{"id":269748,"date":"2025-11-18T13:46:23","date_gmt":"2025-11-18T13:46:23","guid":{"rendered":"https:\/\/www.newsbeep.com\/uk\/269748\/"},"modified":"2025-11-18T13:46:23","modified_gmt":"2025-11-18T13:46:23","slug":"non-verbal-autistic-boy-lost-part-of-childhood-in-pain-over-dental-care-failures","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/uk\/269748\/","title":{"rendered":"Non-verbal autistic boy \u2018lost part of childhood\u2019 in pain over dental care failures"},"content":{"rendered":"<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">The case relates to the care the boy received from the Northern Health Trust over several years up to July 2019.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">Northern Ireland Public Services Ombudsman Margaret Kelly launched an investigation after a complaint lodged by the boy\u2019s mother.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">The complainant said her son\u2019s behaviour changed towards the end of 2017 and early 2018, when the once \u201chappy and easy-going\u201d boy became so aggressive he had to be \u201csemi-segregated\u201d at school.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">His behaviour continued to deteriorate and the school could no longer cope, so the then 12 year old stopped attending altogether.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">In mid-2018, the boy\u2019s doctor organised for him to undergo a multidisciplinary assessment under general anaesthetic to see if there was an underlying medical reason for the changes to his behaviour.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">The complainant said she understood that the Northern Trust\u2019s Community Dental Service (CDS) would be involved in the assessment, but they did not attend.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">Following the assessment, the patient\u2019s difficult behaviour continued.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">Ms Kelly\u2019s report states: \u201cThe complainant explained the patient\u2019s behaviour included self-harming and aggression, both of which put significant stress on the family, in addition to the impact on the patient.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">\u201cThe complainant said the patient\u2019s new self injurious behaviours lasted for the entire period, from late 2017 and which manifested \u201824 hours a day\u2019.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">\u201cShe explained the patient and his family became isolated as they could neither go out or receive visitors because of the potential risks to other people from the patient\u2019s aggressive behaviour.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">\u201cThe complainant said, prior to this period, the patient was \u2018happy and easy-going\u2019.\u201d<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">On July 1, 2019, the boy\u2019s mother discovered he had a broken double tooth, which is when a tooth cracks vertically in two places, often right to the gum line. This can cause severe pain and requires immediate dental treatment.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">The CDS carried out dental treatment on the boy under general anaesthetic on July 19, 2019, after which his behaviour improved, although he never returned to school. Since the onset of the changes in his difficult behaviour, he has not been able to interact with other children.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">The boy\u2019s mother said her son had \u201clost part of his childhood\u201d, and although his behaviour improved, he \u201cwas never the same child as before\u201d.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">Ms Kelly\u2019s report states: \u201cThe complainant believed the patient\u2019s behavioural changes were caused by \u2018significant pain\u2019 related to dental issues but, because the patient is non-verbal, he could not communicate this.\u201d<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">Following a review of all the evidence and input from a medical expert, the Ombudsman found that the Trust failed to apply topical fluoride \u2013 which strengthens teeth \u2013 to the patient in line with relevant guidance.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">Department of Health guidance advises dentists that topical fluoride should be applied twice a year to children, although the CDS only applied this twice to the complainant\u2019s son in a seven-year period from 2012 to 2019.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">The Ombudsman also found that Trust also failed to recall or review the patient for dental care as frequently as required.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">Furthermore, Ms Kelly found the Trust failed to follow-up with the boy\u2019s family regarding the original multidisciplinary assessment.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">\u201cI recognise these failings caused the patient to sustain the injustice of a loss of opportunity for optimum and timely care and treatment,\u201d Ms Kelly said.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">\u201cFurther I recognise, on the balance of probabilities, the failings caused the patient to sustain the injustice of distress arising from unnecessary pain. I also recognise the failings caused the patient\u2019s family to sustain the injustice of worry and upset at seeing the patient in distress.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">\u201cThroughout my consideration of this case, the complainant\u2019s concerns about the patient\u2019s wellbeing and her desire to ensure his needs and best interests were met were clearly evident.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">\u201cI hope this report gives the complainant some reassurance in providing answers to her questions about the failures in the patient\u2019s care and treatment.\u201d<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">The Ombudsman made several recommendations to the Trust, including that it provide the complainant with a written apology.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">She also said the Trust should consider facilitating a face-to-face meeting between a paediatric representative and the patient and complainant to communicate the apology in-person.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">It was also recommended that the Trust carry out sample audits across various workstreams to identify any shortcomings and that the Trust should give relevant staff \u201cthe opportunity to reflect\u201d on the findings of the report.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">A Northern Trust spokesperson said: \u201cWe are very sorry for the distress caused to the patient and his family, and acknowledge that our failings caused unnecessary suffering, both physically and emotionally.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">\u201cIt is always our intention to deliver high quality, compassionate care at all times, with every patient&#8217;s individual care needs in mind, and we acknowledge this did not happen on this occasion.<\/p>\n<p><img decoding=\"async\" alt=\"The boy suffered from a broken double tooth. Stock image.\" src=\"https:\/\/www.newsbeep.com\/uk\/wp-content\/uploads\/2025\/11\/50fb08c5-d401-487a-a080-b3c8d923679d.jpg\" loading=\"eager\" width=\"100%\" data-testid=\"article-image\"  \/><\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_caption1 beltel-300db776_none beltel-91174671_secondary beltel-66f0fec7_regular beltel-1d70522a_marginbottom0 beltel-1d70522a_marginleft0 beltel-1d70522a_marginright0 beltel-1d70522a_margintop3 beltel-b48c4984_left\" style=\"color:var(--color-grey-60)\">The boy suffered from a broken double tooth. Stock image.<\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_caption1 beltel-300db776_none beltel-91174671_secondary beltel-66f0fec7_regular beltel-1d70522a_marginbottom0 beltel-1d70522a_marginleft0 beltel-1d70522a_marginright0 beltel-1d70522a_margintop3 beltel-b48c4984_left\" style=\"color:var(--color-grey-60)\">News Catch Up &#8211; Thursday 13 November   <\/p>\n<p class=\"beltel-ebe0ecc6_root beltel-ebe0ecc6_paragraph beltel-300db776_none beltel-91174671_primary beltel-1d70522a_marginbottom5 beltel-1d70522a_margintop0 beltel-b48c4984_inherit\" style=\"color:var(--color-primary-80)\">\u201cWe offer our assurances that lessons have been learned from this experience. The report and its findings will be shared with all relevant staff for learning and reflection to ensure all of our patients and their families receive the best possible care.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"The case relates to the care the boy received from the Northern Health Trust over several years up&hellip;\n","protected":false},"author":2,"featured_media":269749,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[43],"tags":[1898,102,43348,2960,56,54,55],"class_list":{"0":"post-269748","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-healthcare","8":"tag-andrew-madden","9":"tag-health","10":"tag-health-trusts","11":"tag-healthcare","12":"tag-uk","13":"tag-united-kingdom","14":"tag-unitedkingdom"},"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/269748","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/comments?post=269748"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/269748\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media\/269749"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media?parent=269748"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/categories?post=269748"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/tags?post=269748"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}