The family said the proposed adaptations would make it easier for Sid to move around the property and access his bathroom and bedroom.<\/p>\n
Sophie said doctors had warned them he might not live beyond the age of two.<\/p>\n
“It has been a really difficult time,” she said.<\/p>\n
She said securing support for her son had been an ongoing struggle.<\/p>\n
“Everything along the way has been such a fight,” she said.<\/p>\n
“A fight, to get equipment and fight to get the care that he needs, the fight to get access to different treatments and therapies.”<\/p>\n
Although treatments are available for SMA, there is currently no cure.<\/p>\n
A spokesperson for Maidstone Borough Council said: “The council is working with the family to progress disabled facilities grant applications and support them in accessing all available funding.”<\/p>\n
Follow BBC Kent on Facebook, external<\/a>, on X, external<\/a>, and on Instagram, external<\/a>. Send your story ideas to southeasttoday@bbc.co.uk, external<\/a> or WhatsApp us on 08081 002250.<\/p>\n