{"id":189883,"date":"2025-12-18T11:27:08","date_gmt":"2025-12-18T11:27:08","guid":{"rendered":"https:\/\/www.newsbeep.com\/nz\/189883\/"},"modified":"2025-12-18T11:27:08","modified_gmt":"2025-12-18T11:27:08","slug":"10-years-since-maid-in-quebec-woman-who-fought-to-expand-it-hopes-canada-catches-up","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/nz\/189883\/","title":{"rendered":"10 years since MAID in Quebec, woman who fought to expand it hopes Canada catches up"},"content":{"rendered":"<p>Seven years into an early onset Alzheimer\u2019s diagnosis, Sandra Demontigny&#8217;s home is full of reminders.<\/p>\n<p>A routine chart stuck to her apartment door prompting her to take her keys and bag. Post-it notes and family photos flood the fridge. A medication alarm beeps in the kitchen of her independent seniors&#8217; living facility in L\u00e9vis, Que.\u00a0<\/p>\n<p>Demontigny might forget dates, times and daily tasks that were once second nature, but the 46-year-old still remembers what led to her prominent role in advocating for the expansion of medical assistance in dying (MAID) in Quebec.<\/p>\n<p>It was just after her diagnosis in 2018 \u2014 a moment she had dreaded for decades after seeing her father suffer from genetic early onset Alzheimer&#8217;s.<\/p>\n<p>\u201cI decided that if one day I have this disease, I don&#8217;t want to go through that,\u201d she said.\u00a0<\/p>\n<p>Demontigny <a href=\"https:\/\/www.cbc.ca\/news\/canada\/montreal\/assited-dying-bill-quebec-1.6751413\" target=\"_blank\" rel=\"nofollow noopener\">made headlines<\/a> across the country and <a href=\"https:\/\/www.nytimes.com\/2025\/02\/25\/world\/canada\/sandra-demontigny-assisted-suicide-quebec.html\" target=\"_blank\" rel=\"nofollow noopener\">internationally <\/a>for her plea for advanced requests for MAID \u2014 even participating as a witness in a federal <a href=\"https:\/\/www.parl.ca\/Content\/Committee\/441\/AMAD\/Reports\/RP12234766\/amadrp02\/amadrp02-e.pdf\" target=\"_blank\" rel=\"nofollow noopener\">2022 special joint committee<\/a>.\u00a0<\/p>\n<p>She argued she should be allowed to choose MAID while she was still capable of consenting to care.\u00a0<\/p>\n<p>In October 2024, <a href=\"https:\/\/www.cbc.ca\/news\/canada\/montreal\/quebec-assisted-dying-advanced-1.7361986\" target=\"_blank\" rel=\"nofollow noopener\">Quebec moved forward with its plan to authorize early requests for medical assistance in dying<\/a> despite concerns raised by the federal government.<\/p>\n<p>As the province marks 10 years since MAID was legalized through <a href=\"https:\/\/www.cbc.ca\/news\/canada\/montreal\/quebec-passes-landmark-end-of-life-care-bill-1.2665834\" target=\"_blank\" rel=\"nofollow noopener\">Bill 52<\/a>, experts say Quebec continues to be a leader in the space and Demontigny hopes it can help set an example \u2014 pushing the rest of Canada to follow suit.\u00a0<\/p>\n<p>\u201cTry to fight too,\u201d she said.\u00a0\u00a0\u201cI was afraid that I [would] miss the train.\u201d<\/p>\n<p>\u2018She was going to be imprisoned in her own body\u2019: son<\/p>\n<p>For Demontigny&#8217;s son Sacha Fontaine,\u00a0it was no surprise his mom became a figure in the movement to expand MAID. He says she didn\u2019t have much of a choice.\u00a0<\/p>\n<p>\u201cShe had to do this work or else she was going to be imprisoned in her own body,\u201d he said, sitting on the couch in his mom\u2019s apartment.\u00a0<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" alt=\"A woman and a young man sit next to eachother \"   src=\"https:\/\/www.newsbeep.com\/nz\/wp-content\/uploads\/2025\/12\/1766057227_500_default.jpg\" style=\"aspect-ratio:1.7784011220196354\" data-cy=\"image-img\"\/>Sacha Fontaine, the youngest of Demontigny&#8217;s three children, says his mom fought for the right to advanced MAID requests for others. (Sylvain Roy Roussel\/CBC)<\/p>\n<p>\u201cMore than this, I think it was a fight for us because we&#8217;re going to be next,\u201d he added, referring to the genetic condition making some members of his family predisposed to early onset Alzheimer&#8217;s.\u00a0<\/p>\n<p>Elderly people might die with the disease, but not always from the disease, says Demontigny. But getting diagnosed in her 30s, she says \u201cthe body is good, it&#8217;s just the brain is bad.