Yemm hosted a debate in Parliament this week about the experiences of young people with cancer – and urged the government to deliver its 10-year cancer plan “with urgency, with funding, and with accountability”.
The National Cancer Plan for England, external, published earlier this year, promises earlier cancer diagnosis and faster treatment.
Louie’s mum Chloe, who has been documenting the family’s journey on social media, said: “As a family, we had never experienced anything like this.
“They say its uncommon, but here we are, we are just a normal family – you don’t expect something like this to happen to you.
“As a family, me, my husband and my children, we are very much supported. But for his grandparents, like my mum and my mother-in-law, there isn’t help there for them.
“For me, that is a massive thing, and more needs to be done for the extended family.
“Until I got the phone call, I didn’t know what an oncology ward was. As parents, we aren’t aware of the reality of cancer until it happens to you.”
Chloe and Louie want to start a podcast to help other families to deal with a cancer diagnosis.
“Hopefully, by the end of this year, he will be on the road to recovery,” Chloe added.