{"id":232113,"date":"2026-01-11T05:51:10","date_gmt":"2026-01-11T05:51:10","guid":{"rendered":"https:\/\/www.newsbeep.com\/il\/232113\/"},"modified":"2026-01-11T05:51:10","modified_gmt":"2026-01-11T05:51:10","slug":"id-never-heard-of-celtic-curse-until-i-was-diagnosed","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/il\/232113\/","title":{"rendered":"&#8216;I&#8217;d never heard of Celtic curse until I was diagnosed&#8217;"},"content":{"rendered":"<p class=\"mb-4 text-lg md:leading-8 break-words\">Thousands of people in parts of Northern Ireland are being offered free testing for a disorder commonly known as the Celtic Curse.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Haemochromatosis is the most common genetic disorder in Northern Ireland and is mostly found in people of Irish and Scots ancestry.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">The disorder means a person is more at risk of absorbing too much iron and it can start to damage other parts of their body.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Symptoms can range from chronic fatigue, joint pain, memory issues, abdominal pain and skin conditions. If left untreated it can lead to serious long-term health complications.<\/p>\n<p><img alt=\"Neil Irwin is standing in a gallery - there are pictures of people in the background. He is wearing a white shirt and dark jumper. He has a beard and brown hair.\" loading=\"lazy\" width=\"960\" height=\"540\" decoding=\"async\" data-nimg=\"1\" class=\"rounded-lg\" style=\"color:transparent\" src=\"https:\/\/www.newsbeep.com\/il\/wp-content\/uploads\/2026\/01\/3e43f9a4f18ae1244f5aaf058298bba2.jpeg\"\/><\/p>\n<p>Neil Irwin works for Haemochromatosis UK and was diagnosed with the condition seven years ago [BBC]<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">BBC News NI previously reported on <a href=\"https:\/\/www.bbc.co.uk\/news\/uk-northern-ireland-64813957?xtor=AL-72-%5Bpartner%5D-%5Byahoo.north.america%5D-%5Blink%5D-%5Bnews%5D-%5Bbizdev%5D-%5Bisapi%5D\" rel=\"nofollow noopener\" target=\"_blank\" data-ylk=\"slk:concerns that not enough people were being tested for it in Northern Ireland because of the cost;elm:context_link;itc:0;sec:content-canvas\" class=\"link \">concerns that not enough people were being tested for it in Northern Ireland because of the cost<\/a>.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">The Department of Health&#8217;s current policy is to screen for genetic haemochromatosis when a patient shows symptoms.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">But a charity has said it is hoping to capture more information on areas of Northern Ireland where people may be undiagnosed.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Haemochromatosis UK will offer up to 23,500 households free genetic screening in Irvinestown, Portadown, Ballymena and Magherafelt.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Neil Irwin works for Haemochromatosis UK and was diagnosed with the condition seven years ago.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">He says early diagnosis is key to allow people access to effective treatments.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;In recent years we have had anecdotal evidence from areas like Mid Ulster where people have been contacting us saying their area seems to have high rates of haemochromatosis,&#8221; he said.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;But there is a lack of official data, so we&#8217;re looking to fill in some of those blank spots in Northern Ireland that have never screened before, to paint a more detailed picture of the prevalence of the condition.&#8221;<\/p>\n<p>&#8216;I knew something was wrong&#8217;<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Collette McKnight is a mother of three who lives in rural County Down.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">She was diagnosed with haemochromatosis in 2019.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;I would have had severe fatigue and pains, but I just would have put it down to being busy with the children and things like that, &#8220;he said.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;But then I started to develop heart palpitations and I knew something else was wrong.&#8221;<\/p>\n<p><img alt=\"Collette McKnight was diagnosed with haemochromatosis in 2019\" loading=\"lazy\" width=\"960\" height=\"540\" decoding=\"async\" data-nimg=\"1\" class=\"rounded-lg\" style=\"color:transparent\" src=\"https:\/\/www.newsbeep.com\/il\/wp-content\/uploads\/2026\/01\/25d97f566b64dd334c926fa3bdc4c96b.jpeg\"\/><\/p>\n<p>Collette McKnight was diagnosed with haemochromatosis in 2019 [BBC]<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">She added: &#8220;When the tests came back confirming haemochromatosis, I hadn&#8217;t a clue what it was.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;Everyday is different. Some days it&#8217;s joint pain, other days it&#8217;s breathing problems, but it&#8217;s always dealing with the severe fatigue and that can be very difficult.&#8221;<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">She is now treated with therapeutic blood removal, which helps lower iron levels and ease symptoms caused by the condition.<\/p>\n<p>What is the Celtic curse?<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">The gene mutation that causes most cases of hereditary haemochromatosis is believed to have originated in the Celtic population of Europe.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">DNA analysis of the genomes of a Bronze Age farmer on Rathlin Island off the coast of County Antrim showed that it was already established by that period.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Earlier still, the remains of a Neolithic woman found at Ballynahatty near Belfast show that she carried a different variant <a href=\"https:\/\/www.bbc.co.uk\/news\/science-environment-35179269?xtor=AL-72-%5Bpartner%5D-%5Byahoo.north.america%5D-%5Blink%5D-%5Bnews%5D-%5Bbizdev%5D-%5Bisapi%5D\" rel=\"nofollow noopener\" target=\"_blank\" data-ylk=\"slk:also associated with an increased risk of the disorder.;elm:context_link;itc:0;sec:content-canvas\" class=\"link \">also associated with an increased risk of the disorder.