{"id":819299,"date":"2026-10-31T02:32:15","date_gmt":"2026-10-31T02:32:15","guid":{"rendered":"https:\/\/www.newsbeep.com\/uk\/819299\/"},"modified":"2026-10-31T02:32:15","modified_gmt":"2026-10-31T02:32:15","slug":"a-rare-disease-and-analog-photography-merge-in-a-portrait-of-self-discovery-colossal","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/uk\/819299\/","title":{"rendered":"A Rare Disease and Analog Photography Merge in a Portrait of Self-Discovery \u2014 Colossal"},"content":{"rendered":"<p class=\"wp-block-paragraph\">\u201c<a href=\"https:\/\/vimeo.com\/1237137642\" target=\"_blank\" rel=\"noreferrer noopener nofollow\">Everything Twice<\/a>\u201d is a quiet meditation on disability and the ways we orient ourselves in the world. Since childhood, <a href=\"https:\/\/www.cysfilm.com\/\" target=\"_blank\" rel=\"noreferrer noopener nofollow\">Cy Kuckenbaker<\/a> noticed that one of his eyes drooped, something he attributed to a snowboarding accident. But doctors quickly dismissed that theory, and after innumerable tests and many, many years, the photographer learned he was born with a rare disease.<\/p>\n<p class=\"wp-block-paragraph\">Kuckenbaker chronicles this realization alongside a slow, analog process he began to combat burnout. Utilizing homemade cameras crafted from cardboard boxes and drugstore magnifying glasses, he captured a variety of landscapes and sights on the West Coast. Pairing both the slow processes of labor-intensive photography with that of uncovering an unusual ailment creates a short film that\u2019s equal part self-discovery and contemplation on disconnection and loss.<\/p>\n<\/p>\n<p><a href=\"https:\/\/www.newsbeep.com\/uk\/wp-content\/uploads\/2026\/10\/double-1.jpg\" class=\"swipebox\" data-rel=\"lightbox-gallery-478972\"><img loading=\"lazy\" decoding=\"async\" width=\"2000\" height=\"1047\" src=\"https:\/\/www.newsbeep.com\/uk\/wp-content\/uploads\/2026\/10\/double-1.jpg\" alt=\"a still of three cardboard box cameras on sand\" class=\"wp-image-478973\"  \/><\/a><\/p>\n<p class=\"wp-block-paragraph\">Do stories and artists like this matter to you? Become a <a href=\"https:\/\/www.thisiscolossal.com\/members\/\" data-type=\"page\" data-id=\"118516\" rel=\"nofollow noopener\" target=\"_blank\">Colossal Member<\/a> now, and support independent arts publishing.<\/p>\n<p>Hide advertising<\/p>\n<p>Save your favorite articles<\/p>\n<p>Get 15% off in the <a href=\"https:\/\/colossal.shop\/\" rel=\"nofollow noopener\" target=\"_blank\">Colossal Shop<\/a><\/p>\n<p>Receive members-only newsletter<\/p>\n<p>Give 1% for art supplies in K-12 classrooms<\/p>\n","protected":false},"excerpt":{"rendered":"\u201cEverything Twice\u201d is a quiet meditation on disability and the ways we orient ourselves in the world. Since&hellip;\n","protected":false},"author":2,"featured_media":819300,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[31],"tags":[6225,6485,6486,268814,1120,4226,96,56,54,55,5793],"class_list":["post-819299","post","type-post","status-publish","format-standard","has-post-thumbnail","category-arts-and-design","tag-arts","tag-arts-and-design","tag-artsanddesign","tag-cy-kuckenbaker","tag-design","tag-disability","tag-entertainment","tag-uk","tag-united-kingdom","tag-unitedkingdom","tag-video"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/819299","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/comments?post=819299"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/posts\/819299\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media\/819300"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/media?parent=819299"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/categories?post=819299"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/uk\/wp-json\/wp\/v2\/tags?post=819299"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}