\u201d\u00a0<\/p>\n<p>Hanging her head low, holding back tears, Demontigny recalled how her 53-year-old father forgot how to swallow and died of aspiration. She remembers him crawling on his hands and knees near the end, walking into walls and constantly crying, all while being unable to talk.<\/p>\n<p>\u201cIt\u2019s hard,&#8221; she said, taking a pause. \u201cIt\u2019s scary for the people around\u2026 for the dignity of the person.\u201d\u00a0<\/p>\n<p>How Quebec became a \u2018case study\u2019 for MAID<\/p>\n<p>In January 2025, in her apartment, Demontigny signed her form for advanced consent for MAID among her friends, witnesses and doctors.\u00a0<\/p>\n<p>She\u2019s now one of 1,747 people who have successfully made an advanced request for the procedure in the province between Oct. 30, 2024 and Dec. 7, 2025, according to the Health Ministry. <\/p>\n<p><img decoding=\"async\" loading=\"lazy\" alt=\"A woman holds stacks of printed photos\"   src=\"https:\/\/www.newsbeep.com\/nz\/wp-content\/uploads\/2025\/12\/1766057228_74_default.jpg\" style=\"aspect-ratio:1.778523489932886\" data-cy=\"image-img\"\/>Demontigny shuffled through photographs of family and friends. She found a photo of her father, who suffered from early onset Alzheimer&#8217;s. (Sylvain Roy Roussel\/CBC)<\/p>\n<p>In 2024, the federal government repeatedly expressed concern about Quebec moving forward with advanced consent before it modified the Criminal Code. But Ottawa said it would not challenge the Quebec law.<\/p>\n<p>A year prior, a report from the Special Joint Committee on Medical Assistance in Dying made 23 recommendations, including that the Canadian government <a href=\"https:\/\/www.parl.ca\/Content\/Committee\/441\/AMAD\/Reports\/RP12234766\/amadrp02\/amadrp02-e.pdf\" target=\"_blank\" rel=\"nofollow noopener\">amend the Criminal Code <\/a>to allow for advanced requests following a diagnosis of a serious and incurable medical condition, disease or disorder leading to incapacity.<\/p>\n<p>Days before Quebec started accepting requests in 2024, <a href=\"https:\/\/www.cbc.ca\/news\/canada\/montreal\/ottawa-looking-into-maid-advance-1.7365868\" target=\"_blank\" rel=\"nofollow noopener\">federal Health Minister Mark Holland said the pursuit of criminal charges for assisted dying is overseen by provincial law enforcement<\/a> and reiterated that advanced requests are still considered an offence according to Canada&#8217;s Criminal Code.<\/p>\n<p>But Quebec had instructed its prosecutor&#8217;s office to not pursue charges against doctors who process those requests.\u00a0<\/p>\n<p>Meaning while the practice conflicted with the Criminal Code, Quebec could move forward.\u00a0<\/p>\n<p>Last fall, the federal government launched what it called a national conversation to hear perspectives on advanced requests. <a href=\"https:\/\/www.canada.ca\/en\/health-canada\/programs\/consultation-advance-requests-medical-assistance-dying\/what-we-heard.html\" target=\"_blank\" rel=\"nofollow noopener\">Its report<\/a>, published in October 2025, did not provide recommendations but found that while the principle was generally supported, there was concern about how it could be implemented safely. <\/p>\n<p>In an emailed statement, Ian McLeod, spokesperson with the Department of Justice Canada, says the government is &#8220;carefully considering the findings.&#8221;<\/p>\n<p>&#8220;[MAID] is a deeply personal and complex choice that touches people and families at difficult and often painful times in their lives. The Government of Canada is committed to ensuring our laws reflect Canadians\u2019 evolving needs,&#8221; read the statement. <\/p>\n<p>Jocelyn Downie, a professor emeritus in the faculties of law and medicine at Dalhousie University, says Quebec has shown leadership from the very beginning on this issue.<\/p>\n<p>\u201cPut bold and italics and asterisks on that non-partisan approach that they took to this issue,\u201d she said.<\/p>\n<p>\u201cIt&#8217;s absolutely a case study in legislators demonstrating leadership on an important social policy issue of the day and it stands\u00a0in stark contrast to the federal Parliament,\u201d she said.\u00a0<\/p>\n<p>Why are so many Quebecers seeking MAID?<\/p>\n<p>Over 6,000 people received MAID between April 1, 2024 and March 21, 2025, representing <a href=\"https:\/\/csfv.gouv.qc.ca\/fileadmin\/docs\/rapports_annuels\/csfv_rapport_activites_2024-2025.pdf\" target=\"_blank\" rel=\"nofollow noopener\">7.9 per cent of deaths in the province<\/a>, according to Quebec&#8217;s end of life commission report.