\n Holly Williams, from Newtown, has been repeatedly sent for treatment at Royal Shrewsbury Hospital while suffering from a rare neurological condition \u2013 despite there being no neurologists at the hospital.\n<\/p>\n
\n Holly suffers from a rare condition called Functional Neurologic Disorder (FND) which can lead to serious symptoms that impact her life.\n<\/p>\n
\n \u201cI went into hospital in December 2023,\u201d said Holly. \u201cI woke up one morning I was pretty much paralysed, I couldn\u2019t even bend my back. I was waiting 36 hours for an ambulance to come. When I got to hospital they rushed round thinking it was a spinal infection.\n<\/p>\n
\n \u201cI saw a neurologist and he said \u2018I\u2019ll see you in the new year\u2019. I didn\u2019t hear anything until that May where I returned back with stroke-like symptoms.\n<\/p>\n
\n \u201cI saw the same consultant who diagnosed me with FND who told me they were retiring. I had a referral put in to see their replacement, ever since then I haven\u2019t been able to see a neurologist in Shrewsbury Hospital.\u201d\n<\/p>\n
\n Shrewsbury and Telford Hospital NHS has no neurology department and is instead reliant on cover from Wolverhampton.\n<\/p>\n
\n Holly and her partner Perry Saunders have been in a battle over the last two years to get her seen by a consultant, at first seeking a referral to Wolverhampton, but as this was sent by her GP in the post there was no reference number to track.\n<\/p>\n
\n They have also pushed to have Holly treated in Hereford where there are four neurologist on staff, but she was denied a transfer as she lives too far north.\n<\/p>\n
\n What are your thoughts?\n<\/p>\n
\n You can send a letter to the editor to have your say by clicking here<\/a> .\n<\/p>\n \n In this time Holly has been through severe stress.\n<\/p>\n \n \u201cIn June I started vomiting blood,\u201d said Holly. “We went to A&E, at first they put that down to the FND which seemed odd as it is a neurological disorder so why would it make you throw up blood.\n<\/p>\n \n \u201cI had 11 weeks of not being able to eat, lost 25 kg. It was backwards and forwards about getting an endoscopy until I saw the gastro team in Shrewsbury who said I should have had one when I came in. They later found a hernia.\n<\/p>\n \n \u201cSince being diagnosed I have had to figure it all out by myself as they gave me a website when I was diagnosed. My house isn\u2019t fit for FND, I have seizures, I can sometimes wake up and not be able to move out of bed, I struggle with the stairs so I have had to move my bedroom downstairs.\n<\/p>\n \n \u201cI am too scared to go to the hospital anymore.\u201d\n<\/p>\n \n Help support trusted local news\n<\/p>\n