department of Health announced in July that the national newborn screening programme for SMA will be rolled out across England as part of an evaluation programme from the end of this year.<\/p>\n
Hundreds of thousands of babies will be screened as part of the simple, heel-prick blood test shortly after birth.<\/p>\n
Source: Press Association<\/p>\n","protected":false},"excerpt":{"rendered":"Jesy Nelson said her daughters were the “bravest girls” ahead of an operation to have their nasogastric feeding…\n","protected":false},"author":2,"featured_media":586345,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[8],"tags":[93,61,60],"class_list":["post-586344","post","type-post","status-publish","format-standard","has-post-thumbnail","category-entertainment","tag-entertainment","tag-ie","tag-ireland"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts\/586344","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/comments?post=586344"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts\/586344\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/media\/586345"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/media?parent=586344"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/categories?post=586344"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/tags?post=586344"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}