The NHS said smoking was the most common cause of lung cancer, accounting for seven out of 10 cases, external, but cases among non-smokers are on the rise.
Screening is being rolled out across England, external for 55-74-year-olds, but is not done everywhere and there are no plans to introduce it for younger patients.
The diagnosis for non-smokers is more common in women – twice that of men, and the under 55s, external – according to the Ruth Strauss Foundation, set up in memory of the late wife of former England Cricket Captain Sir Andrew Strauss, who was diagnosed with incurable lung cancer and died, aged 46, in 2018.
Wilson-Rowe is currently undergoing an intensive course of chemotherapy, and is using a form of immunotherapy not available on the NHS.
The Exon 20 Group, formed of patients, scientists, and oncologists, is looking into the specific mutation that led to Susie’s cancer, and researching further treatments.