Data protection
The panel discussed concerns over genomic data, such as privacy, data protection and regulation. Georgiou said: ‘It is a fine balance between being reserved and careful without running the risk of missing out on having a very impactful solution that could help the NHS.’
Patient Advocate and Rare Disease Male Mental Health Coordinator, David Ross said the stroke trial seemed hopeful and was inclusive but stressed that patients need to be given the right information at the right level. The panel also highlighted how AI and digital solutions have real potential but have to be seen within the lens of healthcare, that is ‘safe, applicable and relevant.’
Profiles:
Videha Sharma is an NHS Clinician and Clinical Innovation Lead and Lecturer in Health Informatics at the University of Manchester. Besides his medical practice, Videha leads and coordinate digital health projects with specific expertise in interoperability, user-centred design and digital transformation.
Dr Ahmad Maatouk is a Stroke & Acute Medicine Consultant and Clinical Lead for Stroke Services at Doncaster and Bassetlaw Teaching Hospitals (DBTH). He leads the digital transformation of stroke genetic testing and serves as the Point of Care Ultrasound Lead at DBTH.
Demetra Georgiou is Genetics Transformation Manager at Imperial College Healthcare NHS Trust and is Chair of the British Society for Genetic Medicine. She has a decade of experience as a Genetic Counsellor within the NHS and has subspecialised in cancer genetics and contributed to research, national guidelines, and policy.
Ali Connell is Director of Digital Health at Our Future Health UK, the UK’s largest research study, and also sits on the Royal Society of Medicine’s Digital Health Council.
David Ross is a Patient Advocate with a rare condition and set up a rare disease men’s mental health group with the purpose of giving men a chance to share their experiences and listen to others going through similar experiences.