{"id":106028,"date":"2025-08-24T06:44:06","date_gmt":"2025-08-24T06:44:06","guid":{"rendered":"https:\/\/www.newsbeep.com\/us\/106028\/"},"modified":"2025-08-24T06:44:06","modified_gmt":"2025-08-24T06:44:06","slug":"calls-to-help-east-sussex-boy-with-rare-genetic-blood-disorder","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/us\/106028\/","title":{"rendered":"Calls to help East Sussex boy with rare genetic blood disorder"},"content":{"rendered":"<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">The mother of a toddler with a rare blood condition is urging others in similar positions to get a &#8220;ground-breaking&#8221; blood matching test so patients can have safer long-term care. <\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">Woody, aged 22 months, was diagnosed with Congenital Dyserythropoietic Anaemia (CDA) Type 1, which affects about one to five out of every million babies, according to rare disease resource Orphanet.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">The condition means the DNA in Woody&#8217;s red blood cells is disordered and he needs blood transfusions every four weeks to stay alive.<\/p>\n<p class=\"ssrcss-1q0x1qg-Paragraph e1jhz7w10\">Woody&#8217;s mother, Polly, 35, who lives in Robertsbridge, said it was &#8220;really frightening&#8221; when he was born as he was &#8220;poorly, pale and needed ventilation breaths&#8221;.<\/p>\n","protected":false},"excerpt":{"rendered":"The mother of a toddler with a rare blood condition is urging others in similar positions to get&hellip;\n","protected":false},"author":2,"featured_media":106029,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[50],"tags":[200,79],"class_list":["post-106028","post","type-post","status-publish","format-standard","has-post-thumbnail","category-genetics","tag-genetics","tag-science"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/posts\/106028","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/comments?post=106028"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/posts\/106028\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/media\/106029"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/media?parent=106028"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/categories?post=106028"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/tags?post=106028"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}