Clare Mackay has lived with trichotillomania for 40 years and now works in partnership with the support group BFRB UK and Ireland.
Her new book, Keep Your Hair On: Understanding Urges to Pick, Pull and Bite, is based on her personal experience and years of research into body-focused repetitive behaviours.
“It’s normal grooming behaviour to pick and pull and bite a bit,” she said.
“But it can be very severe – people can pull out all of their hair. Different people are triggered by different things. It’s fundamentally a self-soothing behaviour.”
She described trichotillomania as a chronic condition, but said it could be managed.
“There are therapists that offer particular therapies, but self-help strategies can be just as effective. And one of the best ones is finding other people who suffer with the same thing.”