![\"Jesy](\"https:\/\/www.newsbeep.com\/uk\/wp-content\/uploads\/2026\/01\/4_Jesy-Nelson.jpg\")
Jesy Nelson says doctors initially dismissed her fears for her twin babies\u00a0(Image: jesynelson\/Instagram)<\/p>\nJesy Nelson has shared what doctors told her when she raised the alarm over the health of her newborn twins – and how she was constantly told not to compare them to other babies<\/p>\n
09:58, 06 Jan 2026Updated 09:58, 06 Jan 2026<\/p>\n
Jesy Nelson says doctors initially dismissed her fears for her twin babies\u00a0(Image: jesynelson\/Instagram)<\/p>\n
Pop star Jesy Nelson has shared the dismissive response doctors <\/a>gave her when she tried to tell them there was something not right with her twin babies.<\/p>\n The former Little Mix<\/a> Star, 34, revealed her daughters Ocean Jade and Story Monroe have been diagnosed with spinal muscular atrophy type 1. This is a rare genetic condition<\/a> causing muscle weakness<\/a> which can become fatal if left undiagnosed.<\/p>\n Jesy, who gave birth to the twins prematurely at 31 weeks with her fiance Zion said doctors told her there wasn’t anything to worry about as they were premature – and not to compare them to other babies despite not being able to move the same way as normal newborns.<\/p>\n READ MORE: Jesy Nelson’s twins’ condition explained as star shares signs that were ‘dismissed’<\/a> The Brit Award winner said it was her mum Janice White who noticed there could be something wrong but was reassured by health visitors, especially when the couple grew concerned about their feeding. However, they were told the babies were \u201cgreat and healthy\u201d and there wasn\u2019t anything to worry about.<\/p>\n She explained in a heartwrenching Instagram<\/a> post on Sunday: \u201cA few months ago my mum noticed that the girls were not showing as much movement in their legs as they should be.\u201cIt wasn\u2019t really a concern to me at the time because from the minute I left NICU (Neonatal Intensive Care Unit), I was told ‘your babies are premature, so do not compare your babies to other babies.<\/p>\n “They won\u2019t reach the same milestones, take them as they are and they will get where they need to be when they do\u2019.\u201d But the knew mum knew something wasn’t right and noticed her twins began feeding less.<\/p>\n Jesy explained: “We would take them to the GP, we were saying our babies are not feeding as frequently as they should. They were like ‘Don\u2019t worry it\u2019s fine, just keep trying little and often.”<\/p>\n Content cannot be displayed without consent<\/p>\n Then after months of testing, Ocean and Story were eventually diagnosed with the severe muscular disease, called SMA Type 1 and Jesy has admitted it\u2019s been \u201cthe most heartbreaking time of my life,\u201d and her \u201cwhole life has done a 360.\u201d<\/p>\n “I\u2019m grieving a life I thought I was going to have with my children,\u201d she emotionally said, before acknowledging that she is grateful to have them. “I truly believe that my girls will defy all odds. And with the right help, they will fight this, and go on to do things that have never been done.\u201d<\/p>\n Using her platform, the singer now hopes to raise awareness of the early warning signs of SMA. She said that she raised some concerns to doctors that were initially dismissed and how a simple test at birth may have been able to save her children’s muscles.<\/p>\n SMA happens when there\u2019s a mutation in the SMN1 gene. This affects a specific nerve cells in the spinal cord that controls muscle movement. Without this cell, muscles don\u2019t receive the nerve signals needed to move which causes them to weaken and waste away over time.<\/p>\n It is a progressive condition with no cure but there are treatments available to help manage the symptoms. Early diagnosis and treatment is crucial as it can help save muscles that aren\u2019t affected yet but once a muscle starts to atrophy it usually can\u2019t be fully restored.<\/p>\n![\"Jesy](\"https:\/\/www.newsbeep.com\/uk\/wp-content\/uploads\/2026\/01\/2_Jesy-Nelson-Instagram-screenshot.png\")
Jesy Nelson revealed her daughters have been diagnosed with Spinal Muscular Atrophy type 1(Image: Jesy Nelson \/ Instagram)<\/p>\n