In July that year, Jake was diagnosed with stage three, fusion-positive alveolar rhabdomyosarcoma.
“It was really difficult to get our heads round because Jake had seemed so well up until that point,” said Lynsey.
“It was really hard to imagine that he had a cancerous tumour actually the size that it was – the size of an egg.”
Jake underwent nine rounds of chemotherapy and proton beam radiotherapy, but Lynsey said it was “really, really hard going” and he had “no energy at all”, with the medication making him feel unwell.
When the cancer spread into the fluid around his brain and spinal cord, Jake “made the decision himself” to stop treatment, she said.
“He made what I think is the most brave decision in the world.
“I remember having a conversation with him where he told me that if he didn’t have long to live then he’d rather live without constantly feeling tired and sickly.”