{"id":333144,"date":"2026-05-26T18:06:12","date_gmt":"2026-05-26T18:06:12","guid":{"rendered":"https:\/\/www.newsbeep.com\/us-ca\/333144\/"},"modified":"2026-05-26T18:06:12","modified_gmt":"2026-05-26T18:06:12","slug":"my-daughter-needed-a-liver-transplant-to-save-her-life-bart-is-key-to-her-ongoing-care","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/us-ca\/333144\/","title":{"rendered":"My daughter needed a liver transplant to save her life. BART is key to her ongoing care"},"content":{"rendered":"

\"\"<\/p>\n

This story was produced by El T\u00edmpano<\/a>, a civic media organization serving and covering the Bay Area\u2019s Latino and Mayan immigrant communities. The original version of the story can be found here<\/a>. Lea esta historia en espa\u00f1ol.<\/a><\/p>\n

Almost a decade ago, my friends went on a trip to Italy to visit the Vatican and they brought me back a rosary of Our Lady of Lourdes. As Catholics, we know her as the patroness of the sick and healing. So when I found out they were going, I asked them to think of me and pray for me because I wished for a baby. My husband and I had tried for kids throughout our marriage, but we decided to stop trying because of the toll it was taking on my mental health.\u00a0<\/p>\n

I said it was like a miracle because we had gone 15 years without having kids. After I found out I was pregnant, I put a lot of faith into that rosary. I would hold it and pray hard that my baby would be okay. You could say that as Catholics, we cling to a certain kind of belief and I held onto that. I told my husband that we were going to name our daughter after her, our Lady of Lourdes.<\/p>\n

\"\"Lourdes, who shares her mother\u2019s name but is lovingly called Lulu, stands in the hallway of her family\u2019s apartment on March 10, 2026, in Fremont, Calif. She received a liver transplant as an infant and continues to travel regularly for specialized medical care.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

Now, my Lulu is seven years old. But a month and a half after she was born, we went to the pediatrician and the doctor said they needed to do labs on her because they noticed her abdomen was a little large. After the tests, we were told they\u2019d call us back with the results. We then received a call and they told us that we needed to go to UCSF Oakland Children\u2019s Hospital.<\/p>\n

\"\"Lulu sits in her family\u2019s living room before leaving for a doctor\u2019s appointment with her mother on March 10, 2026, in Fremont. Her family relies on BART and public transit to reach her medical appointments in Oakland and San Francisco.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

Once we got there, they took her blood, ultrasounds, x-rays. The doctors told me she had jaundice, and they explained that her yellow color meant her bilirubin levels were very high. They said it looked like there was a blockage in her liver, which was then diagnosed as biliary atresia, and they told us she needed surgery.<\/p>\n

\"\"Lourdes, left, carries snacks while her daughter, Lulu, holds an iPad after arriving at the Fremont BART station on March 10, 2026, in Fremont. The pair begin the multi-leg trip by rideshare, BART and shuttle bus to reach the daughter\u2019s medical appointments in Oakland.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

Unfortunately, the surgery didn\u2019t help. They said they were going to keep her so she could recover and be strong enough to go through the transplant list, but they told us that the procedure would be done in San Francisco. It gave us hope, but at the same time, they started telling us that the worse she got, the more critical her condition became, the higher up she would move on the list. Meaning, if your daughter is dying, they\u2019ll give her the transplant. I was already going through intense post-partum depression and after all of this, it became an even bigger crisis for me. Since they couldn\u2019t put her so soon on the transplant list, she had to stay at Oakland Children\u2019s Hospital for three months in the Neonatal Intensive Care Unit.<\/p>\n

\"\"Lulu, 7, plays on the platform while waiting for a train at Fremont BART station in Fremont. Lourdes and her mother regularly take public transit to medical appointments in Oakland and San Francisco.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

At six months old, she finally got a liver transplant. She had a total of six surgeries, and that meant her care would require various follow-ups with doctors and specialists. Now, we go to San Francisco every three months so she can get checked by the liver doctor through ultrasound. Sometimes my husband will drive us to these appointments but when he can\u2019t, we take BART and use public transportation. Lulu also sees a hematologist there because her platelets are high, and a rheumatologist to rule out autoimmune diseases. So from an early age, she has always said that she felt different from the other kids.\u00a0<\/p>\n

We moved to Fremont 20 years ago and after living in Hayward and Union City, we came back to Fremont in 2022 because we could apply for and rent an apartment through affordable housing.<\/p>\n

\"\"Lulu and her mother hold hands during the trip.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

