{"id":623032,"date":"2026-09-21T16:52:32","date_gmt":"2026-09-21T16:52:32","guid":{"rendered":"https:\/\/www.newsbeep.com\/il\/623032\/"},"modified":"2026-09-21T16:52:32","modified_gmt":"2026-09-21T16:52:32","slug":"telehealth-companies-keep-exposing-their-customers-medical-data-what-should-patients-do","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/il\/623032\/","title":{"rendered":"Telehealth companies keep exposing their customers\u2019 medical data. What should patients do?"},"content":{"rendered":"<p><img decoding=\"async\" data-chromatic=\"ignore\" alt=\"\" class=\"c-image\" loading=\"lazy\" src=\"https:\/\/www.newsbeep.com\/il\/wp-content\/uploads\/2026\/09\/IOWJVYHAK6N7TMK6SPRC6NCQFA.jpg\"  width=\"800\" height=\"533\"\/>The Hims website is displayed on a smartphone in Philadelphia on Wednesday, Sept. 16, 2026. (AP Photo\/Jonathan Poet) <\/p>\n<p class=\"c-paragraph sans-serif\">WASHINGTON \u2014 The appeal of telehealth is easy to explain: Instead of calling a doctor, booking an appointment and hoping to eventually get a prescription, you can log onto an app or website and get approved for a new medication within minutes.<\/p>\n<p class=\"c-paragraph sans-serif\">Since the COVID-19 pandemic, scores of online health services have launched with the promise of quick, convenient access to drugs for ADHD, sexual dysfunction, anxiety, weight loss and more.<\/p>\n<p class=\"c-paragraph sans-serif\">Increasingly, though, government regulators are accusing these companies of deceptive, unethical business practices, including disclosing their customers\u2019 health data, signing them up for hard-to-cancel subscriptions and bypassing real-time consultations with doctors.<\/p>\n<p class=\"c-paragraph sans-serif\">The Federal Trade Commission\u2019s latest lawsuit alleges that telehealth pioneer Hims &amp; Hers engaged in all of those tactics, running afoul of U.S. consumer protection laws.<\/p>\n<p class=\"c-paragraph sans-serif\">Hims has disputed the government\u2019s claims, calling them \u201can effort to generate headlines at our expense.\u201d<\/p>\n<p class=\"c-paragraph sans-serif\">In recent years, FTC officials have filed similar cases against more than a half-dozen telehealth companies, including online therapy provider BetterHelp and pharmacy discount service GoodRx. In both cases, regulators said the companies shared users\u2019 health data with online platforms such as Meta and Google, without getting permission.<\/p>\n<p class=\"c-paragraph sans-serif\">Experts say part of the problem is that federal laws that govern the handling of health information generally don\u2019t apply to telehealth companies.<\/p>\n<p class=\"c-paragraph sans-serif\">\u201cThere\u2019s an entire universe of companies collecting huge amounts of consumer health data every day that aren\u2019t covered by our current health sector-specific laws,\u201d said Andrew Crawford, an attorney with the nonprofit Center for Democracy and Technology.<\/p>\n<p class=\"c-paragraph sans-serif\">Here are some things to know before signing up for a telehealth service:<\/p>\n<p>Don\u2019t expect to actually talk to a physician<\/p>\n<p class=\"c-paragraph sans-serif\">Nearly all telehealth visits begin with a questionnaire in which users provide details about their medical history and possible medications they\u2019re interested in.<\/p>\n<p class=\"c-paragraph sans-serif\">According to the FTC\u2019s lawsuit, Hims customers were automatically enrolled and billed for recurring prescriptions with \u201cvirtually no opportunity to review the provider\u2019s recommended treatment.\u201d<\/p>\n<p class=\"c-paragraph sans-serif\">Researchers have documented similar practices across the industry, even for injectable weight-loss drugs that typically require a physical exam and other precautions before beginning treatment.<\/p>\n<p class=\"c-paragraph sans-serif\">A recent analysis of nearly 50 telehealth companies selling GLP-1 drugs found that less than a third actually required any real-time video or audio consultation with a physician. In some cases, the prescriptions were approved within minutes.<\/p>\n<p class=\"c-paragraph sans-serif\">\u201cWhat we saw overwhelmingly was that it was incredibly easy to get access to the GLP-1s,\u201d said Dr. Reshma Ramachandran of Yale University, who led the study. \u201cMost of the time, the prescription was automatically sent, without even an opportunity to stop the dispensing.\u201d<\/p>\n<p class=\"c-paragraph sans-serif\">The lack of a real-time conversation means many patients aren\u2019t getting the type of care recommended by medical societies that prescribe GLP-1s, including discussions about weight-loss goals, past efforts and eating disorders.<\/p>\n<p class=\"c-paragraph sans-serif\">Only a little more than half the websites had a question about eating disorders \u2014 which GLP-1 drugs can induce or worsen \u2014 on their intake questionnaires, the researchers found.