Jesy Nelson SMA petition triggers UK Government response on baby tests
Nelson is hoping she can use her platform to drive “real change”. She told the Daily Mirror newspaper:…
Tauranga woman with myotonic muscular dystrophy seeks help to fund mobility van modifications
Physical symptoms can include delayed motor milestones, a waddling gait, enlarged calf muscles, trouble rising from the floor,…
Ex-Gisborne girl, 6, with spinal muscular atrophy to spend third Christmas at Starship hospital in Auckland
Emily was 3 when she caught a common cold, and it quickly became life-threatening. She needed specialist care…