{"id":751989,"date":"2026-07-09T06:02:08","date_gmt":"2026-07-09T06:02:08","guid":{"rendered":"https:\/\/www.newsbeep.com\/us\/751989\/"},"modified":"2026-07-09T06:02:08","modified_gmt":"2026-07-09T06:02:08","slug":"uk-girl-12-underwent-six-grueling-unnecessary-rounds-of-chemo-after-misdiagnosis","status":"publish","type":"post","link":"https:\/\/www.newsbeep.com\/us\/751989\/","title":{"rendered":"UK girl, 12, underwent six grueling, unnecessary rounds of chemo after misdiagnosis"},"content":{"rendered":"

A 12-year-old girl in England was forced to endure six grueling rounds of chemotherapy that robbed her of several years of her childhood \u2014 only for the treatments to be deemed completely unnecessary due to a misdiagnosis. <\/p>\n

Faye Condon, of Plymouth, was diagnosed with Juvenile Dermatomyositis (JDM), a rare autoimmune disease, by doctors at Bristol Children\u2019s Hospital in 2019 after she struggled to walk \u201cjust 200 yards to school [and] would randomly fall,\u201d her mother Christina Condon told LADBible.<\/a><\/p>\n

\"AFaye Condon has Emory-Dreifuss muscular dystrophy, which causes muscle atrophy. Christina Condon \/ SWNS<\/p>\n

While JDM is not cancer, it may be treated with low-dose chemotherapy <\/a>drugs and corticosteroids to suppress the immune system and halt muscle damage.<\/p>\n

As a result, little Faye was subjected to six cycles of chemo, home injections and a muscle biopsy over seven years, the Telegraph reported. <\/a><\/p>\n

\u201cWe have spent her entire childhood in and out of hospital,\u201d she told LADBible. \u201cWe haven\u2019t been on holidays and we don\u2019t have a house or car that is wheelchair accessible because we were told she was going to get better.\u201d<\/p>\n

But the concerned mom always doubted the diagnosis, claiming staff \u201cjust threw medicine\u201d at her daughter.<\/p>\n

\u201cEvery test for the autoimmune disease was negative,\u201d Christina added. \u201cNot a single test they did pointed towards JDM.\u201d<\/p>\n

In reality, Faye suffers from Emory-Dreifuss muscular dystrophy (EDMD), despite staff at Bristol Children\u2019s \u201ccategorically\u201d telling her parents that \u201cit was not muscular dystrophy.\u201d<\/p>\n

She was finally given the correct diagnosis once she was referred to Great Ormond Street Hospital.<\/p>\n

\u201cAll it took to diagnose her was a blood test with specific genetic testing, but the doctors at BCH were so adamant that it was JDM they never sent for this test,\u201d Christina said. \u201cThose doctors ruined my little girl\u2019s whole childhood. I feel so let down by everybody.\u201d<\/p>\n

\"AFaye and her mother Christina Condon, who had desperately tried to figure out the root cause of her daughter\u2019s atrophy Christina Condon \/ SWNS<\/p>\n

Christina alleges that departmental finances played a role in the botched outcome.<\/p>\n

\u201cEveryone could see there was something wrong, but no one wanted to take responsibility for her and do more tests, as tests cost money,\u201d she explained.<\/p>\n

EDMD is a rare, life-altering disorder that impacts skeletal and cardiac muscles, leading to severe endurance issues. There is no treatment or cure.<\/p>\n

\u201cIf we had the correct diagnosis seven years ago when Faye was able to walk, we could have gone on holiday and had more fun with her before she was wheelchair-bound,\u201d Christina lamented.<\/p>\n","protected":false},"excerpt":{"rendered":"A 12-year-old girl in England was forced to endure six grueling rounds of chemotherapy that robbed her of…\n","protected":false},"author":2,"featured_media":751990,"comment_status":"","ping_status":"","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[34],"tags":[36457,9333,97,322500,234835,965],"class_list":["post-751989","post","type-post","status-publish","format-standard","has-post-thumbnail","category-health","tag-autoimmune-disease","tag-england","tag-health","tag-medical-dramas","tag-medical-mishaps","tag-world-news"],"_links":{"self":[{"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/posts\/751989","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/comments?post=751989"}],"version-history":[{"count":0,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/posts\/751989\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/media\/751990"}],"wp:attachment":[{"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/media?parent=751989"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/categories?post=751989"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.newsbeep.com\/us\/wp-json\/wp\/v2\/tags?post=751989"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}