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Browsing Tag

Barth Syndrome

4 posts
MMedication
FDA approves "lifesaving" drug after Omaha mom's pleas
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FDA approves “lifesaving” drug after Omaha mom’s pleas

  • September 29, 2025
An Omaha mom is celebrating the Food and Drug Administration’s approval of elamipretide for Barth syndrome.The sign Jordan…
MMedication
Rankin County teen wins battle for treatment with FDA drug approval
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Rankin County teen wins battle for treatment with FDA drug approval

  • September 26, 2025
RANKIN CO., Miss. (WLBT) – The U.S. Food and Drug Administration’s denial of a life-changing medication pushed a…
GGenetics
FDA clears first treatment for rare male genetic disorder, Barth syndrome
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FDA clears first treatment for rare male genetic disorder, Barth syndrome

  • September 20, 2025
The US Food and Drug Administration (FDA) on Friday approved Stealth Biotherapeutics’ once-daily injection Forzinity for Barth syndrome,…
MMedication
FDA denies approval for drug that improved a Rankin County teen’s life
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FDA denies approval for drug that improved a Rankin County teen’s life

  • August 7, 2025
RANKIN CO., Miss. (WLBT) – A Rankin County teenager’s life-changing medication is being denied approval by the U.S.…
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