{"id":738223,"date":"2026-08-14T22:56:11","date_gmt":"2026-08-14T22:56:11","guid":{"rendered":"https:\/\/www.newsbeep.com\/uk\/738223\/"},"modified":"2026-08-14T22:56:11","modified_gmt":"2026-08-14T22:56:11","slug":"youre-not-alone-woman-keen-to-raise-awareness-after-adenomyosis-diagnosis","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/uk\/738223\/","title":{"rendered":"\u2018You\u2019re not alone\u2019: woman keen to raise awareness after adenomyosis diagnosis"},"content":{"rendered":"<p>A LERWICK woman is urging others to \u201cadvocate for themselves\u201d after spending a decade being told a painful gynaecological condition was \u201cjust heavy periods\u201d, writes Chloe Irvine.<\/p>\n<p>Kira Spofforth, 26, was diagnosed with adenomyosis in January \u2013 a condition that can cause severe cramps, chronic pelvic pain, heavy or prolonged periods, and extreme fatigue.<\/p>\n<p>She is also suspected to have endometriosis, though this cannot be confirmed until she undergoes surgery.<\/p>\n<p>Both conditions involve tissue (similar to the uterine lining) growing where it shouldn\u2019t.<\/p>\n<p>In endometriosis, the tissue grows outside the uterus on organs such as the ovaries or bladder. Adenomyosis, however, occurs when this tissue grows inside the muscular wall of the uterus.<\/p>\n<p>Although Kira only received her diagnosis this year, she believes she has lived with symptoms for most of her life.<\/p>\n<p>For years, her symptoms were dismissed as \u201cjust heavy periods\u201d that were \u201cbound to be sore\u201d, despite the severity of what she was experiencing.<\/p>\n<p>\u201cI pass out sometimes from how sore it is. When I was about 16, I would go in the shower, and it would seem so hot I would get out and fall to the floor.<\/p>\n<p>\u201cIf I was standing up for a long time the pain would get worse and worse, I would start blacking out almost.\u201d<\/p>\n<p>She also experienced symptoms she later learned were more typical of adenomyosis.<\/p>\n<p>\u201cI would say \u2018I\u2019ve got pain in my hips, but it\u2019s not always the same hip\u2019. It would go from one side to the other. That\u2019s one thing the symptoms of endometriosis don\u2019t really cover.<\/p>\n<p>\u201cI didn\u2019t know how this pain was jumping from one place to the other and it turned out it was the adenomyosis.\u201d<\/p>\n<p>Her periods were not only painful but extremely prolonged.<\/p>\n<p class=\"row-text sign-in-message\">Already a member? <a href=\"https:\/\/account.shetnews.co.uk\/?redirect_to=https:\/\/www.shetnews.co.uk\/2026\/08\/14\/youre-alone-woman-keen-raise\/\" title=\"Sign in\" rel=\"nofollow noopener\" target=\"_blank\">Sign in<\/a> to hide this message.<\/p>\n<p>\u00a0<\/p>\n<p>\u201cSeven days would be the least for me,\u201d Kira said. \u201cSometimes it would even be more, and it\u2019s always been like that.\u201d<\/p>\n<p>Then, last November, her health took a \u201cturn for the worse\u201d \u2013 including bleeding every day for half a year.<\/p>\n<p>\u201cI\u2019ve been on and off every single pill, injection and contraception under the sun.<\/p>\n<p>\u201cI ended up getting the coil in November and it had a really bad effect; I was in so much pain when I got it.<\/p>\n<p>\u201cAfter that, I bled every single day non-stop for about six months. Sometimes it would be heavy and sometimes it wouldn\u2019t be, but it was every day non-stop.\u201d<\/p>\n<p>The constant bleeding caused her condition to \u201cflare up\u201d even further \u2013 but removing the coil was complicated by her place on the waiting list for endometriosis surgery.<\/p>\n<p>\u201cI asked them if I should remove the coil, but because I\u2019m on the waiting list for surgery for endometriosis, they say when you have the surgery the coil is supposed to help.<\/p>\n<p>\u201cIt\u2019s a bit of a catch-22. You just don\u2019t know what\u2019s going to help it and what\u2019s not.\u201d<\/p>\n<p>After years of feeling dismissed, Kira eventually found a doctor who played a crucial role in getting her diagnosis.<\/p>\n<p>\u201cShe makes a real effort to see how I\u2019m getting on and if I\u2019ve heard back from gynaecology,\u201d she said.<\/p>\n<p>\u201cI\u2019m lucky to have found someone who is advocating for me because I didn\u2019t have that for a lot of years.<\/p>\n<p><a href=\"https:\/\/www.shetnews.co.uk\/wp-content\/uploads\/2026\/08\/8b972828-7505-45fa-a9fc-862cf42c2ca8-e1786714628300.jpg\" data-fancybox=\"images\" rel=\"nofollow noopener\" target=\"_blank\"><\/p>\n<p><img decoding=\"async\" class=\"wp-post-image\" src=\"https:\/\/www.newsbeep.com\/uk\/wp-content\/uploads\/2026\/08\/8b972828-7505-45fa-a9fc-862cf42c2ca8-e1786714628300-470x397.jpg\" \/><\/a><\/p>\n<p>\u201cI think a lot of people do get dismissed because it\u2019s a women\u2019s issue.