\u00a0\u00a0<\/p>\n<p>Marie-\u00c8ve Bouthillier, professor of clinical ethics at Universit\u00e9 de Montr\u00e9al, is trying to figure out why this number is so high \u2014 the highest in the world.<\/p>\n<p>The principal co-investigator of a research project that began in 2024, Bouthillier says initial results point to several contributing factors, including Quebec\u2019s rates of religion, democratic processes creating dialogue across the province and Quebec\u2019s integrated health system and accessibility.<\/p>\n<p>\u201cThere&#8217;s a sort of demystification maybe or proximity with MAID that makes it more appealing,\u201d she said.\u00a0<\/p>\n<p>It\u2019s difficult to put a finger on one specific factor explaining Quebec\u2019s position on MAID, says Dr. Mona Gupta, a psychiatrist and a researcher at the Centre hospitalier de l&#8217;Universit\u00e9 de Montr\u00e9al.\u00a0<\/p>\n<p>The MAID assessor who also led the federal Expert Panel on MAID and Mental Illness says Quebecers have an openness to exercising personal choice in a range of different social practices.<\/p>\n<p>\u201cWhether that&#8217;s marriage or common law marriage. Whether that&#8217;s abortion rights,\u201d she said.\u00a0 \u201cSo in that respect, in any case, that&#8217;s one plausible hypothesis.\u201d\u00a0<\/p>\n<p>\u2018It&#8217;s just important to have the choice\u2019\u00a0<\/p>\n<p>Quebec was the first province to offer the right to a medically assisted death, legalizing the practice in December 2015 \u2014 just before the Supreme Court of Canada unanimously overturned a legal ban on doctor-assisted suicide \u2014 Carter V. Canada.\u00a0<\/p>\n<p>The hesitancy to move forward federally contradicted public support, which Downie referred to as &#8220;enormous,\u201d even a decade ago.<\/p>\n<p>\u201cIt has only grown since then. I don&#8217;t know that there&#8217;s anything that Canadians agree on more than assisted dying,\u201d said Downie.\u00a0<\/p>\n<p>Over three-quarters of Canadians support the law on MAID, according to a <a href=\"https:\/\/leger360.com\/wp-content\/uploads\/2024\/04\/Leger-X-CP_-MAID_in_Canada.pdf\" target=\"_blank\" rel=\"nofollow noopener\">2024 L\u00e9ger report<\/a> on the practice. But the report found the highest proportion of support in Quebec, at about 86 per cent.\u00a0\u00a0<\/p>\n<p><img decoding=\"async\" loading=\"lazy\" alt=\"A woman smiles as she pets her cat \"   src=\"https:\/\/www.newsbeep.com\/nz\/wp-content\/uploads\/2025\/12\/1766057228_986_default.jpg\" style=\"aspect-ratio:1.778523489932886\" data-cy=\"image-img\"\/>Demontigny lives in a care home in L\u00e9vis, Que., alongside her cat, Litchi.  (Sylvain Roy Roussel\/CBC)<\/p>\n<p>Demontigny says she\u2019s met a few people who tell her they don\u2019t agree with her stance or decision.\u00a0<\/p>\n<p>\u201cMy answer is easy: I have my life, you have your[s],\u201d she said.\u00a0<\/p>\n<p>She says her decision is not about wanting to end her life \u2014 it&#8217;s about having the choice to do so. Without it, people in her situation have taken their own lives, she says.<\/p>\n<p>\u201cThey know that it will get harder and harder and harder and they will lose dignity,&#8221; she said. <\/p>\n<p>\u201cIt&#8217;s just important to have the choice.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"Seven years into an early onset Alzheimer\u2019s diagnosis, Sandra Demontigny&#8217;s home is full of reminders. A routine chart&hellip;\n","protected":false},"author":2,"featured_media":189884,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[22],"tags":[273,111,139,69,147],"class_list":{"0":"post-189883","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-environment","8":"tag-environment","9":"tag-new-zealand","10":"tag-newzealand","11":"tag-nz","12":"tag-science"},"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/posts\/189883","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/comments?post=189883"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/posts\/189883\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/media\/189884"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/media?parent=189883"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/categories?post=189883"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/nz\/wp-json\/wp\/v2\/tags?post=189883"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}