{"id":667343,"date":"2026-07-01T04:51:18","date_gmt":"2026-07-01T04:51:18","guid":{"rendered":"https:\/\/www.newsbeep.com\/uk\/667343\/"},"modified":"2026-07-01T04:51:18","modified_gmt":"2026-07-01T04:51:18","slug":"being-stuck-in-nhs-bed-led-to-mans-death-inquest-finds","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/uk\/667343\/","title":{"rendered":"Being stuck in NHS bed led to man&#8217;s death, inquest finds"},"content":{"rendered":"<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">In July 2025, two months before his death, Hull, who previously ran his own handyman business and housed Ukrainian refugees for two years,  <a href=\"https:\/\/www.bbc.co.uk\/news\/articles\/c209pgq7rdro\" class=\"ssrcss-1e0jzsh-InlineLink e1kn3p7n0\" rel=\"nofollow noopener\" target=\"_blank\">told the BBC<\/a> about the lengthy waits he faced for a hoist, a wheelchair and a bed that was big enough for him while living in his own home.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">He had previously been in the Guinness Book of Records along with his brother as the tallest twins in Britain.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">&#8220;Above a certain height, you don&#8217;t exist,&#8221; Hull told the BBC.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">He also said his standard of living was &#8220;very, very low&#8221;.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">He described the difficulties of trying to see the right doctors and getting the social care he needed.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">The situation led to his decision to stop taking medication that was needed to ensure the continued functioning of a transplanted kidney his brother had donated to him.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">Dying, he said, &#8220;would be a better option than lying in bed 24 hours a day&#8221;.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">Hull had a rare neurological condition, <a href=\"https:\/\/www.nhs.uk\/conditions\/hereditary-spastic-paraplegia\/\" class=\"ssrcss-1e0jzsh-InlineLink e1kn3p7n0\" rel=\"nofollow noopener\" target=\"_blank\">Hereditary Spastic Paraplegia [HSP] , external<\/a>\u2013 unrelated to his height \u2013 which causes spasms and muscle weakness. Pain, fatigue and depression are also common symptoms.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">The inquest was told as a result of the BBC&#8217;s reporting, local community teams began working with the family to install a ceiling hoist \u2013 first discussed three months earlier &#8211; and an extension to Hull&#8217;s bed.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">He had spent two years in a standard hospital bed, provided by the NHS, which he described as &#8220;hideously uncomfortable&#8221; and like &#8220;torture&#8221;.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">An initial bed extension was eventually provided, but caused him to sit up in a position that presented a choking risk.<\/p>\n","protected":false},"excerpt":{"rendered":"In July 2025, two months before his death, Hull, who previously ran his own handyman business and housed&hellip;\n","protected":false},"author":2,"featured_media":667344,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[3],"tags":[59,57,58,50,56,54,55],"class_list":["post-667343","post","type-post","status-publish","format-standard","has-post-thumbnail","category-united-kingdom","tag-gb","tag-great-britain","tag-greatbritain","tag-news","tag-uk","tag-united-kingdom","tag-unitedkingdom"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/667343","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/comments?post=667343"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/667343\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media\/667344"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media?parent=667343"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/categories?post=667343"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/tags?post=667343"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}