\u201d<\/p>\n<p>During this period, all she wanted was \u201canswers\u201d. An ultrasound finally provided them.<\/p>\n<p>\u201cThey were doing the internal exam and [the two people doing the scan] looked at each other and said \u2018it\u2019s adenomyosis\u2019 \u2013 they could see it on the scan. I\u2019d never heard of it before.\u201d<\/p>\n<p>The diagnosis brought a sense of relief after years of unexplained symptoms \u2014 but it also came with unsettling news.<\/p>\n<p>While treatments can help manage symptoms, Kira was told the only \u201ccure\u201d is a hysterectomy.<\/p>\n<p>\u201cI feel like there hasn\u2019t been many studies on adenomyosis. It seems crazy to me that the first option they give you is a hysterectomy because that\u2019s so life\u2011changing for somebody.<\/p>\n<p>\u201cI\u2019ve been told it\u2019s pretty much just pain management until you get to the point where you\u2019ve had your bairns.\u201d<\/p>\n<p>She is currently on \u201cpretty strong\u201d painkillers, which come with difficult side\u2011effects.<\/p>\n<p>\u201cYou\u2019re already exhausted from having this pain, then you\u2019re taking these painkillers that make you feel drowsy,\u201d Kira explained.<\/p>\n<p>\u201cI was in bed the whole of last weekend because I physically could not bring myself to get out of bed.<\/p>\n<p>\u201cAs soon as I\u2019ve got two days off that\u2019s me, I\u2019ll sleep 14 hours and even that won\u2019t feel like enough, it\u2019s exhausting to deal with every day.\u201d<\/p>\n<p>Kira has since been pushed forward for endometriosis surgery after \u201cbursting into tears\u201d while explaining the daily impact of her condition.<\/p>\n<p>But waiting lists remain long \u2014 around a year for isles patients, and up to five years if more extensive surgery is required in Aberdeen.<\/p>\n<p>She hopes her story encourages others in a similar boat to trust their instincts and push for a diagnosis.<\/p>\n<p>\u201cEveryone knows their bodies better than anyone else,\u201d Kira said.<\/p>\n<p>\u201cIt is disheartening going to the doctors and feeling dismissed, but you know yourself if something\u2019s wrong. Being able to advocate for yourself is so important.<\/p>\n<p>\u201cIt might not be the diagnosis you want, but at least you\u2019ve got answers and there\u2019s other people out there you can relate to.<\/p>\n<p>\u201cYou\u2019re not alone, there\u2019s other people experiencing the same things as you and I think it\u2019s important we speak about it,\u201d she added.<\/p>\n<p>Information about adenomyosis can be found on the NHS <a href=\"https:\/\/www.nhs.uk\/conditions\/adenomyosis\/\" target=\"_blank\" rel=\"noopener nofollow\">website<\/a>.<\/p>\n<p>Shetland News is asking its readers to consider paying for membership to get additional perks:<\/p>\n<p>Removal of third-party ads;<br \/>\nBookmark posts to read later;<br \/>\nExclusive curated weekly newsletter;<br \/>\nHide membership messages;<br \/>\nComments open for discussion.<\/p>\n<p>If you appreciate what we do and feel strongly about impartial local journalism, then please become a member of Shetland News by either making a single payment, or setting up a monthly, quarterly or yearly subscription.<\/p>\n<p class=\"row-text sign-in-message\">Already a member? <a href=\"https:\/\/account.shetnews.co.uk\/?redirect_to=https:\/\/www.shetnews.co.uk\/2026\/08\/14\/youre-alone-woman-keen-raise\/\" title=\"Sign in\" rel=\"nofollow noopener\" target=\"_blank\">Sign in<\/a> to hide this message.<\/p>\n<p>\t<img decoding=\"async\" src=\"https:\/\/www.newsbeep.com\/uk\/wp-content\/uploads\/2025\/09\/payments_horizontal_2.png\" alt=\"Payment methods accepted\"\/><\/p>\n<p>\u00a0<\/p>\n","protected":false},"excerpt":{"rendered":"A LERWICK woman is urging others to \u201cadvocate for themselves\u201d after spending a decade being told a painful&hellip;\n","protected":false},"author":2,"featured_media":738224,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[244038,59,102,56,54,55],"class_list":["post-738223","post","type-post","status-publish","format-standard","has-post-thumbnail","category-health","tag-adenomyosis","tag-gb","tag-health","tag-uk","tag-united-kingdom","tag-unitedkingdom"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/738223","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/comments?post=738223"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/738223\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media\/738224"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media?parent=738223"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/categories?post=738223"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/tags?post=738223"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}