Ultimately, my husband and I decided it would be best to keep taking her all the way to Oakland for her pediatric check-ups, even though it\u2019s a bit far. I could take her to local pediatricians, but because of everything she has, she needs one who\u2019s also up to date on everything her other doctors are doing and has access to all the relevant information.<\/p>\n

\"\"Lulu and her mother wait aboard the UCSF Children\u2019s shuttle bus near MacArthur BART station in Oakland on their way to one of Lourdes\u2019 medical appointments.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

Since we only have one car, my husband takes it during the weekdays to work at a local cafe near Warm Springs BART station. I don\u2019t drive, so I rely on BART and public transportation to take Lulu to her appointments in Oakland and San Francisco. How often she has them varies on a monthly basis, but her primary doctor is at UCSF Oakland Children\u2019s Hospital.<\/p>\n

\"\"Lulu plays on her iPad in a doctor\u2019s office while her mother checks in for an appointment in Oakland.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

If Lulu has an appointment at 11 a.m., we have to leave the house at around 9:30 a.m. to take a Lyft or Uber to the Fremont BART station. If we decide to take the bus, we have to leave around 9 a.m. instead. Usually, Lulu doesn\u2019t like waiting for the bus so I opt to take her through rideshare services. Once we get to the station, I tap us in and we wait for the train.<\/p>\n

\"\"Lulu eats a hot dog while waiting for the second of two shuttle buses outside UCSF Benioff Children\u2019s Hospital in Oakland.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

During the 40-minute train ride to MacArthur BART station, Lulu has her tablet and plays games. She\u2019ll often ask for a snack or two before going to the appointment, and point at things outside the window that she sees. Once we get to MacArthur BART station, we take the UCSF Children\u2019s shuttle bus to the hospital or to her other appointments, like the dentist. The shuttle bus usually picks us up between five to 15 minutes. We could walk to the hospital to avoid waiting that extra time, but it\u2019s hard for me to walk for an extended period of time because of a bad fall that hurt my knees two years ago.<\/p>\n

\"\"Lulu and her mother stop for tacos at Taqueria 16 De Septiembre in Oakland on their way home from medical appointments.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

Once we wrap up the appointment, we have to take the shuttle bus back to MacArthur BART station and then take the train to Warm Springs BART station, where my husband can pick us up. Lulu doesn\u2019t like waiting for long, so we choose to get dropped off at this station instead because it\u2019s easier for her dad to get to, and so we don\u2019t have to take a rideshare service or more public transit.<\/p>\n

\"\"Lulu rides an escalator toward the Fruitvale BART platform in Oakland on the trip home from a medical appointment.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

My only options for getting around are walking, the bus, or BART. That\u2019s the only way I can take my Lulu to her appointments without my husband having to miss work to help with our responsibilities. With the closure of the Warm Springs BART station, I\u2019d have to change my route to get off at another station for my husband to pick us up, which would take longer. He only works five hours a day because there was a change in ownership at the cafe, and sales have gone down so much. Personally, I take time off my part-time job as a cashier to take Lulu to her appointments. I worry because I\u2019m conscious of the fact that I\u2019m not the only person who needs BART.\u00a0<\/p>\n

\"\"Lulu does a cartwheel while waiting for her father to pick them up at the Warm Springs\/South Fremont BART station in Fremont.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

The easy thing would be to grab an Uber, but right now\u2014especially during this period\u2014what we\u2019re mainly looking at is the cost of the trip. And then I start to take into account the traffic because once we\u2019re on the ride, and she\u2019s seeing the slow traffic, if the car isn\u2019t moving, she starts saying that it\u2019s taking too long, that her stomach hurts, that she feels dizzy. That\u2019s why I stopped using it, because I\u2019ll go on BART and at least Lulu is walking, seeing stuff outside, and she\u2019s distracted, so that was how I figured out how to manage with her.<\/p>\n

\"\"Lourdes rubs her husband\u2019s neck as the family drives home to Fremont after a day of medical appointments in Oakland.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

Her condition is stable, but she needs to continue treatment, and her treatment is a lifelong commitment. I can find doctors that can be her main pediatrician here, but I always say it\u2019s a different situation. I think that all the doctors should be communicating with each other in order to provide better care for her. In fact, any medication they want to start with Lulu has to be approved first by the liver specialist. So these are different things that we have to go through. I know it\u2019s a little more time, work, and effort to go all the way to Oakland and San Francisco but it\u2019s Lulu\u2019s health. We aren\u2019t going to take any risks.<\/p>\n

\"\"Lulu plays on the jungle gym outside her family\u2019s apartment complex in Fremont.\u00a0Credit:\u00a0Hiram Alejandro Dur\u00e1n for El T\u00edmpano\/CatchLight Local\/Report for America corps member<\/p>\n

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