<\/p>\n<p>Your data may be shared with advertisers, social media companies and others<\/p>\n<p class=\"c-paragraph sans-serif\">Americans often assume that any personal health information they share is protected by HIPAA, the federal privacy law that governs the handling of medical information. But the law generally only applies to specific types of health businesses, including medical offices, hospitals and insurers, not telehealth companies offering prescriptions, counseling, DNA tests and other online services.<\/p>\n<p class=\"c-paragraph sans-serif\">Privacy experts say that legal gap is one reason companies continue to disclose sensitive health information to advertisers and search engines.<\/p>\n<p class=\"c-paragraph sans-serif\">\u201cThere isn\u2019t a clear federal law saying: \u2018Don\u2019t do this,\u2019\u201d said Justin Brookman, Consumer Reports\u2019 director of technology policy. \u201cThere\u2019s just a body of soft law and settled cases with the FTC that many companies probably aren\u2019t even aware of.\u201d<\/p>\n<p class=\"c-paragraph sans-serif\">Because HIPAA does not cover every direct-to-consumer health platform, the FTC has generally used its broader authority to take action against \u201cfraudulent, deceptive or unethical business methods.\u201d In practice, that means showing that telehealth companies disclosed their customers\u2019 health information after initially saying they wouldn\u2019t.<\/p>\n<p class=\"c-paragraph sans-serif\">Hims told customers that its platform offered a \u201c100% online, private and secure\u201d means of sharing information with the company\u2019s medical professionals, according to the FTC complaint. But instead the company shared the data with Meta and other online platforms, the FTC alleges.<\/p>\n<p class=\"c-paragraph sans-serif\">Still, experts say the penalties available to regulators are limited. In most cases, companies sign a legal agreement stating that they\u2019ll stop the practices cited by regulators.<\/p>\n<p class=\"c-paragraph sans-serif\">Lawmakers in California, Connecticut, Maryland and other states have passed new online privacy laws that include special protections for health information. But there\u2019s been little enforcement against telehealth companies that break those rules.<\/p>\n<p>Online privacy tools offer a bit of protection<\/p>\n<p class=\"c-paragraph sans-serif\">For now, privacy experts recommend using ad blockers and private web browsers \u2014 sometimes called \u201cincognito\u201d windows \u2014 when logging onto telehealth websites. Those tools can make it harder for companies to track your location, online history and other personal information.<\/p>\n<p class=\"c-paragraph sans-serif\">It\u2019s also a good idea to read any user agreements to get a sense of how the company plans to use your personal data, said Crawford. Some telehealth sites, for example, explicitly state in their privacy policies that they have the right to sell data about users\u2019 sex lives.<\/p>\n<p class=\"c-paragraph sans-serif\">The only surefire way to protect your information may simply be to decline the terms of service, usually one of the first steps required before accessing telehealth.<\/p>\n<p class=\"c-paragraph sans-serif\">\u201cThe system we have now overly burdens consumers to do a ton of work in terms of understanding how each piece of technology collecting their personal data is going to handle it,\u201d he said. \u201cBut even if you do all that work, you often have little agency.\u201d<\/p>\n<p class=\"c-paragraph sans-serif\">___<\/p>\n<p class=\"c-paragraph sans-serif\">The Associated Press Health and Science Department receives support from the Howard Hughes Medical Institute\u2019s Department of Science Education and the Robert Wood Johnson Foundation. The AP is solely responsible for all content.<\/p>\n","protected":false},"excerpt":{"rendered":"The Hims website is displayed on a smartphone in Philadelphia on Wednesday, Sept. 16, 2026. (AP Photo\/Jonathan Poet)&hellip;\n","protected":false},"author":2,"featured_media":623033,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[163,521,85,46],"class_list":["post-623032","post","type-post","status-publish","format-standard","has-post-thumbnail","category-healthcare","tag-health","tag-healthcare","tag-il","tag-israel"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/posts\/623032","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/comments?post=623032"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/posts\/623032\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/media\/623033"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/media?parent=623032"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/categories?post=623032"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/il\/wp-json\/wp\/v2\/tags?post=623032"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}