Hayley was 24 when she noticed her left thigh looked slightly larger than her right. When she began getting pins and needles each time she crossed her legs, the then-manager at a legal tech company visited her GP, who discovered a 5cm soft-tissue mass in her thigh.
She was immediately sent for X-rays, ultrasounds and a biopsy, which showed she had myxoid liposarcoma, a rare soft-tissue tumour that’s often painless and develops in the fat cells.
“Sarcomas make up only 1% of adult cancers,” says Hayley. “They can be silent and there’s no screening for this cancer, so your best chance of survival is early detection.”
After her shock diagnosis in April 2021, Hayley began 25 rounds of radiation to shrink the tumour before having surgery in August 2021 to remove it and save her leg.
In remission for almost two years, she continued to have regular check-ups. Then, in June 2023, she felt a lump on her buttock, which turned out to be metastatic liposarcoma.
A full body MRI picked up three spots of cancer in her liver and in July of that same year, Hayley endured 18 rounds of radiation on her buttock before the tumour was removed through surgery. By November 2023, a liver CT scan proved clear.
Hayley Killalea during her visit to Disneyland. Photo / Woman’s Day
Sadly, a month later, another scan showed the disease had returned to her liver and lymph nodes and she was told it was no longer curable, with doctors offering her palliative chemotherapy to extend her time.
“I cried because I’d always known it was possible, but it’s different being told,” she says. “I negotiated delaying the treatment for a couple of months, so I could travel with people I love while I still looked and felt like myself.”
Flying to Singapore to stay with her brother and his family, Hayley then returned home for a scan, before flying business class to Bali, courtesy of her pals.
On her way back to New Zealand, Hayley received a call from her oncologist. The tumours were growing faster than anticipated and she was told the two months she’d planned to travel before starting chemo again would be too long a delay.
Reshuffling her plans, she cut her dream trip down to a month, jumped on a plane headed to Paris, then popped over to Denver in the US to stay with her old boss.
Hayley Killalea had to cut her dream trip down to a month but managed to visit France, the US and Canada. Photo / Woman’s Day
“I also went to Los Angeles to see another brother and did a tour at Disneyland, before going to Coachella in Southern California,” she says. “I really wanted to see Doja Cat live and she was headlining the event.”
Afterwards, Hayley visited Canada, where she’d lived and worked from 2018 to 2020.
“There’s a beautiful, huge, Swedish-style outdoor day spa there called Nordik,” she explains. “I wanted to go for three days after Coachella and put myself in rehab! My friends and I had the best time laughing, drinking and just relaxing. Being in a warm spa while it was snowy and cold was amazing.”
She returned home in May 2024, shaved her head and prepared for intensive chemo.
“I didn’t realise how attached to my hair my identity was and for the first time, I looked like a cancer patient,” says Hayley, who splashed out on a blue and white head scarf by luxury designer Hermès.
While undergoing six rounds of chemo, she soldiered through with support from her family and friends, sharing parts of her journey on TikTok to encourage others to check for lumps and bumps.
Hayley had 18 rounds of radiation on her buttock before the tumour was removed through surgery. Photo / Woman’s Day
A popular video that has received more than 500,000 views shows Hayley sharing her “death rules”. Among them was a suggestion to have her ashes made into diamonds, so her loved ones can carry a “fabulous” piece of her with them always. Another was that funeral guests must sign up for free counselling through the Cancer Society.
“Also, only approved photos can be posted of me once I die,” she wrote. “No awkward teenage-years photos!”
Today, Hayley is continuing to receive chemo privately, which costs about $8700 per cycle, as the drug Trabectedin that she’s on isn’t funded.
“I had an MRI and CT a couple of weeks ago, which showed all the tumours are still stable, so I’ve agreed to do another three rounds of chemo,” says Hayley. “Then we’ll rescan and go from there.”
Along with her jam-packed, one-month adventure, Hayley has also flown to Fiji for a girls’ trip, revisited Bali for her sister’s 30th and watched Taylor Swift live in Canada.
Earlier this year, she adopted a long-haired miniature dachshund named Maple, who accompanies Hayley to her oncology appointments.
“Maple has endless amounts of love to give and helps me maintain a consistent routine,” she says. “She does moult a lot – anyone would think she’s the one going through chemo! She loves food and her favourite thing is being in bed, which is perfect for my lifestyle.”
Earlier this year, Hayley adopted a long-haired miniature dachshund named Maple. Photo / Woman’s Day
Hayley’s latest project is working on a backyard garden to create a peaceful summer hangout space, filled with flowers, herbs and vegetables.
“I’m mostly asymptomatic and if you look at me, you probably wouldn’t even know I have cancer,” says Hayley, who celebrated her birthday in Queenstown in August. “You’d just think I chose an edgy, short pixie cut.
“I’m still bewildered this is my reality, but I’m really grateful for all my experiences with the people I love. I’ve had the best time.”
Sarcomas are often misdiagnosed as a benign lump, sporting injury or growing pains in young people. To help fund research, donate to Sarcoma Foundation NZ at sarcoma.org.nz. To help pay for Hayley’s chemo, search for “Hayley Killalea” at givealittle.co.nz.