{"id":253680,"date":"2025-11-09T20:25:09","date_gmt":"2025-11-09T20:25:09","guid":{"rendered":"https:\/\/www.newsbeep.com\/uk\/253680\/"},"modified":"2025-11-09T20:25:09","modified_gmt":"2025-11-09T20:25:09","slug":"a-man-is-rapidly-being-brain-damaged-as-doctors-dont-believe-him","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/uk\/253680\/","title":{"rendered":"A man is rapidly being brain-damaged as doctors don&#8217;t believe him"},"content":{"rendered":"<p>I\u2019m running out of time.<\/p>\n<p>That\u2019s how James Richard Klingsborg \u2013 known as Rich \u2013 begins his harrowing plea for help. He is living through what he calls \u201ca perfect storm of progressive, permanent brain damage.\u201d Three rare and interacting conditions \u2014 a <a href=\"https:\/\/www.mayoclinic.org\/diseases-conditions\/csf-leak\/symptoms-causes\/syc-20522246\" target=\"_blank\" rel=\"noopener nofollow\">cerebrospinal fluid (CSF) leak<\/a>,<a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC7614629\/\" target=\"_blank\" rel=\"noopener nofollow\"> infratentorial superficial siderosis<\/a>, and <a href=\"https:\/\/pmc.ncbi.nlm.nih.gov\/articles\/PMC10069563\/\" target=\"_blank\" rel=\"noopener nofollow\">triple-positive antiphospholipid syndrome<\/a> \u2014 are destroying his health, while Swedish healthcare has left him to deteriorate.<\/p>\n<p>Rich: his brain is being damaged as we speak<\/p>\n<p>This was Rich before these conditions took hold in February of this year. Even though he was also living with <a href=\"https:\/\/www.thecanary.co\/topics\/mecfs\/\" target=\"_blank\" rel=\"noopener nofollow\">myalgic encephalomyelitis<\/a> (ME) he still had some quality of life:<\/p>\n<p>Rich explains that now:<\/p>\n<p>My life is falling apart around me as I struggle within a healthcare system that has proved both indifferent to and incapable of diagnosing or treating this complex and rapidly worsening health crisis.<\/p>\n<p>For six months he has been \u201crepeatedly sent home from the emergency room,\u201d despite visible neurological decline. The leaking CSF causes brain sagging, vein rupture, bleeding, and iron toxicity. The latter is killing off nerves in his brain, leading to permanent damage.<\/p>\n<p>Freiburg University Hospital in Germany, a world leader in CSF-leak treatment, has given him hope. They\u2019ve confirmed his diagnosis and have a plan for targeted repair \u2014 \u201ctreatment ready and waiting,\u201d as he writes \u2014 but cost is the only obstacle.<\/p>\n<p>Rich describes his daily life as one of isolation and despair. He says:<\/p>\n<p>It\u2019s an absurd situation \u2014 to not receive the care you need in your own country \u2014 and profoundly uncomfortable to so publicly and literally have to beg for your life.<\/p>\n<p>A creative soul who once loved sound and light, he now lives in near-darkness, unable to bear loud noise or movement:<\/p>\n<p><a href=\"https:\/\/www.newsbeep.com\/uk\/wp-content\/uploads\/2025\/11\/IMG_5043-scaled.jpg\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter size-full wp-image-1722262\" src=\"https:\/\/www.newsbeep.com\/uk\/wp-content\/uploads\/2025\/11\/IMG_5043-scaled.jpg\" alt=\"\" width=\"2560\" height=\"1920\"  \/><\/a><\/p>\n<p>The emotional toll is palpable. \u201cNo more listening to or making music\u2026 the things you take for granted suddenly become unbearably painful,\u201d he writes. Each day without treatment risks further nerve death, deeper disability, and the permanent loss of independence.<\/p>\n<p>Systemic failures<\/p>\n<p>Sweden\u2019s failure is not an individual oversight; it\u2019s a systemic collapse around the world. A supposedly advanced healthcare system has let bureaucracy and ignorance consign a man to worsening neurological damage. Supposed rare-disease patients like Rich fall through cracks too wide to close \u2014 cracks widened by medical arrogance and ignorance. They\u2019re also widened by the notion that diseases are rare \u2013 when in fact, they all-too-often not.