CORBIN, Ky. (WKYT) – Kentucky health officials say a review of cancer data confirmed an unusual increase in cases of rare pediatric brain tumors in Eastern Kentucky, prompting the state to explore research and other next steps.
WKYT Investigates was the first to report on the issue. When Samatha Valentino asked the state about the number of cases, they said they were looking into it.
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At the time, there had been at least five DIPG cases in Eastern Kentucky since 2024. Now, Team Kentucky says there have been 10 cases DIPG/DMG in Eastern Kentucky in people under age 21 in 2024, 2025, and so far in 2026.
There are typically two to three cases per year, across the entire state.
What the state says it is doing next
The Kentucky Department of Public Health said Team Kentucky is committed to protecting the health and safety of all Kentuckians, especially children, and is looking into multiple next steps in response to what it called a “concerning and devastating” increase.
The department said it does not directly conduct complex investigations into the causes of cancer, but the state is working with the Pediatric Cancer Research Trust Fund to explore research opportunities. The department said it will also continue coordinating with local health departments to share information and resources as needed.
State officials said they are inquiring about support available from the Centers for Disease Control and Prevention, but said it “has been more difficult due to significant funding cuts under the current administration.”
The state said it will continue working with the University of Kentucky and other hospitals to look into additional research opportunities.
Funding, awareness proclamations and resources
Under the Beshear administration, the state said more than $45 million has been invested in the Kentucky Pediatric Cancer Research Trust Fund to support pediatric cancer research and families facing a diagnosis.
Since July 2024, the trust fund has invested more than $9.6 million in research into DIPG/DMG and other pediatric brain and central nervous system tumors, the state said.
Gov. Andy Beshear signed a proclamation last month recognizing Brain Cancer Awareness Month, Diffuse Intrinsic Pontine Glioma (DIPG) Awareness Day and David Turner Jr. Ice Cream Day, in honor of David Turner Jr., who died from DIPG in 2021, according to the state.
The Department for Public Health encouraged families affected by DIPG/DMG to contact the International DIPG/DMG Registry to learn more about studies and resources that may be available.
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