![\"Kayleigh](\"https:\/\/www.newsbeep.com\/us\/wp-content\/uploads\/2026\/04\/abd6393136bc21d3ce20c8e5e8679f99.jpeg\"\/)
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Kayleigh and Ryan Dunn with their daughter, Lorelei
Credit: GoFundMe<\/p>\n
NEED TO KNOW<\/p>\n
Kayleigh and Ryan Dunn\u2019s 11-month-old daughter daughter, Lorelei, was diagnosed with the rare genetic disorder CACNA1E, which affects fewer than 100 people<\/p>\n
Lorelei experiences frequent seizures, lives with mobility challenges and requires a feeding tube due to the disorder<\/p>\n
Kayleigh documents Lorelei\u2019s health journey on TikTok, where they receive support after the girl\u2019s G-tube surgery in January<\/p>\n
A mother feels heartbroken seeing her baby girl living with a rare genetic disorder that affects fewer than 100 people in the world.<\/p>\n
Kayleigh and Ryan Dunn\u2019s 11-month-old daughter, Lorelei, was diagnosed with CACNA1E. Due to this neurological condition, she lives with mobility challenges, experiences frequent seizures and requires a feeding tube.<\/p>\n
Patrick Lawlor, Lorelei’s neurologist in Michigan, described the severity of CACNA1E to local news outlet WXYZ<\/a>, saying, \u201cThe lack of progress is something that really signals how severe her disorder is. Probably one of the most severe children I\u2019ve taken care of. She has clusters of brief seizures. Sometimes 10 or 20 times per day.\u201d<\/p>\n The Michigan mom explained that it’s \u201ceven harder\u201d because Lorelei has \u201cno head control or upper body control.\u201d Kayleigh added, “Even though we\u2019re desensitized. It breaks my heart to see her like this.”<\/p>\n Kayleigh Dunn with her baby girl, Lorelei Kayleigh has been documenting Lorelei’s health journey on TikTok<\/a>, inciting an outpouring of love and support, including when she had a G-tube surgery in January.<\/p>\n “She took it like a champ, and I could not be prouder of her,” Kayleigh captioned the TikTok video<\/a>. “I cannot wait to get her home and comfortable in her own bed. But for now, I\u2019m going to enjoy this quiet moment alone in our little hospital room, just the two of us.”<\/p>\n Kayleigh told WXYZ that Lorelei, who enjoys bath time, is nonverbal, adding, \u201cFor someone who is nonverbal, she is very vocal.\u201d<\/p>\n The mother is hopeful that their family\u2019s story encourages other people to get tested for neurological conditions.<\/p>\n Meanwhile, Lorelei\u2019s neurologist is hopeful about potential treatment options. \u201cIt\u2019s possible it could improve her seizures, her development. It could be transformative in the best case,” Lawlor explained. “I really admire her family and how well they take care of her.”<\/p>\n Angela Munaco, one of the family\u2019s close friends set up a GoFundMe<\/a> to help the family cover Lorelei’s medical bills and other costs.<\/p>\n Never miss a story \u2014 sign up for PEOPLE’s free daily newsletter<\/a> to stay up-to-date on the best of what PEOPLE has to offer\u200b\u200b, from celebrity news to compelling human interest stories.<\/p>\n \u201cShortly after her diagnosis, Kayleigh\u2019s husband [Ryan] suffered a serious back injury at work, leaving him unable to work for several months,\u201d the GoFundMe said. \u201cBetween his recovery, endless doctor appointments, and the long wait for state approval of Lorelei\u2019s special needs insurance, Kayleigh had no choice but to step back from full-time work. She now works part-time when she can, balancing her career with being Lorelei\u2019s full-time caregiver.\u201d<\/p>\n Kayleigh told WXYZ, \u201cI just want [Lorelei] to know I tried everything I can to make her better.\u201d<\/p>\n Read the original article on People<\/a><\/p>\n![\"Kayleigh](\"https:\/\/www.newsbeep.com\/us\/wp-content\/uploads\/2026\/04\/539870785e25dd68991fb36b87d2b8fc.jpeg\"\/)
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Credit: GoFundMe<\/p>\n