{"id":774663,"date":"2026-09-18T11:52:12","date_gmt":"2026-09-18T11:52:12","guid":{"rendered":"https:\/\/www.newsbeep.com\/uk\/774663\/"},"modified":"2026-09-18T11:52:12","modified_gmt":"2026-09-18T11:52:12","slug":"fight-for-six-year-olds-life-after-juvenile-mnd-diagnosis","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/uk\/774663\/","title":{"rendered":"Fight for six year old&#8217;s life after juvenile MND diagnosis"},"content":{"rendered":"<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">When six-year-old Partaap began struggling to stand, climb the stairs and do other everyday activities, his parents knew something was wrong.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">Over the following months, his family faced a series of hospital appointments and tests as they searched for answers.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">The diagnosis, when it came, was devastating.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">Doctors told them Partaap had an extremely rare variant of Juvenile ALS, a type of motor neurone disease (MND), <a href=\"https:\/\/www.nhs.uk\/conditions\/motor-neurone-disease\/\" class=\"ssrcss-1e0jzsh-InlineLink e1kn3p7n0\" rel=\"nofollow noopener\" target=\"_blank\">according to the NHS, external<\/a>.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">They said only 40 to 50 children worldwide had been diagnosed with the condition and that he is believed to be the youngest person in the UK living with it.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">&#8220;As parents, hearing this felt like the ground disappeared beneath us,&#8221; said his mother, Gurbinder.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">The first signs of the condition appeared early last year, when Partaap began falling over for no obvious reason and found it increasingly difficult to walk long distances.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">In January, genetic test results confirmed the family&#8217;s fears.<\/p>\n","protected":false},"excerpt":{"rendered":"When six-year-old Partaap began struggling to stand, climb the stairs and do other everyday activities, his parents knew&hellip;\n","protected":false},"author":2,"featured_media":774664,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[10],"tags":[59,102,56,54,55],"class_list":["post-774663","post","type-post","status-publish","format-standard","has-post-thumbnail","category-health","tag-gb","tag-health","tag-uk","tag-united-kingdom","tag-unitedkingdom"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/774663","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/comments?post=774663"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/774663\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media\/774664"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media?parent=774663"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/categories?post=774663"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/tags?post=774663"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}