<\/a><\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">As part of the latest screening campaign, Haemochromatosis UK is bringing a touring photographic exhibition to Northern Ireland.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">The exhibition, We are Overloaded, opens to the public at the Millennium Court in Portadown on 19 January.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">It features a photographs of people living with haemochromatosis by <a href=\"https:\/\/www.bbc.co.uk\/news\/uk-northern-ireland-68735037?xtor=AL-72-%5Bpartner%5D-%5Byahoo.north.america%5D-%5Blink%5D-%5Bnews%5D-%5Bbizdev%5D-%5Bisapi%5D\" rel=\"nofollow noopener\" target=\"_blank\" data-ylk=\"slk:Pulitzer Prize-winning photojournalist Cathal McNaughton;elm:context_link;itc:0;sec:content-canvas\" class=\"link \">Pulitzer Prize-winning photojournalist Cathal McNaughton<\/a>.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Finbar Polin, from Gilford, is featured in the exhibition and was diagnosed with haemochromatosis during the pandemic.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Speaking to BBC News NI, he said: &#8220;I&#8217;d never heard of the Celtic curse until I was diagnosed.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;It&#8217;s scary initially because it affects you mentally; you don&#8217;t know where you are going with it, but being part of the charity and meeting other people with it has really helped.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;That&#8217;s where I think the exhibition is really powerful, each picture is a person with a story.&#8221;<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">On the issue of screening, the Department of Health said it was guided by advice from UK National Screening Committee (UK NSC).<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Among its recommendations on haemochromatosis, UK NSC stated that there was &#8220;limited evidence on whether treatment is more effective in individuals without symptoms, compared with those who have symptoms&#8221;.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">But Haemochromatosis UK believe it is important to create an accurate picture as possible of the number of people living with the condition.<\/p>\n<p><img alt=\"Three pictures of the same woman with short grey and black choppy hair. She is wearing glasses and has red lipstick on. She is wearing a black top and a silver chain. She looks happy in all three of them.\" loading=\"lazy\" width=\"960\" height=\"540\" decoding=\"async\" data-nimg=\"1\" class=\"rounded-lg\" style=\"color:transparent\" src=\"https:\/\/www.newsbeep.com\/il\/wp-content\/uploads\/2026\/01\/982b9457a8604d6f6b287805042f14ea.jpeg\"\/><\/p>\n<p>The We are Overloaded exhibition features the photos and stories of people living with haemochromatosis [BBC]<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Previous research by the charity suggests that as many as one in 10 people are at risk in Northern Ireland of genetic haemochromatosis.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">The charity previously ran a campaign to fund and offer thousands of households in Belfast, Carrickfergus and Londonderry with free self-test kits.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">A Haemochromatosis UK genetic testing kit usually costs about \u00a3130.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">The latest kits being rolled out by Haemochromatosis UK were purchased with donations and funding received by the charity.<\/p>\n<p><img alt=\"Haemochromatosis UK will offer up to 23,500 households free genetic screening in Irvinestown, Portadown, Ballymena and Magherafelt.\" loading=\"lazy\" width=\"960\" height=\"510\" decoding=\"async\" data-nimg=\"1\" class=\"rounded-lg\" style=\"color:transparent\" src=\"https:\/\/www.newsbeep.com\/il\/wp-content\/uploads\/2026\/01\/26b9bf20ac29fdbd03b4dd9c48ed87e8.jpeg\"\/><\/p>\n<p>Haemochromatosis UK will offer up to 23,500 households free genetic screening [BBC]<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Businessman James Hagan, founder of Hagan Homes, is one of the donors.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">He said: &#8220;Someone very close to me was recently diagnosed with genetic haemochromatosis \u2014 despite having no symptoms.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">&#8220;Their experience highlights exactly why this campaign is so important. Most people affected have no warning signs, yet the potential consequences can be extremely serious if the condition goes undetected.&#8221;<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">Haemochromatosis UK has said that in the coming weeks and months , households in the relevant postcodes will receive information about genetic haemochromatosis.<\/p>\n<p class=\"mb-4 text-lg md:leading-8 break-words\">In the package they will be offered a free genetic test, alongside access to counselling to help them understand their results.<\/p>\n","protected":false},"excerpt":{"rendered":"Thousands of people in parts of Northern Ireland are being offered free testing for a disorder commonly known&hellip;\n","protected":false},"author":2,"featured_media":232114,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[71710,126146,126145,1110,126147,163,85,46,171,126148,443],"class_list":{"0":"post-232113","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-health","8":"tag-bbc-news-ni","9":"tag-celtic-curse","10":"tag-genetic-haemochromatosis","11":"tag-genetic-screening","12":"tag-haemochromatosis","13":"tag-health","14":"tag-il","15":"tag-israel","16":"tag-northern-ireland","17":"tag-severe-fatigue","18":"tag-uk"},"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/posts\/232113","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/comments?post=232113"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/posts\/232113\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/media\/232114"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/media?parent=232113"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/categories?post=232113"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/tags?post=232113"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}