Isla Sneddon found a lump in her breast age 15, but by the time she finally got diagnosed she only had six months to live, her parents say if she’d been treated as an adult she’d have survived
Isla Sneddon’s family are battling to change how children are treated with cancer symptoms(Image: Mark Sneddon / SWNS)
The family of a girl who died of cancer at 17 after finding a lump in her breast and seeking medical help aged 15 say she would still be alive if she’d been treated as an adult.
Isla Sneddon’s family are fighting to change the law after she was told by doctors the lump in her breast was likely benign and caused by hormonal changes as she was a teenager.
Then, aged 17, she was recommended a biopsy – but her referral was downgraded due to her age. Tragically, by the time Isla was finally diagnosed with breast cancer her shocked parents were told she had only six months to a year left to live.
Her parents, Mark and Michelle, say that if Isla’s symptoms had been treated the same as they would have in an adult, Isla’s cancer could have been treatable, and their daughter would still be alive today.
Isla was told she only had six months to a year when she was finally diagnosed (Image: Mark Sneddon / SWNS)
The pair did everything they could to support their daughter through her illness, before she passed away in March last year and they are now battling to change the law so other families don’t have to go through the same nightmare.
Mark said: “We trusted what we were told. We believe that if Isla had been an adult presenting with the same symptoms, there would be a lot more done.
“There would have been a longer investigation – she wouldn’t have been told it was something she’d grow out of. We’ll never know, but we believe that if that had been caught then, it maybe wouldn’t have got to where it was.
“I don’t want another father or mother to feel like we do. We’re empty, we’re lost – I would never wish this on another family. If this gets passed, it can save another child from going through what Isla went through.
“Isla was the best daughter you could ask for. She was bright and bubbly. She had a really good sense of humour, and she was beautiful.
“Me and her mum adored her – we just wanted her to have the best life she could have.”
Isla Sneddon and parents Mark and Michelle(Image: Mark Sneddon / SWNS)
In the summer of 2024, Isla fell seriously ill as a result of her then undiagnosed cancer, and was taken to her local hospital in Airdrie, before spending ten weeks undergoing scans and procedures in various hospitals across Scotland.
“Isla and my wife were in Rome for a holiday, and the next week she took not well and ended up in hospital,” said Mark. We were never thinking it was cancer – there was no history of cancer in mine or my wife’s family. It was the last thing on our mind.
“When she took unwell and went into the NHS, she had fantastic care – but by the time they diagnosed Isla with cancer, it was too late. At the end of 10 weeks in hospital, they told us Isla had cancer and she would be transferred to the Beatson.
“Me and my wife were thinking there would be stages and we could see what stage she was at and see what treatment she needed. We got to the Beatson, and a woman took us into a room and said our daughter was going to die. She had six months to a year to live.
“It had spread from her breast to her lungs, her heart and her lymph nodes. By the time they detected it, it was too late – it was damage limitation.
“Isla didn’t want to know. She just wanted to live as best as she could.” Her adoring family spent as much quality time with Isla as possible in the months leading up to her death, before her condition worsened suddenly.
Isla was recommended a biopsy – but the referral was downgraded due to her age(Image: Mark Sneddon / SWNS)
Mark said: “She got up on a Sunday morning and said, “Dad, I don’t feel well, I think you need to take me to hospital. She would never ask to go to hospital, because she’d been in hospital for so long.
“We had waited six hours for an ambulance, so me and my brother put her in a wheelchair – we couldn’t lift her because she was so fragile – and we took her to the hospital. They took her straight in and said her needs were too complex for the hospital, but they couldn’t move her. Then she crashed.
“We nursed her for six months of chemotherapy and she died in our arms in hospital. We thought we’d have a lot more time with her.
“It was so horrible. It’s the sort of thing you see on television – it happens to other people and you don’t think it’ll happen to you.”
The family have been campaigning for the last year to establish Isla’s Law – which would require GPs to ensure urgent paediatric referrals are subject to the same maximum wait times as adult cancer referrals.
Isla Sneddon’s parents Mark and Michelle are fighting to change the law(Image: Mark Sneddon / SWNS)
Their petition on Change.org has attracted over 35,000 signatures, and the family will be meeting with Scottish Health Secretary Neil Gray next month to discuss their concerns.
Health secretary Neil Gray told STV: “I would like to express my deepest sympathies to the family of Isla Sneddon for their very sad loss. I will be meeting with her family next week to further discuss their petition and concerns.
“We published updated Scottish Referral Guidelines for Suspected Cancer on August 6, which include a new children and young person’s referral guideline. These will help to ensure the right person is on the right pathway at the right time.”
Arwel Williams, NHS Lanarkshire’s director of acute services, said: “Our team have been responding to the family’s concerns through correspondence and face to face meetings and we have reassured the family that Isla’s treatment was in line with expected clinical pathways.
“However, we fully recognise how devastating this has been to the family and our thoughts and sincere sympathies remain with them. We continue to engage with the family and will provide any further support we can.”