{"id":163444,"date":"2025-09-27T08:59:12","date_gmt":"2025-09-27T08:59:12","guid":{"rendered":"https:\/\/www.newsbeep.com\/uk\/163444\/"},"modified":"2025-09-27T08:59:12","modified_gmt":"2025-09-27T08:59:12","slug":"families-face-unfair-luck-of-the-draw-over-nhs-continuing-healthcare-report","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/uk\/163444\/","title":{"rendered":"Families face unfair \u2018luck of the draw\u2019 over NHS continuing healthcare \u2013 report"},"content":{"rendered":"<p>Your support helps us to tell the story<\/p>\n<p class=\"sc-1uza6dc-0 jEZjIj\">From reproductive rights to climate change to Big Tech, The Independent is on the ground when the story is developing. Whether it&#8217;s investigating the financials of Elon Musk&#8217;s pro-Trump PAC or producing our latest documentary, &#8216;The A Word&#8217;, which shines a light on the American women fighting for reproductive rights, we know how important it is to parse out the facts from the messaging.<\/p>\n<p class=\"sc-1uza6dc-0 jEZjIj\">At such a critical moment in US history, we need reporters on the ground. Your donation allows us to keep sending journalists to speak to both sides of the story.<\/p>\n<p class=\"sc-1uza6dc-0 jEZjIj\">The Independent is trusted by Americans across the entire political spectrum. And unlike many other quality news outlets, we choose not to lock Americans out of our reporting and analysis with paywalls. We believe quality journalism should be available to everyone, paid for by those who can afford it.<\/p>\n<p>Your support makes all the difference.Read more<\/p>\n<p>There is an unfair \u201cluck of the draw\u201d when it comes to families getting <a href=\"https:\/\/www.independent.co.uk\/topic\/nhs\" rel=\"nofollow noopener\" target=\"_blank\">NHS<\/a> funding for their loved ones, according to a report.<\/p>\n<p>Financial pressures are also playing a \u201ckey role\u201d in how NHS continuing healthcare (CHC) operates, \u201cwith all parts of the system facing significant pressure to keep costs down\u201d, the study from the <a href=\"https:\/\/www.independent.co.uk\/topic\/nuffield-trust\" rel=\"nofollow noopener\" target=\"_blank\">Nuffield Trust<\/a> found.<\/p>\n<p>CHC is a package of health and social care provided outside of hospital, which the NHS pays for.<\/p>\n<p>It is for people who are identified as having a \u201cprimary health need\u201d but has repeatedly hit the headlines for being an unfair system.<\/p>\n<p>Various parliamentary reports have criticised how funding is allocated across <a href=\"https:\/\/www.independent.co.uk\/topic\/england\" rel=\"nofollow noopener\" target=\"_blank\">England<\/a>, while the <a href=\"https:\/\/www.independent.co.uk\/topic\/national-audit-office\" rel=\"nofollow noopener\" target=\"_blank\">National Audit Office<\/a> said the system can leave families without support they are entitled to.<\/p>\n<p>Some families have taken local health organisations to court to win CHC funding after being turned down.<\/p>\n<p>In the latest analysis, researchers found CHC is failing to reach some of the most unwell patients in England.<\/p>\n<p>They said the current CHC framework reinforces deep regional inequalities, with variations in who is eligible for funding, and less being spent per person in deprived areas and the north of England.<\/p>\n<p>Despite overall spending on CHC increasing, the number deemed eligible for help is falling.<\/p>\n<p>Overall, the number of people eligible for CHC fell from 57,216 at the end of June 2017 to 52,008 at the end of December 2024 \u2013 a drop of 9.1%.<\/p>\n<p>This is being driven by fewer people being able to access longer-term CHC funding, compared with fast-track funding, which is intended to support people at the end of their lives.<\/p>\n<p>Researchers found that, in all years with the exception of 2020\/21, there was a statistically significant fall in the average number of people eligible for CHC in the last two quarters of the financial year compared with the first two.<\/p>\n<p>\u201cThe exact reason for this pattern is not clear, but the financial pressures the (NHS integrated care boards) are under are widely acknowledged and these may be playing a part,\u201d the report said.<\/p>\n<p>Researchers said CHC can be a lifeline for people with significant ongoing care needs, but if someone is found ineligible they can be faced with a \u201ccliff-edge of potentially catastrophic costs\u201d.<\/p>\n<p>Their report said: \u201cThe current situation means the stakes are high \u2013 an \u2018all or nothing\u2019 approach that is problematic and does not reflect the nature of need.