Taoiseach doesn’t commit to timeline for approval of drug to treat Friedreich’s ataxia The Journal‘Issues’ with communication on rare drugs reimbursement RTE.ieFather pleads with HSE to acquire lifesaving drug for his son BreakingNews.ieHSE Drugs Group defers decision on drug to treat Friedrich’s ataxia to allow for further research Irish Examiner‘How much is a life worth?’ – Young woman’s fight to secure access to transformative drug in face of battle against debilitating life-shortening condition Irish Independent