{"id":96397,"date":"2025-10-22T06:27:09","date_gmt":"2025-10-22T06:27:09","guid":{"rendered":"https:\/\/www.newsbeep.com\/ie\/96397\/"},"modified":"2025-10-22T06:27:09","modified_gmt":"2025-10-22T06:27:09","slug":"wexford-mother-with-butterfly-skin-forced-to-borrow-bandages-from-son","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/ie\/96397\/","title":{"rendered":"Wexford mother with \u2018butterfly skin\u2019 forced to\u00a0borrow bandages\u00a0from son"},"content":{"rendered":"<p class=\"indo-ebe0ecc6_root indo-ebe0ecc6_paragraph indo-91174671_secondary indo-1d70522a_marginbottom4 indo-1d70522a_marginleft0 indo-1d70522a_marginright0 indo-1d70522a_margintop4\" style=\"color:var(--color-primary-80)\" data-testid=\"title-summary\">Amanda Nugent, from Wexford, suffers from the rare skin condition epidermolysis bullosa (EB)\n<\/p>\n<p><img decoding=\"async\" alt=\"Amanda Nugent with her son Ruaidhri at home in Wexford, says that because of her  type of EB, she is unable to access medical cards, long-term illness or Disability Benefit. Photo: Elle Nugent Traynor\" src=\"https:\/\/www.newsbeep.com\/ie\/wp-content\/uploads\/2025\/10\/Amanda Nugent1.jpg\" loading=\"eager\" width=\"100%\" data-testid=\"article-image\"  \/><\/p>\n<p class=\"indo-ebe0ecc6_root indo-ebe0ecc6_caption1 indo-300db776_none indo-91174671_secondary indo-66f0fec7_regular indo-1d70522a_marginbottom0 indo-1d70522a_marginleft0 indo-1d70522a_marginright0 indo-1d70522a_margintop3 indo-b48c4984_left\" style=\"color:var(--color-grey-60)\">Amanda Nugent with her son Ruaidhri at home in Wexford, says that because of her  type of EB, she is unable to access medical cards, long-term illness or Disability Benefit. Photo: Elle Nugent Traynor<\/p>\n<p class=\"indo-ebe0ecc6_root indo-ebe0ecc6_paragraph indo-300db776_none indo-91174671_primary indo-1d70522a_marginbottom0 indo-1d70522a_margintop0 indo-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">A mother who suffers from the severe condition known as \u201cbutterfly skin\u201d says she feels \u201cinvisible to the State\u201d and struggles to go to work even on days when she can barely stand.<\/p>\n<p class=\"indo-ebe0ecc6_root indo-ebe0ecc6_paragraph indo-300db776_none indo-91174671_primary indo-1d70522a_marginbottom0 indo-1d70522a_margintop0 indo-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">Amanda Nugent (47), from Newbawn, Co Wexford, suffers from epidermolysis bullosa (EB), a rare condition that causes the skin to tear and blister at the slightest touch.<\/p>\n","protected":false},"excerpt":{"rendered":"Amanda Nugent, from Wexford, suffers from the rare skin condition epidermolysis bullosa (EB) Amanda Nugent with her son&hellip;\n","protected":false},"author":2,"featured_media":96398,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[4593,103,397,396,2120,61,60],"class_list":{"0":"post-96397","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-healthcare","8":"tag-eilish-oregan","9":"tag-health","10":"tag-health-care","11":"tag-healthcare","12":"tag-hse","13":"tag-ie","14":"tag-ireland"},"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts\/96397","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/comments?post=96397"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/posts\/96397\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/media\/96398"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/media?parent=96397"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/categories?post=96397"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/ie\/wp-json\/wp\/v2\/tags?post=96397"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}