Piper, now aged three, loves eating food now and has been doing really well, she said. <\/p>\n
Yet Piper’s condition is life-long and she will receive care from the surgical team at Addenbrooke’s Hospital until she is 16, her mother said. <\/p>\n
“I cannot tell you how many times I have been sat in front of a GP trying to explain her condition and sort of being disregarded and it’s been happening to parents of TOF babies and children all over the UK.”<\/p>\n
Samantha believed there was a lack of knowledge of the condition amongst healthcare professionals and recalled how once a GP Googled the condition during a consultation.<\/p>\n
“For so many parents that fight is not over – or it is just begun. <\/p>\n
“I don’t think that NHS strategy of let’s wait and see will ever change, but if we can get the conversation going – I am very happy to talk about Piper.”<\/p>\n
Denise Townsend, the deputy chief nurse for Mid and South Essex NHS Foundation Trust, said: “We sincerely apologise that the level of care received by Piper was not to the standard she and her family should have expected.” <\/p>\n","protected":false},"excerpt":{"rendered":"Piper, now aged three, loves eating food now and has been doing really well, she said. Yet Piper’s…\n","protected":false},"author":2,"featured_media":60637,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[43],"tags":[102,2960,56,54,55],"class_list":{"0":"post-60636","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-healthcare","8":"tag-health","9":"tag-healthcare","10":"tag-uk","11":"tag-united-kingdom","12":"tag-unitedkingdom"},"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/60636","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/comments?post=60636"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/60636\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media\/60637"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media?parent=60636"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/categories?post=60636"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/tags?post=60636"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}