<\/p>\n<p>\u201cWith both the NHS and social care under pressure to keep costs down and allocate resources equitably, people requiring care are caught in the middle.\u201d<\/p>\n<p>Researchers called on the NHS and <a href=\"https:\/\/www.independent.co.uk\/topic\/department-of-health-and-social-care\" rel=\"nofollow noopener\" target=\"_blank\">Department of Health and Social Care<\/a> to urgently improve consistency and fairness in how CHC operates.<\/p>\n<p>They also said the review of social care by Baroness Casey offers a \u201ckey opportunity\u201d to create a resilient and fair care system.<\/p>\n<p>Nuffield Trust fellow Rachel Hutchings said:\u00a0\u201cFor people grappling with the bewildering CHC process, the stakes couldn\u2019t be higher.<\/p>\n<p>\u201cBeing eligible can be the difference between having all of your health and social care funded or being faced with catastrophic care costs, often during times of crisis.<\/p>\n<p>\u201cBut our research suggests that access to this vital funding is unfair and inconsistent.<\/p>\n<p>\u201cNot only is the assessment process itself challenging, but the toll it takes on families is long-lasting, part of an ongoing struggle to access good quality, timely care for their loved ones.<\/p>\n<p>\u201cCHC is a window into the stark divide in our system between care that is funded by the NHS and care that isn\u2019t, and it exposes yet more flaws with our wider social care system.\u201d<\/p>\n<p>Ruth Driscoll, associate director of policy and public affairs at Marie Curie, said: \u201cThis new research shows that people at the end of life are falling through the cracks of our broken health and social care system.<\/p>\n<p>\u201cA gruelling assessment process for fast-track continuing healthcare and a postcode lottery that disadvantages people in deprived areas means terminally ill patients are missing out on the care packages they desperately need.\u201d<\/p>\n<p>Jess Mcgregor, president of Association of Adult Social Care Directors (Adass), said: \u201cThis report highlights the lack of fairness and consistency in who receives CHC\u2026<\/p>\n<p>\u201cOur latest survey found 75% of directors of adult social services reported an increase in the number of people no longer eligible for CHC who would have previously qualified for the NHS funded care.<\/p>\n<p>\u201cWe are worried that the NHS, which struggles to move resources away from hospitals, is increasingly balancing its books by taking away care from individual people.<\/p>\n<p>\u201cThis is placing pressure on councils\u2019 adult social care budgets and the frontline adult social care workforce who are increasingly taking on the responsibilities previously delivered by health partners in the NHS, often without associated funding, training, supervision or strategic co-ordination.<\/p>\n<p>\u201cBut perhaps most worryingly, it is placing unimaginable emotional and financial stress on people drawing on care and the people who love them, often at the end of their lives.\u201d<\/p>\n<p>A Department of Health and Social Care spokeswoman said: \u201cWe\u00a0recognise everyone should have access to high-quality, compassionate care, from diagnosis through to end of life.<\/p>\n<p>\u201cContinuing Health Care eligibility is based on the need of the local area and so there will always be some variation due to factors including the age profile of the local population, variations between geographical regions in terms of health needs, and the availability of locally commissioned services.<\/p>\n<p>\u201cAs part of our 10 Year Health Plan we will shift more healthcare out of hospitals and into the community, to ensure patients and their families can access the care they need, where and when they need it.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"Your support helps us to tell the story From reproductive rights to climate change to Big Tech, The&hellip;\n","protected":false},"author":2,"featured_media":163445,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[43],"tags":[102,2960,56,54,55],"class_list":{"0":"post-163444","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-healthcare","8":"tag-health","9":"tag-healthcare","10":"tag-uk","11":"tag-united-kingdom","12":"tag-unitedkingdom"},"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/163444","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/comments?post=163444"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/163444\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media\/163445"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media?parent=163444"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/categories?post=163444"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/tags?post=163444"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}