<\/p>\n<p>But crucially, it\u2019s the notion \u2013 pushed by psychiatrists and adopted by mainstream medicine \u2013 that physical illness can somehow be psychomatic which is most damaging. As Rich describes in the below video, doctors think his and so many other people\u2019s illnesses are somehow \u2018all in their heads\u2019 \u2013 when they are demonstrably not:<\/p>\n<\/p>\n<p>Rich writes,:<\/p>\n<p>After six months of being repeatedly sent home\u2026 I\u2019ve reached a terrifying crossroads: I\u2019m now far too sick to keep fighting this uphill battle.<\/p>\n<p>His words cut to the core of a state that prides itself on universal care yet forces its citizens to crowdfund survival.<\/p>\n<p>He needs your support<\/p>\n<p>Germany, by contrast, offers a clear route: advanced imaging, dynamic myelography and surgical sealing of the leak. It\u2019s sophisticated, evidence-based medicine \u2014 but it costs money Rich doesn\u2019t have. The fundraiser seeks 150,000 SEK to cover diagnostics and treatment.<\/p>\n<p>Rich promises transparency:<\/p>\n<p>Every donation, no matter how small, could be what saves my life\u2026 Any reimbursement will be refunded to donors.<\/p>\n<p>What stands out most is his courage to write with such honesty. He jokes darkly about the surreal task of fundraising for your own life \u2014 \u201cbeing told it has to be catchy and filled with cheerful photos of you so people will want to help.\u201d Yet behind the gallows humour lies desperation:<\/p>\n<p>Desperation and death anxiety are very strong motivators.<\/p>\n<p>The Swedish health authorities should hang their heads in shame. A man shouldn\u2019t have to explain his suffering to strangers because alleged medical professionals refuse to listen. Their delays have made his disease worse \u2014 his brain damage, pain, his tinnitus, his dizziness, psychosis, and paralysis, all avoidable with earlier intervention.<\/p>\n<p>Rich\u2019s case exposes a more profound truth: when systems stop seeing patients as people, they condemn them quietly. Bureaucracy becomes triage; neglect becomes policy. Sweden\u2019s international image as a compassionate healthcare model means nothing to those it abandons.<\/p>\n<p>Help Rich if you can<\/p>\n<p>For Rich, however, there is still a window of hope. The specialists in Freiburg can act \u2014 but only if they reach them in time. \u201cThe care I urgently need is available and waiting in Germany, while I lie here rapidly deteriorating,\u201d he pleads.<\/p>\n<p>His situation shouldn\u2019t exist. And yet, as he writes from his darkened room:<\/p>\n<p>Time is running out.<\/p>\n<p>Your donation could buy more than medical intervention \u2014 it could bring him back the sounds, lights, and sensations of a life worth living.<\/p>\n<p>Please, if you can, give what you\u2019re able. Share his story. Be part of the humanity that Sweden\u2019s healthcare system has forgotten.<\/p>\n<p>Donate to Rich\u2019s fundraiser <a href=\"https:\/\/www.gofundme.com\/f\/Help-Me-Get-Life-Saving-Treatment-in-Germany\" target=\"_blank\" rel=\"noopener nofollow\">here<\/a>.<\/p>\n<p>Watch more of Rich\u2019s story below:<\/p>\n<\/p>\n<p>Featured image and additional images supplied<\/p>\n","protected":false},"excerpt":{"rendered":"I\u2019m running out of time. That\u2019s how James Richard Klingsborg \u2013 known as Rich \u2013 begins his harrowing&hellip;\n","protected":false},"author":2,"featured_media":253681,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[43],"tags":[33454,4226,102,2960,41791,56,54,55],"class_list":{"0":"post-253680","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-healthcare","8":"tag-chronic-illness","9":"tag-disability","10":"tag-health","11":"tag-healthcare","12":"tag-me-cfs","13":"tag-uk","14":"tag-united-kingdom","15":"tag-unitedkingdom"},"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/253680","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/comments?post=253680"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/253680\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media\/253681"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media?parent=253680"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/categories?post=253680"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/tags?post=253680"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}