MND affects nerves found in the brain and spinal cord, which tell your muscles what to do, which leads them to weaken and stiffen over time and usually affects how you walk, talk, eat and breathe.
The form of MND that the Liberal Democrat councillor has begins in the mouth and throat, before progressing to other parts of the body.
The 58-year-old said he felt “terrible shock and fear” after his diagnosis.
“It was nine months after I first noticed at a council meeting that my voice was sounding ever so slightly odd, a tiny bit slurred,” he said.
Since his diagnosis, the former journalist has been involved in fundraising for charities connected to MND.
His participation in the 2025 Moonlight Walk by Hospice in the Weald, which had been caring for him since his diagnosis, raised more than £11,000.
In December, he also took part in a charity run in Leeds, raising more than £10,000.